Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated


corinne

Recommended Posts

corinne Apprentice

I have collagenous colitis (not celiac) which can also be treated with a gluten free diet in addition to eliminating any other food intolerances. I finally got the D and vomiting under control by eliminating gluten, all grains including corn and rice, potatos, dairy, soy, nuts, beans, cruciferous veggies, onions+garlic, sulphites, caffeine, spices and acidic foods. Very strict diet, but I figured it's just for a short time until the gut heals. I have been symptom free for 3 months so I thought it was safe to start adding foods back in. I started eating potatoes in December and everything was fine initially. Then in Feb. things gradually got worse and worse until constant D about 2 weeks ago. I was taking a lot of Imodium in order to be able to work. I quit eating potatos a week ago and things are fine again, no symptoms. ARRGGHH! It's great feeling good and being symptom free, but I might scream if I have to eat carrots, squash and bananas for my carbs permanently. Maybe it takes years not months for the gut to heal and I need to be more patient. I hope so.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

It took a year for me to be able to handle distilled vinegar, annatto, and some other ingredients. Give yourself some more time and consider trying other easy on the tummy foods.

L.

Abug Rookie
...by eliminating gluten, all grains including corn and rice, potatos, dairy, soy, nuts, beans, cruciferous veggies, onions+garlic, sulphites, caffeine, spices and acidic foods....

I agree with mommida in giving it more time. At this point, I'd be willing to do anything. Since you've found a diet that makes you feel good, you're ahead of me! As I was reading your strict diet restrictions, it sounded very much like my restrictions, except I must also exclude meat, fish, and eggs. I'm also trying to cut back on processed foods, even eliminate them if I can (within reason, I mean, I don't wanna be an idiot and end up dieing of malnutrition). I was wondering if you could tell me what it was you do eat, with a reasonably limited amount of effort. Who knows! Maybe I even have your condition, but am not yet willing to revisit the doctor to find out because I've already spent more than my share of time and money with doctors over the years, and I don't wanna go through that again. I'm perfectly willing to eliminate anything and everything from my diet, as long as there's something else I can eat instead so I don't have to spend so much time and effort wondering what in the world I can eat. If I can just get started, maybe I can create new dishes and meal plans from there, and I can help find other ways to get the nutriment we need. I haven't eliminated caffeine, potatoes, rice, corn, soy, beans, or some acidic foods, and I don't know what cruciferous veggies are (nor does my spelling dictionary), nor sulphites (in terms of food), but like I said, I'd be willing if it would just make me feel better :) I'd love to be able to help out, but I need a starting point.

corinne Apprentice

I really heavily on eggs, fish and meat for calories (fruits and veggies don't have much) so the diet won't help much for you. Perhaps though, you can replace eggs, fish, meat with nuts. However, nuts can be hard to digest.

Breakfast: boiled eggs + canned fruit (peaches, pears, mangos or berries) or if I have more time I make pancakes from 2 eggs + 2 bananas in the blender.

Lunch: can of tuna or sardines and lots of cooked carrots.

Snacks: avocado or more canned fruit or bananas

Dinner: meat + squash

I'd prefer to not eat so much meat, but I wouldn't have enough calories to live on if I didn't. I react strongly to beans (including soy), nuts (even nut butters) and dairy so there isn't much choice for proteins.

Cruciferous veggies are cabbage, cauliflower, turnips broccoli etc. These are high fiber and hard to digest.

Eliminating caffeine might be a good start. Soy and beans can cause problems too, but this wouldn't leave you much to eat.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,111
    • Most Online (within 30 mins)
      7,748

    Donald Carr
    Newest Member
    Donald Carr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.