• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:

    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:

       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

Please Cancel My Optimism

Rate this topic

Recommended Posts

I started out optimistic and positive about eating gluten-free, based on the immediate and significant benefits I received once I stopped eating it. Even though I didn't test positive for Celiac (which made all of my gluten-eating friends happy, because they thought I could cheat once in a while with no long-term repercussion), I have never caved to temptation to eat even a little gluten. I thought being so conscientious and well-behaved would translate into feeling better. That hasn't happened like I thought it would. Now, I just feel hopeless and frustrated.

Whole foods: Kinda expensive, huh? I'm doing my best, but the cost of food is killing me and I'm running out of both food and food money before payday.

Accidental glutening: no good dietary deed goes unpunished, it seems. No matter how conscious I am with food choices, I seem to have a small but miserable reaction almost on a weekly basis, and I can't pinpoint what I ate that secretly contained gluten (or something else I'm sensitive to?). Frustrating.

More food sensitivities: I can't help but notice that dairy and possibly corn seems to be a problem. I want to stay in denial so that I have more foods to choose from, but... yeah. The thought of having to limit my diet further makes me want to go lie down in a busy street.

Food paranoia: it's exhausting. I don't feel I can trust anything I eat anymore. Even/especially items labeled "gluten-free."

Sigh. What I would give for those carefree days when I could eat anything prepared anywhere...


One cute thing: When I prepare a sandwich for my eight year old, she reminds me to wash the gluten off my hands.

Share this post

Link to post
Share on other sites
Ads by Google:
Ads by Google:

Whole foods are cheaper than processed most of the time. Buy in season, go for sales, etc. For example i'll take a lrge roaust for about $10 and cut it in thirds. I can get two to threemeals out of oeach portion. Then i'll take a head of cabbage and again take a third of it for a meal. I'll add carrots and some onions or whatever else i have in the frig. Then i make this into a soup and serve rice on the side.

A good idea would be to get yourself a crock pot to make your own meals out of if cc is an issue.

I spend about $30 or so dollars per week on food for myself, that is with my chex and cleaning supplies. You can do it it just takes timme to learn

Share this post

Link to post
Share on other sites

Honestly, food is expensive these days no matter what you eat. That being said, try to buy in season, look for sales, and use coupons. We spend roughly $40 a person a week at our house. We all eat gluten and dairy free at home.

When I first started out we did spend a lot more, only because we were cooking two meals for dinner. One for me and one for everybody else. It's easier and cheaper for all of us to eat gluten and dairy free. Another thing that I've learned is what you can make yourself, you should make yourself. I used to spend money on gluten free cookies. Now I just make them myself. I want muffins, I bake muffins. We also make our own almond milk and soy milk. We don't save much on the almond milk but we can make a half gallon of soy milk for a fraction of the cost of the store bought stuff and we know exactly what goes into it. I don't care for the store bought gluten free bread but when I bake a loaf at home, it all gets eaten the same day. The first time I made gluten free pumpernickel bread, we ate two loaves of it. So much for saving one for another day.

I'm sorry that you are having a hard time right now but trust me, it does get easier. I'm sure most, if not all, of us were feeling those things at one point or another. I know I have been there. For me, it really hit on my birthday. No birthday cake or ice cream? I was ready to scream. That's when I started making everything myself. I do still have the occasional melt down in stores. I was highly upset loosing things like twizzlers. I love those but I can't have them anymore. I have burst into tears on more than one occasion in the candy aisle. My husband can attest to the fits I've thrown in the dairy section because I wanted yogurt or some new coffee creamer that just came out.

Six months in I figured out that I was reacting to peas. That set off another downward spiral for me. I realized that it wasn't just peas. I was also reacting to corn, soy, radishes, on top of my other food allergies being magnified. I was starting to feel like there was nothing left that I could eat. I came on here to vent and eventually incorporated it into my diet. Luckily, I can now handle soy and corn based things that are made at home. I still can't handle soy based store bought items. Maybe the problem wasn't the soy but rather something else that was put into the product or the way the soy was handled.

Just try to remember that it does get easier and you can always come here to vent because we do understand. Sending you great big HUGS.

Share this post

Link to post
Share on other sites

What kinda of reaction did you have to peas? Bloating, extreme gas? I had those problems a few summers ago with peas, but also with carrots and tomatoes. It turned out to be sugar and more specifically yeast overgrowth. The sugars, even natural sugars in fruit and veg, caused a painful explosion in my digestive tract. Even soy milk and rice milk have sugar. I had to take a digestive supplement and go on a sugar free diet for 2 months. That meant small bland meals and often so my blood sugar would not drop too low.

