Scott Adams
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About Me
Scott Adams was diagnosed with celiac disease in 1994, and, due to the nearly total lack of information available at that time, was forced to become an expert on the disease in order to recover. In 1995 he launched the site that later became Celiac.com to help as many people as possible with celiac disease get diagnosed so they can begin to live happy, healthy gluten-free lives. He is co-author of the book Cereal Killers, and founder and publisher of the (formerly paper) newsletter Journal of Gluten Sensitivity. In 1998 he founded The Gluten-Free Mall which he sold in 2014. Celiac.com does not sell any products, and is 100% advertiser supported.
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Scott Adams changed their profile photo -
It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
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Scott Adams reacted to a post in a topic:
Damage after 13 years gluten free
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Newbie with Celiac / NCGS symptoms
Scott Adams replied to SEQ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would pressure the lab to do the IgA control test for free so that you won't write a poor review about their testing services. You could get this done at any time, whether or not you are gluten-free, however, the celiac disease Tissue Transglutaminase tTG-IgA test must be done after you've been eating lots of gluten for around 6 weeks. This way you could... -
Given your strong reactions it would be wise not to eat things offered to you without reading the ingredient labels. It's possible there was indeed gluten or some allergen in the chocolates--barley malt is a common ingredient in some chocolates.
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pweidema reacted to a post in a topic:
Reportable Disease
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Welcome to the forum @oyea, have you ever been screened for celiac disease? You symptoms sound like they could be celiac disease related.
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Since chocolate has a laxative/stimulant effect on the digestive system, similar to coffee, some people do report IBS-like symptoms when they eat it, however, as long as the chocolate is gluten-free, the cause of such symptoms would be unrelated to celiac disease.
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Since those with celiac disease have a much higher change of having or getting additional autoimmune diseases it could definitely affect your health insurance rates. Prior to the Affordable Care Act (ACA), individuals with celiac disease could indeed be charged significantly higher premiums for private health insurance or even be denied coverage altogether...
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@Jmartes71, your story is a powerful and heartbreaking testament to the profound failure of the medical system to understand and properly manage celiac disease and its long-term consequences. Being dismissed and medically gaslit for three decades after an initial diagnosis is an unimaginable burden that has cost you your health, your career, and your sense...
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Scott Adams reacted to a post in a topic:
is my celiac disease gone?
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Scott Adams reacted to a post in a topic:
is my celiac disease gone?
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Celiac.com 09/13/2025 - Pizza has long been a symbol of communal eating and culinary creativity. Its origins trace back to ancient flatbreads enjoyed across the Mediterranean, but modern pizza as we know it took shape in Naples, Italy... -
Scott Adams reacted to a comment:
Are Potato Chips Gluten Free? (+Video)
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I agree, and generally it means that it isn't working in a high enough percentage of participants to continue pursuing it.
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Celiac.com 09/11/2025 - For individuals with celiac disease or gluten sensitivity, avoiding gluten-containing grains is essential for maintaining health. Most people are familiar with the need to avoid wheat, but barley often flies under... -
Scott Adams reacted to a post in a topic:
Celiac symptoms
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ShariW reacted to a comment:
Comparing Urine and Stool Tests for Gluten Exposure Detection
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We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
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Celiac symptoms
Scott Adams replied to Dana0207's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity... -
Scott Adams reacted to a post in a topic:
Celiac symptoms
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So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
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Product Name: Blueberry Pretzels " Brand Name: HEB " Description: 8oz HEB Blueberry Flavored Yogurt Pretzels " UPC Codes: 9787011400 " Lot Numbers: 080226, 080326 " Best By / Use By Dates: 080226 & 080326 " Package Size: 8oz " Establishment Number: 008046575 " UPC Codes: 9787011400 " Lot Numbers: 080226, 080326 " Best By / Use By Dates: 080226 &...
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Jmartes71 reacted to a post in a topic:
Celiac symptoms but negative endoscopy and antibody test + family history of gastro problems
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That is very strange, because it looks to me like two very different test results, but for the same test! It's definitely time to contact your doctor for clarity on this.