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- Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications0Reverse Osmosis (RO) Water
I am hesitant to post this as I have seen many people here recommending RO water. With that said, I want to share my experience and how RO water now impacts me. Three or four years ago a local store installed a RO water refill station. I had been buying gallons of distilled and spring water prior to that. I switched over to using the RO water refill station... -
- Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications0
What would you do - neighbor brought gluten-free pizza from Papa Murphy's
My neighbor's mom was diagnosed with celiac disease 16 years ago. She is a very kind person and has shared some info about local grocery stores and daily (soon to expire) meat deals. This evening she brought over 2 slices of Papa Murphy's gluten-free pizza. It looks to be topped with chicken and spinach. I asked, "aren't you concerned with cross contamination... -
- Scott Adams replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications1Great Value Veggies cannot be trusted.
That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rath... -
- trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Confused about HLA-DQ Celiac gene test result
If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it. But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder... -
- ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Confused about HLA-DQ Celiac gene test result
Thanks for the insight! It has been a whirlwind...very overwhelming and frustrating at times. But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion
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I am hesitant to post this as I have seen many people here recommending RO water. With that said, I want to share my experience and how RO water now impacts me. Three or four years ago a local store installed a RO water refill station. I had been buying gallons of distilled and spring water prior to that. I switched over to using the RO water refill station saving money by brining in my own clean empty gallon jugs. Every 6-months I would replace the jugs by buying new gallons of distilled water. This RO water is the only water I would drink while at home. Two huge glasses every morning before work and two more after work. I would also use the RO water to make coffee and hot coco. This past December, prior to my celiac diagnosis, my gut was making more noise than anything I had ever experienced. Seriously, it was crazy, almost like fire works going off in my stomach. I happened to pick up some distilled water for my 6-month jug rotation. Literally, as soon as I started drinking the distilled water my stomach settled a great deal. I could honestly feel the difference after the first glass of water. I thought that maybe the RO water from the store's refill station was contaminated with some sort of cleaning agent. I swore to myself I would never drink from that RO refill station again. Instead I went back to buying distilled along with gallon jugs of spring water. No issues with either of those as far as an upset stomach is concerned. Cost, well that's a different story all together. After being diagnosed marsh 3c, I went shopping at Aldi's for the first time in my life. I noticed they also sell water by the gallon. Over the course of the last few weeks, I have purchased a total of 6-gallons of their water. (Thankfully they were out on two of my visits.) After having my stomach starting to make noises similar to mid-December again, it dawned on me, maybe its the Aldi water? Initially I had contributed my bubble gut to some sort of gluten exposure or cross contamination. Even though everything I have put into my stomach is naturally gluten-free or has been labeled gluten-free / certified gluten-free. I had assumed that the Aldi water was spring water. Come to find out, that was a bad assumption. Looking close at the label it says purified by RO or distillation (or something like that). Again, I switched to different water. Just like last December, the non-RO water instantly calmed my stomach and even felt better going down the hatch. This was earlier today by the way. Prior to creating this post, I did a few searches via Uncle Google. I bumped into a thread on Reddit (where I am not a member) that has multiple people complaining of GI issues related to RO water. So my initial thoughts on a cleaning agent in the refill station RO water were likely not correct. Unfortunately, it seems the RO water itself causing me problems. I am not sure if we are allowed to post links to other sites and hopefully I will not get into trouble for doing so. I did try printing the Reddit thread to a PDF file. Unfortunately, the file is 2MB in size, which is well over the 500KB file attachment limit here on this amazing forum. Again, hopefully this is ok. 🤞 Here is the Reddit thread. This may not be a popular opinion here, but personally, I will not willingly drink another glass of RO water for the remainder of my life. Who knows, maybe drinking RO water for the past several years is part of what activated my celiac? No proof, but just a thought. Come to find out RO water is well known to leech minerals from your body. With people like us often lacking minerals to begin with, RO water does not seem like a wise choice. As the Reddit thread mentions, there are RO water filtration systems that will inject minerals back into the water. However, those systems are likely not being used at the grocery store refill stations nor by the bottling companies producing RO water for sale at your local store. Please do not shoot the messenger as I am just sharing my personal experience and letting others know that most RO water will leech minerals from your body. God bless and stay well, Known1 -
My neighbor's mom was diagnosed with celiac disease 16 years ago. She is a very kind person and has shared some info about local grocery stores and daily (soon to expire) meat deals. This evening she brought over 2 slices of Papa Murphy's gluten-free pizza. It looks to be topped with chicken and spinach. I asked, "aren't you concerned with cross contamination"? She said no and apparently eats it on a somewhat regular basis. I found an old article here along with another thread pertaining to Papa Murphy's gluten-free pizza. The article is quite old, so I do not think it holds much weight nowadays. The thread I found was also a bit dated, but certainly more recent and relevant. The information in the thread I found was a bit inconclusive. Some said they trust Papa Murphy's gluten-free pizza and others were a big no way. One person even took time to train their local franchise on how to ensure the pizza remains gluten-free without cross contamination. Anyway, being recently diagnosed as marsh 3c, I am currently working on week 3 or 4 in my new gluten-free journey. I do not want to be rude and toss the pizza out, but I also do not want to have a reaction. Since she has celiac and obviously ate much or at least some of the pizza, I am leaning towards eating the two slices for lunch tomorrow. As this thread's title states, what would you do? Would you eat it or toss it out? I suppose I could also just give it back to my neighbor to polish off. I look forward to reading your thoughts. Thanks, Known1
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By Scott Adams · Posted
That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rather than an added ingredient, but for people with celiac disease that risk can still be significant. If you’ve been having symptoms, it may take days to weeks to fully settle, depending on the level and duration of exposure. In the meantime, switching to fresh produce or brands that clearly state gluten-free status is a reasonable step. It may also help to contact the manufacturer directly to ask when the labeling changed and what their current cross-contact controls are. -
If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it. But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder.
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By ainsleydale1700 · Posted
Thanks for the insight! It has been a whirlwind...very overwhelming and frustrating at times. But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion
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