Share this post

Link to post
Share on other sites

What kinda of reaction did you have to peas? Bloating, extreme gas? I had those problems a few summers ago with peas, but also with carrots and tomatoes. It turned out to be sugar and more specifically yeast overgrowth. The sugars, even natural sugars in fruit and veg, caused a painful explosion in my digestive tract. Even soy milk and rice milk have sugar. I had to take a digestive supplement and go on a sugar free diet for 2 months. That meant small bland meals and often so my blood sugar would not drop too low.

I definately had the extreme bloating but instead of gas, I ended up with the dread "D". I was actually tested for Yeast overgrowth a few months back and I came back negative. I know that's not it, aside from me not having problems with anything else that's high in sugars. I do take probiotics on a daily basis but I haven't really noticed a difference.

Honestly the first time it happened, I thought that I had accidentally contaminated my slip pea soup with something else but then it happened again with just canned peas. So we just make lentil soup instead.

I do however have gastritis and I don't know if that can play a role in reacting with certain foods.

Share this post

Link to post
Share on other sites
Ads by Google:

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


  • Forum Statistics

    • Total Topics
    • Total Posts
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Popular Now

  • Topics

  • Posts

    • Apoptosis is the body killing off old or defective cells. Iodine is its main tool. Insufficient iodine causes slow healing.  Working Theory; As a celiac you have malabsorbtion syndrome also, so you are even more likely than the typical American to be iodine deficient. Among other things it will cause slow healing, low T3 and low T4 and high TSH and poor energy. When you increase iodine to functional levels it may be killing off your bad cells faster than you can dispose of the byproducts. It is like hiring a lot of new garbage men without enlarging the landfill. You get backed up.  Increase slowly. I found that one sheet of roasted sushi seaweed a day has the right amount. right in the midrange of the recommended daily intake. Within days I noticed a change in muscle tone and a very bad sebaceous cyst that would not heal, began to. Notice the smooth wrinkle free skin of a Japanese not eating an American style diet. They have a diet many times higher in iodine than ours. Also, consider low vitamin D important to immune system and zinc for cell wall integrity (that's why Cold-Eze works). Many doctors tend to treat this as a failure of the thyroid and prescribe Thyroxine as a hormone replacement, when the trouble is really not enough iodine. You can't make it if you don't have the raw ingredients so the thyroid overexerts ineffectually.  Dr Brownstein seems to be the expert.  https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&celiac disease=1&cad=rja&uact=8&ved=0ahUKEwjAquPP8uHYAhVKba0KHTH4DtoQFggxMAA&url=https%3A%2F%2Fwww.medixselect.com%2FMerchantUploads%2FedgeMedixSelect%2FMedix_Thyroid_SR_%209-9-13-4.pdf&usg=AOvVaw1HGCk2feUqe3XBYToRvRym  
    • Merlot, Pinot and more. Noir, yes, wine flour is real, and it's gluten-free.  Okay, so wine is good for lots of things, drinking notwithstanding. But try to wrap your head around this: wine flour. Yeah, flour made from wine grapes. There's no such thing you say? Well, wine flour is in fact a thing. The mashed post-crush grapes used to make top wines are indeed being milled into a unique flour. View the full article
    • Teresa,  You posted this same question yesterday.  You did get a response, but you did not answer the questions asked which might help you.  We can not diagnose you over the internet.  We are not doctors, but just people who can not consume gluten.  We share tips, our personal experiences, and ask questions about the gluten free diet.   If you have or suspect DH, read through the DH section for coping strategies.  Keep to the gluten free diet.  Talk to your doctor!  It might NOT even be related to celiac disease!  
    • My suspicion is dehydration caused by too much fiber. Combined with your cold, fever and perhaps any medications, loss of appetite and the high fiber content of the chia, slowing down the passage of the post nasal drip thereby giving it more time to irritate. I had a similar experience with Graviola during a phase of anorexia, when I would take it without food. By the way, Cold-Eze does work.
    • Welcome!   Let me put your mind at ease.  While is true that some celiacs have fertility issues, it is usually because they are undiagnosed and not being treated.   I think your approach of focusing on your health for the next six months to a year prior to conception is an excellent idea.  Not only will it help insure a healthy pregnancy, but you will be able to handle and care for that baby for the next few decades!   I was in a dedicated gluten free bakery and saw a young family with a six month old baby boy.  I love babies and struck up a conversation.  They said that the wife had been sick with odd issues  and finally got diagnosed with celiac disease.  Six months  this later, she got pregnant after they had been trying for three years.   So, learn the gluten free diet.  Choose healthy foods and try to avoid processed junk foods (not good for anybody), excercise gently, reduce the stress in your life, and I bet you will be fine!   Green stools can be a sight of rapid transit. It could be gluten, a virus, or food poisoning.  Stay hydrated and you will be fine.  Celiacs have leaky guts, so you might have developed an intolerance.  How long have you been gluten free?  Try reading our Newbie 101 thread located at the top of the “Coping” section of the forum.   Take care.  
  • Upcoming Events