Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated


corinne

Recommended Posts

corinne Apprentice

I have collagenous colitis (not celiac) which can also be treated with a gluten free diet in addition to eliminating any other food intolerances. I finally got the D and vomiting under control by eliminating gluten, all grains including corn and rice, potatos, dairy, soy, nuts, beans, cruciferous veggies, onions+garlic, sulphites, caffeine, spices and acidic foods. Very strict diet, but I figured it's just for a short time until the gut heals. I have been symptom free for 3 months so I thought it was safe to start adding foods back in. I started eating potatoes in December and everything was fine initially. Then in Feb. things gradually got worse and worse until constant D about 2 weeks ago. I was taking a lot of Imodium in order to be able to work. I quit eating potatos a week ago and things are fine again, no symptoms. ARRGGHH! It's great feeling good and being symptom free, but I might scream if I have to eat carrots, squash and bananas for my carbs permanently. Maybe it takes years not months for the gut to heal and I need to be more patient. I hope so.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

It took a year for me to be able to handle distilled vinegar, annatto, and some other ingredients. Give yourself some more time and consider trying other easy on the tummy foods.

L.

Abug Rookie
...by eliminating gluten, all grains including corn and rice, potatos, dairy, soy, nuts, beans, cruciferous veggies, onions+garlic, sulphites, caffeine, spices and acidic foods....

I agree with mommida in giving it more time. At this point, I'd be willing to do anything. Since you've found a diet that makes you feel good, you're ahead of me! As I was reading your strict diet restrictions, it sounded very much like my restrictions, except I must also exclude meat, fish, and eggs. I'm also trying to cut back on processed foods, even eliminate them if I can (within reason, I mean, I don't wanna be an idiot and end up dieing of malnutrition). I was wondering if you could tell me what it was you do eat, with a reasonably limited amount of effort. Who knows! Maybe I even have your condition, but am not yet willing to revisit the doctor to find out because I've already spent more than my share of time and money with doctors over the years, and I don't wanna go through that again. I'm perfectly willing to eliminate anything and everything from my diet, as long as there's something else I can eat instead so I don't have to spend so much time and effort wondering what in the world I can eat. If I can just get started, maybe I can create new dishes and meal plans from there, and I can help find other ways to get the nutriment we need. I haven't eliminated caffeine, potatoes, rice, corn, soy, beans, or some acidic foods, and I don't know what cruciferous veggies are (nor does my spelling dictionary), nor sulphites (in terms of food), but like I said, I'd be willing if it would just make me feel better :) I'd love to be able to help out, but I need a starting point.

corinne Apprentice

I really heavily on eggs, fish and meat for calories (fruits and veggies don't have much) so the diet won't help much for you. Perhaps though, you can replace eggs, fish, meat with nuts. However, nuts can be hard to digest.

Breakfast: boiled eggs + canned fruit (peaches, pears, mangos or berries) or if I have more time I make pancakes from 2 eggs + 2 bananas in the blender.

Lunch: can of tuna or sardines and lots of cooked carrots.

Snacks: avocado or more canned fruit or bananas

Dinner: meat + squash

I'd prefer to not eat so much meat, but I wouldn't have enough calories to live on if I didn't. I react strongly to beans (including soy), nuts (even nut butters) and dairy so there isn't much choice for proteins.

Cruciferous veggies are cabbage, cauliflower, turnips broccoli etc. These are high fiber and hard to digest.

Eliminating caffeine might be a good start. Soy and beans can cause problems too, but this wouldn't leave you much to eat.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

    2. - pothosqueen posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Celiac for dummies

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,011
    • Most Online (within 30 mins)
      7,748

    andyzzz
    Newest Member
    andyzzz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
    • pothosqueen
      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
    • trents
      Would it be rude to ask your age?
    • pothosqueen
      Wow! Thank you @trents I  really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.