Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ne Cola. Sc

snowygiraffe

Recommended Posts

snowygiraffe Rookie
snowygiraffe
Posted

Are there any support groups in our area? I live outside NE Cola. and going to West Cola. is an hour drive for us. My 13 year old daughter was diagnosed with celiac 5 years ago. Now that we hit the teen years she seems to have more trouble coping. Any Info. would be helpful.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Turtle Enthusiast
Turtle
Posted

Hey!

I live in W Cola and have been going to Charlotte for better selection of gluten-free foods and for support. Is there a support group in W Cola that you've been attending?? I'd love to talk to you further....i'm still relatively new to this area and am desperately seeking a dr. Was planning to just go to Charlotte but if you have some info i'd love to hear more...

Have a great weekend!

snowygiraffe Rookie
snowygiraffe
Posted
  • Author
Hey!

I live in W Cola and have been going to Charlotte for better selection of gluten-free foods and for support. Is there a support group in W Cola that you've been attending?? I'd love to talk to you further....i'm still relatively new to this area and am desperately seeking a dr. Was planning to just go to Charlotte but if you have some info i'd love to hear more...

Have a great weekend!

Hey,

There is a support group in West Cola. I don't have the info with me at the moment but will be at home tomarrow night and will pm you. We have not been because its so far away and is geared towards adults. :( Have you tried Earth Fare or Rosewood Market? They may not have everything but between the two we get what we need :D . My daughter will be glad to know shes not the only celiac in all of SC. :lol: She feels like it now.

Jean

Turtle Enthusiast
Turtle
Posted

I thought I was the only celiac in all of SC! HAHA!

COOL, that is great news that there is a group in W Cola & thank you for shooting me the info tomorrow or whenever you can so I can see what's happening. Sorry it tends to focus on adults...bummer! Maybe your daughter could be the pioneer for a teen group??? Just a thought....

Yes, I swing thru Earthfare for the bare essentials! It just gets so expensive....there's a bit of competition in Charlotte so sometimes prices are a bit lower & I have friends who live there so it's a mini vacation for me to get away for the day to shop gluten-free and see my friends :) When you shoot me the support group info, fill me in about Rosewood Market...never heard of it....but then again i'm still learning the area so Go Figure! HA!

Thank you again!

snowygiraffe Rookie
snowygiraffe
Posted
  • Author

Rosewood has a smaller selection then Earthfare. It is not far from Earth Fare. I might have to check out Charlotte when we go to Carowinds! Is there any place in particular that is really good? And not hard to find(directions not my best virtue)

mesmerize Apprentice
mesmerize
Posted

hey I'm in Columbia too, I had no idea there was a support group here... Could you PM me about it too?

I do a lot of shopping at Earthfare, but yes it gets a bit expensive. I just recently heard of a place called 14 Carrot Whole Foods in Lexington (www.14carrot.net). It looks like it might be a good possibility, although I guess it would be a little out of the way for the NE Cola people! I live closer to the NW side of town.

~Sara~

Turtle Enthusiast
Turtle
Posted

Hey Sara!

Thanks for posting! So exciting to FINALLY find some other celiacs around here.

I too have heard and actually passed by 14carrots. Haven't been in there yet though. The name alone screams expensive...get it? 14carrots??? 14 carats??? :lol:

Jean:

In Charlotte I like Talley's Green Grocery and they also have an Earthfare (I haven't been to that one though b/c I went to Talley's instead the last time I was up there & b/c I hit the really NICE AND BIG Earthfare in Charleston a few weekends ago). Also, I've heard the SuperTarget out in Morrisville has some gluten-free stuff way less expensive than what we pay for things at EarthFare, Whole Foods, etc. Here's the contact info:

Talley's Green Grocery

1408 East Blvd Ste C

Charlotte, NC 28203

talleys.com

** Talley's has the thing where you can apply for their MVP card thingy like you do at Food Lion, Piggly Wiggly, etc. and you can get things at the sale price.

EarthFare

12235 North Community House Road

Charlotte, NC 28277

(704) 926-1201

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Turtle Enthusiast
Turtle
Posted

Hey -

Is this the same info you have Jean for the support group in W Cola??? I sent an e-mail to the e-mail provided below...we'll see where that takes me I suppose.

