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Showing content with the highest reputation since 12/17/2024 in Blog Comments
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Hookwormed status report
Scott Adams and one other reacted to dixonpete for a blog entry
I should add that hookworms aren't a cure for celiac disease. Some people, and I couldn't tell you how many, stop evincing the symptoms of celiac disease while their hookworm colonies are healthy. Others have a reduction in the severity of their reactions to gluten, but should still stay well away from it. And other people don't seem to be helped much at...2 points -
Hookwormed status report
Colleen H and one other reacted to dixonpete for a blog entry
I was lucky (!) in that I would very quickly get sick after ingestion with something contaminated with gluten so it was easy to figure out the offender. I also had a very restricted diet and only ever introduced one new food item per day for this very reason. One memory that sticks out was pistachios. They put flour in the bag to stop the nuts sticking...2 points -
A video with researcher William Parker about Helminthic Therapy
dixonpete and one other reacted to John Scott for a blog entry
This one page has all the information your friend needs. https://www.helminthictherapywiki.org/wiki/Helminthic_therapy_and_inflammatory_bowel_disease_(IBD) And, if he's on Instagram, he might like to follow this young lady who's recently managed to get into drug-free remission by using helminths, after 13 very challenging years with Crohn's. https...2 points -
A video with researcher William Parker about Helminthic Therapy
John Scott and one other reacted to Scott Adams for a blog entry
FWIW, I have a friend who has Crohn's Disease, and had surgery for it when he was younger, but doesn't want to take some of the prescription medications to help him deal with ongoing symptoms. I told him to look into hookworms treatment.2 points -
Hookworms and ChatGPT5
John Scott reacted to dixonpete for a blog entry
I asked a logical follow-up question to ChatGTP5: Can you estimate what percentage of celiac hookworm hosts like myself achieve full remission from the disease? ChatGPT said: Great question, Pete. Let’s be very clear here: There isn’t a single hard number published for “what percentage of celiacs with hookworms achieve full remission,” but...1 point -
Hookwormed status report
John Scott reacted to miguel54b for a blog entry
Thanks, I am desperate to find a cure too. 4am and I just figured out why I am not felling right (Beef jerky).1 point -
Father, it's been some time since my last hookworm larvae innoculation
John Scott reacted to dixonpete for a blog entry
I read a research article today about how hookworms are being considered as a standard of care of colitis. Dunno about them used for obesity treatment though. The first thing I did once I figured out I wasn't reacting to gluten anymore was to head for the bakery isle. It had been 13 years..1 point -
Father, it's been some time since my last hookworm larvae innoculation
John Scott reacted to dixonpete for a blog entry
1 point -
Father, it's been some time since my last hookworm larvae innoculation
John Scott reacted to dixonpete for a blog entry
Another concern I had with my cockup with the bandage was with the larvae sitting in the gauze potentially drying out and dying while I futzed around. Seems things are ok. I've been having tingles under the stretch bandage I used to secure placement. I'll know for sure in a couple of days when I see the entry wounds.1 point -
A video with researcher William Parker about Helminthic Therapy
John Scott reacted to dixonpete for a blog entry
My perspective on this topic will always be informed by my personal experience. I had had four GI related surgeries and was poised to have another big surgery, a colectomy, all because of my Inflammatory Bowel Disease. Hookworms put a stop to all that, including my reactions to gluten. I've had six years experience now doing hookworms, including 3X where...1 point -
A video with researcher William Parker about Helminthic Therapy
dixonpete reacted to John Scott for a blog entry
You’ve touched on some big issues that really need evidence for a fuller understanding. I agree that we don’t need tuberculosis or trichinosis, and that the reduction in these and many other infections has undoubtedly contributed to the increase in longevity seen in the West in the past century. And yet some infections can actually be beneficial, as...1 point -
A video with researcher William Parker about Helminthic Therapy
John Scott reacted to dixonpete for a blog entry
Necator americanus is particularly well adapted to humans. Personally I don't know of any cases outside of accidental overdoses where Helminthic Therapy self-treaters have suffered harm from NA. Sometimes the treatment doesn't help, and very occasionally side effects are intolerable. In those cases, if desired the worms can be killed off. Regular medical...1 point -
A video with researcher William Parker about Helminthic Therapy
John Scott reacted to dixonpete for a blog entry
I don't buy it either. I think a much better explanation is that humans evolved with hookworms just as hookworms evolved with us. The immunoregulatory activities that hookworms conduct to avoid expulsion from the gut have over time been incorporated into how the gut immune system works as a whole, and without hookworms present the gut immune system is incomplete...1 point -
A video with researcher William Parker about Helminthic Therapy
John Scott reacted to dixonpete for a blog entry
At this point I am free of colitis unless I ingest alcohol, peanuts/pistachios, and as I discovered just this week, red meat. I prefer pork and chicken over red meat anyway, and since alcoholism runs in my family losing alcohol I probably shouldn't regard as a great loss. Losing out on peanut butter sandwiches does suck though. In all, these three sensitivies...1 point -
A video with researcher William Parker about Helminthic Therapy
John Scott reacted to dixonpete for a blog entry
Parker didn't exactly go out of his way to sell Helminthic Therapy in this video, did he? In other videos online he's very much positive towards HT, especially Inflammatory Bowel Disease and MS. Acetaminophen is on the list of World Health Organization's Essential Medicines, yet according to Wikipedia it also is responsible for thousands of emergency...1 point -
Probably the best Helminthic Therapy video I've seen
Scott Adams reacted to Theresa C for a blog entry
Has anyone traveled to Italy with a small group. I’m afraid not being able to eat pizza will ruin the trip for me.0 points
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By knitty kitty · Posted
@xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables. Not only are these high in fiber, they also are good sources of magnesium. Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation. Thiamine Vitamin B1 and magnesium work together. Thiamine in the form Benfotiamine has been shown to improve intestinal health. Thiamine and magnesium are important to gastrointestinal health and function. -
Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
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By knitty kitty · Posted
@EndlessSummer, You said you had an allergy to trees. People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits. Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease. Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet. Vitamin C and the eight B vitamins are needed to help the body clear histamine. Have you been checked for nutritional deficiencies? -
I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia. going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored?
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Welcome to celiac.com, @EndlessSummer! Do you react to all vegetables or just specific kinds or families of them? What you describe with green beans sounds like it has an anaphylaxis component. Like you, walnuts are a problem for me. They will often give me a scratchy throat so I try to avoid them. Does it matter if the vegies are raw or will-cooked in how you react to them?
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