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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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Karah

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Hi, everyone. This is my first time posting but I could really use some help and support right now. I had never had food allergies until my onion one in 2000. I got really sick overseas and when I came back home I was given two rounds of antibiotics. For 2-3 months after that I had major digestive upset that no one (doctors/tests) could figure out. I was basically told IBS deal with it. I got better, for the most part, when I figured out I couldn't have onion anymore. Then last June I was given the Celiac diagnosis along with a couple of other food allergies. I started feeling a lot better until 2-3 months ago. I just had more food allergy testing done on Tuesday and was given a bigger list...mostly vegetables, tuna, oranges, watermelon, and squash. These are things I eat all the time! Now I can't. I already found I can't have legumes, soy, gluten, bananas, buckwheat, wheat, peanuts, corn, nuts, and dairy. Why am I having all these allergies/intolerances all of a sudden, I feel soon I won't be able to eat anything! Is there a way to fix this? Thanks for any help/suggestions!

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Hi

 

Many people with celiac disease also have a leaky gut, which can cause you to develop new food allergies. Please refer to my post here.

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How were you tested for Celiac Disease? This is the test ( full panel ) that you should have been tested for Celiac:


Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

 

Although other food intolerances are common, often times it's only discovered when gluten is totally removed from your diet.  It does sound like you were allergy tested.  Celiac is not an allergy, rather an autoimmune disease. And it's offen is triggered by an illness, stress, pregnancy, etc...

 

Oh ....and Welcome!

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What kind of allergies are these?  IgE?  IgG?  What kind of test was done?  What kind of Dr. did this test?

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@stri8ed thank you for the link to the other post!

@Lisa I had the full blood panel done. My doctor has Celiac and has no gluten symptoms other than the severe damage shown on his biopsy. It looked really bad when he showed me. I do have a wheat allergy but I also have Celiac which is not a food allergy. We are going to start testing for other autoimmune diseases because we don't think Celiac is the only one I have. Thank you for the welcome!

@Juliebove I had an allergist/immunologist administer the allergy tests. I had food and environmental tests done. I know the foods were IgE tests. I had them done twice, once last June and then again on Tuesday. I had way more foods show up this time than last. I am also finding I am intolerant to a lot of foods. The foods that showed up this time are all foods I eat all the time since my first allergy test, and now I can't eat those. I am so overwhelmed and running out of things to eat. Today I am in really bad pain due to consuming soy and corn, but I kind knew that would happen. I also had a pretty bad reaction to some new fish oil pills. I am allergic to tuna, but there was no tuna in them. They caused hives, dizziness, and breathing problems.

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    • Welcome!   Get that follow-up testing.  At least help  confirm that you are compliant with the diet and that celiac disease is not the root cause of your brain fog and anxiety.  Once ruled out, your doctors can focus on other possible AI issues that are beyond your control (unlike celiac disease).  For now, you can focus on a good healthy diet.  Consider a modified AIP diet.  I just read a study involving this diet and IBD (autoimmune) done by Scripps in San Diego.  There was a 77% remissions rate.  Amazing!  This can (in theory)  be applied to other autoimmune issues.  It helps to validate that diet can heal.   http://journals.lww.com/ibdjournal/Pages/ArticleViewer.aspx?year=2017&issue=11000&article=00021&type=Fulltext here are some follow-up guidelines: http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/ Hang in there.  Consider Ennis’ tips too, but I prefer and do well without supplements.  You need to really  figure out what is best for you (food, supplements, etc.) 
    • I have seen info that children's antibodies can drop very quickly.  The lucky little guys!
    • I think if you search through this section of the forum, you will find that many children see a quick drop in their antibodies.  Recovery can come fast or slow  in both kids and adults.  We are all different!   I can tell you that my antibodies are still high, yet I had a repeat biopsy done last week showing healthy villi (Marsh Stage IIIB at diagnosis five years ago).  So, here I was beating myself up for having elevated antibodies which made it look as if I was not diet compliant, and I was actually healed.  Researchers  have not done a lot of studies about repeating the antibodies tests after diagnosis to monitor progress (lack of funding for sure).  Repeat antibodies testing is not perfect, but it is the only tool in the box right now.   We suspect my antibodies (DGP IgA only positive on the panel ever)  are up for other reasons (e.g. my Hashimoto’s, another AI issue, residuals from a previous gluten exposure).   I do have symptoms but these were attributed to other  things including chronic gastritis which, since I do not have active celiac disease, h. Pylori, drink alcohol, and am allergic to NSAIDs and other meds, is probable autoimmune.   Great job on keeping him safe!  I am glad he is feeling better.  He is seeing results from the diet which helps confirm the diagnosis.    Systemic issues can take longer to heal, so just keep moving forward.  
    • Magnesium, B-vitamins, Vitamin D etc. Should probably be supplemented. For the fog, stress, brain issues I swear by my regime of Liquid Health Stress & Energy, and Liquid Health Neurlogical support 1tbsp each 3 times a day in a beverage before a meal. Works wonders, magnesium is also wonderful, you did not mention constipation or D so I do not know which is best for you. There is Doctors best and Natural Vitality, Doctors best works great for relaxing and is easy on the gut but Natural Vitality is easier absorbed but can be harsh on the gut, it also is great for constipation. Doctors you dose as it tells you, Natural Vitality, you start off at 1/4 tsp and up it slowly to full dose over 1-2 weeks.
      Liquid Health also makes Vitamin D3 in a sublingual form. ALL of these can be found on Luckyvitamin.com and on Amazon.
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    • Our 6 year olds Iga test came back over >100 last May. We had him tested because he was thin, had dropped down in his weight charts and was losing his hair! He was also suffering from miscellaneous aches and pains. We immediately eliminated gluten and with only a few screw ups, 6 months later his level was 4! The doctor is astonished at how rapidly it decreased, and is questioning whether he has celiac or not. (has not had a biopsy, as they are so invasive and the testing is so accurate these days.) His hair is thicker and he has gone up in weight 5%, and doesn't complain as much about leg pains or aches.  Has anyone else's child recovered this fast? Could something else be going on? His thyroid tests are normal, so the plan for now is to keep doing what we are doing and re-test both Iga and thyroid in the spring.  thanks for any help!!  
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