South Carolina

Columbia - Support Group

Contact 1: Peggy Smith

Palmetto Celiac Support Group

1508 Anthony Drive

West Columbia, SC 29172

Tel: (803) 775-9466 or (803) 755-7291

E-mail: PSmithCola@AOL.COM

Nevermind the e-mail came back to me saying it was unknown :(

snowygiraffe Rookie
snowygiraffe
Posted
  • Author

I just got my daughter back from dads and told her there is TWO other people in Cola. that have celiac. She got so excited. She wanted to know if you where her age(13) I told her I was pretty sure you weren't. :lol::lol: She said "Thats ok I'll like them anyway." She is such a turkey! I better go finish dinner before she eats all the mac & cheese. :rolleyes:

snowygiraffe Rookie
snowygiraffe
Posted
  • Author

Hey Y'all

Heres another contact I found on my very clean very organized comp. desk!!!! :lol: I haven't tried this one either.

Debbie Del Priore

2102 O'Hara Ct.

Cola SC 29204

Ph# 738-8880

DelP4all@aol.com

If I find anything else I'll let you guys know. (we may have to start our own)

Jean

mesmerize Apprentice
mesmerize
Posted

Did either of you guys try calling the phone numbers listed for those contacts? I just thought maybe I'd try those next if the email address didn't work...

And just to introduce myself a lil bit... I'm Sara, I'm 25 and just graduated from grad school at USC. :D

snowygiraffe Rookie
snowygiraffe
Posted
  • Author

Hi Sara,

I haven't tried the numbers yet. But I will give it a try today.When I find out something I will definitly let you know. Congradulations on your gaduation! :D It's nice meeting you. My name is Jean. I'm a 33 year old( :huh: how did I get that old?) single mom of two. I'm going to Central Carolina part time until my custody battle is over (hopefully soon), then I'll attend full time. If you would like I can pm you my e-mail address.

Talk to you soon

Jean

Turtle Enthusiast
Turtle
Posted

I've sent an e-mail but haven't heard anything back yet! :(

I'll keep you posted if anything comes through....

My e-mail address is: turtledupree@hotmail.com

snowygiraffe Rookie
snowygiraffe
Posted
  • Author

I have news <_< . I've tried all the numbers with (are you ready?) NO SUCCESS! Apparently everybody else with celiac has been abducted by aliens :blink: So now we know. I did however find an e-mail address for a R.O.C.K group in Lexington. I've e-mailed her already may she can give some info on an adult group.

Here is her info incase you want to try:

Gail Fox

Lexington SC 29072

gailfox@sc.rr.com

Maybe the aliens left her :lol:

Jean

Corkdarrr Enthusiast
Corkdarrr
Posted

Ooh! How exciting is this for me?!

I'm 24, live in Columbia, and I've been gluten free for like a month and a half.

I'm getting in on the end of this conversation, but can I get some info if anyone finds a support group that still exists?

And to share my findings - almost everything at El Burrito (Harden St) is gluten free (save the flour tortillas on a burrito). I'm friends with the manager and eat there almost every day. And when I started gluten-free, she was one of the few people who'd ever actually HEARD of gluten. My favorite is the salad with chicken and beans. YUM.

Also, went to Baan Sawan (Thai food - Devine St) on Saturday and had the pad basil- no reaction. Next up to try is the peanut curry...

Turtle Enthusiast
Turtle
Posted

COOL!!! Welcome to the smallest Celiac Club ever! HAHA!

snowygiraffe Rookie
snowygiraffe
Posted
  • Author

Welcome ! Well at least we've grown from 1 all the way up to incredible number 4 !!!!(the Sesame Street Count laughs with thunder here) Can you tell we don't have cable? I still haven't heard anything from any of the groups so it might be that you 4 are the only ones in Cola. I was telling Turtle that when it cools down maybe we can get together for a picnic at Finley Park. I have to go take the short man to karate :ph34r: I YA!!

