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Sleep And Symptoms


Tutahl75

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Tutahl75 Apprentice

I developed some horrible sleep habits when I was sick and the doctors didn't know why. I've been gluten-free for close to six months now and on nights I have trouble falling asleep, I get restless and agitated, which leads to bad memories of being sick.

I've done some meditating to help me cope. Does anyone else have some advice to getting over these painfull memories that effect my ability to relax.


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darlindeb25 Collaborator
<_< i'm thinking that your real problem is not being able to fall asleep and when you get agitated you just start thinking about those pass days--i know there is no answer to those restless nights--i myself call them "watching the clock nights"--i had one last night myself---maybe if you would try some tylenol PM on those nights--yes, i know it is gluten free becasue i take it myself--today i told my daughter that i am wondering if my restless nights are connected to eating tuna--i only buy tuna in water and recently i found out there is soy in the broth they use on the tuna--i do know that too much soy bothers me and now i am wondering if the soy in the tuna is what makes me restless--we all react differently to different intolerances--so i am going to watch those nights i have tuna and find out--may be the end of my tuna eating days :( ---anyways, give tylenol PM a try ;) otay--deb

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
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      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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