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cristiana

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cristiana last won the day on June 21

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  1. Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse. But it is important not to stop the treatment. Regarding your problems with anxiety, again that is another symptom of a B12 deficiency. I didn't know...
  2. @Colleen H I am just curious, when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium. Might be worth looking into having some more tests. Pins and needles can be neuropathy, again caused...
  3. Hi @KathyR37 and a very warm welcome here. I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana
  4. I seem to recall that my digestive issues actually started when I was taking NSAIDs c. February 2013 for some unrelated condition. My stomach got so sore during that time I went to see my GP and she thought it might be an ulcer or gastritis so prescribed me Omeprazole. That appeared to trigger diarrhea which, once I came off the Omeprazole, did not...
  5. I cannot tolerate it at all - triggers burning and nausea, ditto aspirin. Here in the UK I take Paracetamol.
  6. @Gigi2025 Thank you for your interesting post. Some of what you say chimes with something my gastroenterologist tells me - that he has clients who travel to France and find the same as you - they will eat normal wheat baguette there without issue, for example. His theory was he thought it might be to do with the locally sourced wheat being different...
  7. Broccoli of all things. Chills, extreme nausea, diarrhea - lasts until it's passed through my system. Very similar to glutening. This started to happen to me some years prior to my coeliac diagnosis. Very odd.
  8. That's great news, you can do this. Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
  9. Not a scientific reply, but I thought I'd just chime in to reply the first part of your question: how long? Before I started to have gastric symptoms, I weighed about 66 kilos, and in the course of the following months, I seem to recall I lost about 6 kilos. From memory the last 2 or 3 kilos dropped off even when I was beginning to eat gluten free, from...
  10. Update - my Active B12 is 36. Apparently lab results between 25 and 70 suggest a possible deficiency, anything below 25 is a confirmed deficiency, above 70 is normal. I am thinking this could be the explanation for my elevated MCHC. Anyway, yet again I find myself bumping along the levels of low normal by British NHS standards, which isn't great,...
  11. Hi @Celiac50 If you are after a vitamin A test - sorry - I'm tired so not sure if I'm reading this correctly - perhaps you could try a home test? I'm in the UK and am currently a bit perplexed about my own vitamin issue and thinking of going to a private lab for tests. My issues is suboptimal Active B12 (only 11 marks off deficient) but no health professionals...
  12. Hello @lehum Greetings from the UK. Another struggler here - and I'm a Moderator on this forum, and have been extremely strict about my diet! My antibodies took years to come down to normal levels. Very annoying particularly when had friends who seemed to be the miracle turnaround celiacs that one reads about (although, of course, I am happy for them...
  13. @knitty kitty I saw my consultant yesterday. He is not worried about my high MCHC levels, he said he was more interested in my MCV levels and they are fine.. The Holocolobim test apparently is going to take time to come back - the report says 17th October which I think isn't actually the true date, I think it's just a random date thrown out by...
  14. Hi @knitty kitty Thank you, Kitty, and lovely to hear from you as well as trents on this one, I do appreciate your knowledgeable replies. Haemoglobin A1C and HBA1c have both come back as normal, so I think I am OK there - although I'll freely admit that I love sweet things and if they ever design a test which shows consumption of carbs over time...
  15. Hi Trents Good to hear from you and thanks for your prompt response. As far as I know I don't have any other autoimmune diseases but this elevated MCHC which has been in the background for some years now makes me wonder if I have something that has hitherto gone under the radar. I do wonder about B12 anemia. When I was diagnosed with coeliac...
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