Talk to you guys later

Jean

Turtle Enthusiast
Turtle
Posted

Below is what I posted as a new topic in the event there are any other Cola Celiacs out there interested in becoming a part of our new crew:

"Thus far we've had no luck in locating a support group in the Columbia, SC area....

Sooooo we've decided to create our own little group...."The Cola Crew"!!!

If you live in Columbia, SC &/or the surrounding areas and want to be a part of the crew, please shoot me an e-mail at turtledupree@hotmail.com.

We'll see where this takes us and enjoy one another's support and have FUN!!

Can't wait to hear from you!!!"

mesmerize Apprentice
mesmerize
Posted
Ooh! How exciting is this for me?!

I'm 24, live in Columbia, and I've been gluten free for like a month and a half.

I'm getting in on the end of this conversation, but can I get some info if anyone finds a support group that still exists?

And to share my findings - almost everything at El Burrito (Harden St) is gluten free (save the flour tortillas on a burrito). I'm friends with the manager and eat there almost every day. And when I started gluten-free, she was one of the few people who'd ever actually HEARD of gluten. My favorite is the salad with chicken and beans. YUM.

Also, went to Baan Sawan (Thai food - Devine St) on Saturday and had the pad basil- no reaction. Next up to try is the peanut curry...

oh my goodness, that's so great! i've just kinda been avoiding restaurants lately because i don't like having to go through the whole educating-the-waiters routine. ;) i'll definitely have to try those places though!

~Sara~

  • 2 months later...
clhsc Apprentice
clhsc
Posted

I have a huge addiction to Jersey Mike's. Do you know if the meats, cheese, etc is gluten free? We are going to Game Day on Saturday and we always get Jersey Mike's before a game. I was hoping to just get all the "good stuff" and put it on some bread I pick up from Earth Fare. Thanks!

Corkdarrr Enthusiast
Corkdarrr
Posted

I haven't chanced any sandwich places...do they have a website or something you can check? for example, I know boar's heads meats are all gluten-free, and certain brands of condiments are okay. So theoretically you could get a sub from Publix on your own bread (depending on what type of condiments they use)...but it all depends on how concerned over CC you are.

Personally, I'd be wary. And I'd hate to get sick while tailgating...eww! Let us know how it goes!

Courtney

Turtle Enthusiast
Turtle
Posted

I concur with everything Courtney said. I'd be concerned about getting CC'd and then it ruin your afternoon of football!!

clhsc Apprentice
clhsc
Posted

Well poo :angry: ! I hardly ever think of cc, but I guess I need to start. At first I was just so concerned with cutting out the obvious! Guess it would be a horrible idea to eat from a place that is covered in bread. I really want to have a good time at the game. Does Earth Fare have a deli or something where I can pick up some lunch or any other other suggestions? Thanks for the advice.

Corkdarrr Enthusiast
Corkdarrr
Posted
Well poo :angry: ! I hardly ever think of cc, but I guess I need to start. At first I was just so concerned with cutting out the obvious! Guess it would be a horrible idea to eat from a place that is covered in bread. I really want to have a good time at the game. Does Earth Fare have a deli or something where I can pick up some lunch or any other other suggestions? Thanks for the advice.

YES! Earthfare has some awesome foods. They have a hot buffet line as well as a salad bar that I believe is up for all three meals. Things seem to be clearly labeled as to what they contain. Again CC is an issue at any buffet line, but if you asked them a question they'd probably know what you were talking about! They also have a deli where they make stuff on the spot for you - I haven't eaten there since going gluten-free but it seems like a good place to start.

good luck

Courtney

Turtle Enthusiast
Turtle
Posted
YES! Earthfare has some awesome foods. They have a hot buffet line as well as a salad bar that I believe is up for all three meals. Things seem to be clearly labeled as to what they contain. Again CC is an issue at any buffet line, but if you asked them a question they'd probably know what you were talking about! They also have a deli where they make stuff on the spot for you - I haven't eaten there since going gluten-free but it seems like a good place to start.

good luck

Courtney

I ditto everything she said!! Good Luck and have a great time!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,993
    • Most Online (within 30 mins)
      7,748
    Kelly C
    Newest Member
    Kelly C
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.