Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated


corinne

Recommended Posts

corinne Apprentice

I have collagenous colitis (not celiac) which can also be treated with a gluten free diet in addition to eliminating any other food intolerances. I finally got the D and vomiting under control by eliminating gluten, all grains including corn and rice, potatos, dairy, soy, nuts, beans, cruciferous veggies, onions+garlic, sulphites, caffeine, spices and acidic foods. Very strict diet, but I figured it's just for a short time until the gut heals. I have been symptom free for 3 months so I thought it was safe to start adding foods back in. I started eating potatoes in December and everything was fine initially. Then in Feb. things gradually got worse and worse until constant D about 2 weeks ago. I was taking a lot of Imodium in order to be able to work. I quit eating potatos a week ago and things are fine again, no symptoms. ARRGGHH! It's great feeling good and being symptom free, but I might scream if I have to eat carrots, squash and bananas for my carbs permanently. Maybe it takes years not months for the gut to heal and I need to be more patient. I hope so.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

It took a year for me to be able to handle distilled vinegar, annatto, and some other ingredients. Give yourself some more time and consider trying other easy on the tummy foods.

L.

Abug Rookie
...by eliminating gluten, all grains including corn and rice, potatos, dairy, soy, nuts, beans, cruciferous veggies, onions+garlic, sulphites, caffeine, spices and acidic foods....

I agree with mommida in giving it more time. At this point, I'd be willing to do anything. Since you've found a diet that makes you feel good, you're ahead of me! As I was reading your strict diet restrictions, it sounded very much like my restrictions, except I must also exclude meat, fish, and eggs. I'm also trying to cut back on processed foods, even eliminate them if I can (within reason, I mean, I don't wanna be an idiot and end up dieing of malnutrition). I was wondering if you could tell me what it was you do eat, with a reasonably limited amount of effort. Who knows! Maybe I even have your condition, but am not yet willing to revisit the doctor to find out because I've already spent more than my share of time and money with doctors over the years, and I don't wanna go through that again. I'm perfectly willing to eliminate anything and everything from my diet, as long as there's something else I can eat instead so I don't have to spend so much time and effort wondering what in the world I can eat. If I can just get started, maybe I can create new dishes and meal plans from there, and I can help find other ways to get the nutriment we need. I haven't eliminated caffeine, potatoes, rice, corn, soy, beans, or some acidic foods, and I don't know what cruciferous veggies are (nor does my spelling dictionary), nor sulphites (in terms of food), but like I said, I'd be willing if it would just make me feel better :) I'd love to be able to help out, but I need a starting point.

corinne Apprentice

I really heavily on eggs, fish and meat for calories (fruits and veggies don't have much) so the diet won't help much for you. Perhaps though, you can replace eggs, fish, meat with nuts. However, nuts can be hard to digest.

Breakfast: boiled eggs + canned fruit (peaches, pears, mangos or berries) or if I have more time I make pancakes from 2 eggs + 2 bananas in the blender.

Lunch: can of tuna or sardines and lots of cooked carrots.

Snacks: avocado or more canned fruit or bananas

Dinner: meat + squash

I'd prefer to not eat so much meat, but I wouldn't have enough calories to live on if I didn't. I react strongly to beans (including soy), nuts (even nut butters) and dairy so there isn't much choice for proteins.

Cruciferous veggies are cabbage, cauliflower, turnips broccoli etc. These are high fiber and hard to digest.

Eliminating caffeine might be a good start. Soy and beans can cause problems too, but this wouldn't leave you much to eat.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to FannyRD's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

    2. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

    3. - trents replied to Cecile's topic in Related Issues & Disorders
      2

      Symptoms

    4. - FannyRD posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Gluten free phosphate binders for dialysis patients

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,180
    • Most Online (within 30 mins)
      7,748

    Eldret419
    Newest Member
    Eldret419
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • FannyRD
      Thanks for the resource! I will check it out!
    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Living with celiac disease can be especially hard when you’re in a smaller town and don’t have many people around who truly understand it, so you’re definitely not alone in feeling this way. Ongoing fatigue, joint pain, and headaches are unfortunately common in people with celiac disease, even years after diagnosis, and they aren’t always caused by gluten exposure alone. Many people find that issues like low iron, low vitamin D, thyroid problems, other autoimmune conditions, or lingering inflammation can contribute to that deep exhaustion, so it’s reasonable to push your doctor for more thorough blood work beyond just vitamin B. As for eggs, it’s also not unusual for people with celiac disease to develop additional food intolerances over time; tolerating eggs as an ingredient but not on their own can point to sensitivity to the proteins when they’re concentrated. Some people do better avoiding eggs for a while, then carefully testing them again later. Most importantly, trust your body—if something consistently makes you feel awful, it’s okay to avoid it even if it’s technically “allowed.” Many of us have had to advocate hard for ourselves medically, and connecting with other people with celiac disease, even online, can make a huge difference in feeling supported and less isolated.
    • trents
      Welcome to the celiac.com community, @Cecile! It is common for those with celiac disease to develop sensitivity/intolerance to non-gluten containing foods. There is a high incidence of this with particularly with regard to dairy products and oats but soy, eggs and corn are also fairy common offenders. Like you eggs give me problems depending on how they are cooked. I don't do well with them when fried or scrambled but they don't give me an issue when included in baked and cooked food dishes or when poached. I have done some research on this strange phenomenon and it seems that when eggs are cooked with water, there is a hydrolysis process that occurs which alters the egg protein such that it does not trigger the sensitivity/intolerance reaction. Same thing happens when eggs are included in baked goods or other cooked dishes since those recipes provide moisture.  So, let me encourage you to try poaching your eggs when you have them for breakfast. You can buy inexpensive egg poacher devices that make this easy in the microwave. For instance:  https://www.amazon.com/Poacher-Microwave-Nonstick-Specialty-Cookware/dp/B0D72VLFJR/ Crack the eggs into the cups of the poacher and then "spritz" some water on top of them after getting your fingers wet under the faucet. About 1/4 teaspoon on each side seems to work. Sprinkle some salt and pepper on top and then snap the poacher shut. I find that with a 1000 watt microwave, cooking for about 2 minutes or slightly more is about right. I give them about 130 seconds. Fatigue and joint pain are well-established health problems related to celiac disease.  Are you diligent to eat gluten-free? Have you been checked recently for vitamin and mineral deficiencies? Especially iron stores, B12 and D3. Have you had your thyroid enzyme levels checked? Are you taking any vitamin and mineral supplements? If not, you probably should be. Celiac disease is also a nutrient deficiency disease because it reduces the efficiency of nutrient absorption by the small bowel. We routinely recommend celiacs to supplement with a high potency B-complex vitamin, D3, Magnesium glycinate (the "glycinate" is important) and Zinc. Make sure all supplements are gluten-free. Finally, don't rule out other medical problems that may or may be associated with your celiac disease. We celiacs often focus on our celaic disease and assume it is the reason for all other ailments and it may not be. What about chronic fatigue syndrome for instance?
    • FannyRD
      I work as a renal RD and have a Celiac pt which has been rare for me (I might have had 3-4 Celiac pts in 15 years). I wondered if anyone can confirm that these medications are gluten free and safe for Celiac.  Ferric citrate (Auryxia)  Sucroferric oxyhydroxide (Velphoro)  lanthanum carbonate (Fosrenol) sevelamer carbonate (Renvela)   Thank you!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.