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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
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jamiecasabellameeks

Well...it's Been A While, But I'm Miserable :(

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Okay, so it's been a while since I've been on here...mostly because I have been feeling good until the past couple months...So, here is my story, and I'm hoping someone can help...I was diagnosed via blood work then biopsy in February 2013. I've been gluten free since biopsy...with the exception of accidental glistenings and CC. After approximately 2 months on the diet I began feeling AMAZING! I didn't know what to do with all the new energy! Then, I think I began getting a little too "comfortable". I began eating lots of junk really...chips (that were not listed as gluten-free even though no obvious ingredients indicated gluten), chocolate, candy...JUNK! I was also eating a ton of frozen steamer vegetables, which I later found out that that brand states "they can not guarantee that food was not cooked on same line as wheat products". I eat a LOT of baked potatoes (maybe I have a problem with those??) Anyway...I now have proclaimed to not eat ANYTHING unless it is says gluten-free on ingredients. But I still feel so bad. My energy level is virtually non-existent. And it's worse late afternoon/night but not sure why? My joints just ache so bad and the fog/depression set in at night too...Stomach problems aren't my main issue right now. I just need some strength and for my muscles and joints to feel better. I would love to hear anyone's story and to hear suggestions?? Like vitamins you take and love, etc?? I might add I have a 3 year old, 2 year old and 1 year old...I need a "pick me up".

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When was the last time you were tested for deficiencies? What does your result panel look like? 

 

I would cut out that junk. At least for a few more months and then slowly introduce it as you know you can tolerate it. I know it sucks and you probably want to get back to a normal life as soon as possible but it's hard to say what could be causing you problems in all that junk. If you feel better off of it then it should probably go for now. I take a strong multi-vitamin with iron (pre-natal) but I wouldn't go taking anything unless you have a valid reason. Do you have a doc you see regularly? He can check your levels and tell you what you need or what you're missing. 

 

I hope you feel better and I know CC and glutenings suck. 

Take care, my friend. 

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Just  get  back on  tract, clean  wholesome  gluten-free  foods. And  stick to it....its okay  to  have  a few  snacks &  sweets  now &  then  as  a  treat  but it  isn't  good , only for  weight  gain  to  eat  these  type  of  foods  gluten free or  not...

Think  WILLPOWER.......

feel better  soon....

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Hey I haven't been tested for deficiencies in approx 2 months, but I was still a little vitamin D deficient at that time...it's just so hard to pinpoint everything, which is so frustrating...and non-Celiacs just don't understand...I'm dealing with that too. I do have a doc I'm seeing...but I am his first celiac patient. Awesome! NE Mississippi is quite behind...

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    • Welcome!   Get that follow-up testing.  At least help  confirm that you are compliant with the diet and that celiac disease is not the root cause of your brain fog and anxiety.  Once ruled out, your doctors can focus on other possible AI issues that are beyond your control (unlike celiac disease).  For now, you can focus on a good healthy diet.  Consider a modified AIP diet.  I just read a study involving this diet and IBD (autoimmune) done by Scripps in San Diego.  There was a 77% remissions rate.  Amazing!  This can (in theory)  be applied to other autoimmune issues.  It helps to validate that diet can heal.   http://journals.lww.com/ibdjournal/Pages/ArticleViewer.aspx?year=2017&issue=11000&article=00021&type=Fulltext here are some follow-up guidelines: http://www.cureceliacdisease.org/faq/how-often-should-follow-up-testing-occur/ Hang in there.  Consider Ennis’ tips too, but I prefer and do well without supplements.  My doctor has checked me for deficiencies and so should yours.  You need to really  figure out what is best for you (food, supplements, etc.) 
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    • Magnesium, B-vitamins, Vitamin D etc. Should probably be supplemented. For the fog, stress, brain issues I swear by my regime of Liquid Health Stress & Energy, and Liquid Health Neurlogical support 1tbsp each 3 times a day in a beverage before a meal. Works wonders, magnesium is also wonderful, you did not mention constipation or D so I do not know which is best for you. There is Doctors best and Natural Vitality, Doctors best works great for relaxing and is easy on the gut but Natural Vitality is easier absorbed but can be harsh on the gut, it also is great for constipation. Doctors you dose as it tells you, Natural Vitality, you start off at 1/4 tsp and up it slowly to full dose over 1-2 weeks.
      Liquid Health also makes Vitamin D3 in a sublingual form. ALL of these can be found on Luckyvitamin.com and on Amazon.
      These will help with you fog, and anxiety.
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