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Recent Activity
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- cristiana replied to tiffanygosci's topic in Introduce Yourself / Share Stuff2
Celiac support is hard to find
Hi @tiffanygosci Well done for reaching out, fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier. I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be,... -
- cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease4
Newly diagnosed mam to coeliac 11 year old
You are very welcome @Dizzyma. Gastroenterologists are now following this rule in the UK more and more with children, so I am not surprised your daughter is not having an endoscopy. Switching to a gluten free diet should begin to help, but also, even if you have to have testing done privately, it would be very helpful for you to find out if your daughter... -
- tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff2
Celiac support is hard to find
EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area. -
- trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs1
Help understand results
Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient. The one test that was ordered... -
- mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs1
Help understand results
For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful...
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