Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reflux Is Killing Me!


jesimae

Recommended Posts

Opa3 Apprentice

To date, chocolate, spices, tomato sauce, caffiene, salt (something new!), and fatty foods were mentioned. We should also avoid citrus fruits, mint, vinegar and alcohol.

To date, Rx's lansoprazol, carafate and omeprazole (aka: Prilosec) were mentioned.

My input to this very interesting topic follows;

I was Dx'ed with AR/GERD in Sept, 2007 having indulged in foods as listed. I started out with Aciphex and later used Famotidine off and on for 5 years.

In Dec, 2012, I had an endoscopy which resulted in mildly active chronic peptic duodenitis with villous abnormality and minimal squamous features of reflux. Negitive for H. pylori. My GI Doc Rx'ed 40 mg omeprazole, 30 minutes before breakfast. Based on my history with AR, one/day for the REST OF MY LIFE was recommended. It's safe, he said.

The pathology report also stated "early feature of fundic gland polyp noted." Taking PPI's (ie: omeprazole @ 20mg) long term(1,2-5 years) therapy develops these stomach polyps. Ref: Open Original Shared Link/diseases/stomach_fundicglandpolyp, page 6 (of 18). I tried to link the address but didn't work.?????

I read the Patient Information Leaflet from Mylan Pharma (April, 2012) that came with my omeprazole Rx. The common side efects are headaches, abdominal pain, nausea, vomiting, gas, respiratory system events ( not explained) and fever. Also mentioned ..... may have an increased risk of fractures of the hips, wrist or spine. PPI's can inhibit the absorption of calcium, Vit. B12 and iron. Low magnesium can occur with PPI's within 3 months to 1 year. PPI's can destroy good gut bacteria causing C.Diff. Need to take probiotics with treatment.

The leaflet also states Tell Your Doctor about all the medicines you take. It lists 19. Among them is "products that contain IRON."

Omeprazole treatment(Rx or OTC) should be 4-8 weeks only. To date, my symptoms are stomach pain and gas. I will tolerate them for 8-12 weeks and stop. I will make a greater effort to avoid AR/GERD foods. Now that is the SAFEST thing we can do for ourselves. I'm 68 and my mom is 90. If God grants me another 22 years on a lifetime of PPI's, I'll die of stomach cancer.

Truely a profound title," Reflux Is Killing Me." OTC users beware.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CommonTater Contributor

Nexium is not meant to be a long term solution. It can do more harm then good.

Doesn't surprise me that those foods would set ya off. Those are ones that are generally connected to it.

Have you tried removing all reflux meds? I ask because when i finally went "cold turky" on them (do not suggest this) that it finally started to die down for me (over a course of a few months). Now, I still on occasion get it, but its nothing that a really starchy food and a nice big glass of water can't fix. Sometimes it goes beyond that, but its rare.

Yes i did stop for a time but the ref;ux was so bad i couldn't stand it. You can't take enough Tums in 24 hours to help. After taking 2 it would return within an hour and burn all the way into my throat.

shadowicewolf Proficient

Yes i did stop for a time but the ref;ux was so bad i couldn't stand it. You can't take enough Tums in 24 hours to help. After taking 2 it would return within an hour and burn all the way into my throat.

Oh i know the feeling, trust me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,311
    • Most Online (within 30 mins)
      7,748

    EMP6543
    Newest Member
    EMP6543
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.