Yenni

Could you recommend any books? I am very interested in this stuff too.

I hear ya about forgetting everything.

Please feel free to share any other interesing stuff about this. hehe

Yeah....you have to find out what is overwhelming your system first....and then you have to treat it.....and detoxify.

I never tried to "correct" the problem on my own...other than to limit my exposure and try to be as "clean" as possible with my diet and everything else around me. I dont try to "self-medicate".....not with supplements or anything else.

I just mainly focused on finding out the cause.

These are neurotoxins that if accumulated could lead to a problem with chemical sensitivity.

They are listed in order of importance.

(1) Heavy metals: such as mercury, lead, cadmium and aluminium.

(2) Biotoxins: such as tetanus toxin, botulinum toxin (botox), ascaridin (from intestinal parasites), unspecified toxins from streptococci, staphylococci, lyme disease, clamydia, tuberculosis, fungal toxins and toxins produced by viruses. Biotoxins are minute molecules containing nitrogen and sulfur. They belong to a group of chemical messengers which microorganisms use to control the host

I have chemical sensitivities as well as food sensitivities. I'm reactive to all chemicals in foods (Msg, Aspartame, food coloring, preservatives, etc.).....also I'm highly sensitive to molds.

I'm sensitive to all chemicals but worst are perfumes and fabric softener/dryer sheets.

I dont have any IgE type allergies.....just sensitive to pretty much everything.....in a BIG way.

Chemical sensitivity is almost always due to accumulation of neurotoxins and the bodies inability to excrete them.

Do you know how to un-do it? Have you done anything to try or..?

I wonder if that can change back; the inability to excrete them? If there is anyway to do that?

I am thinking about buying some of Dr Rea's books..but I am not sure if they would suit me. Would be interesting to hear more from anyone that has studied this some.

Dr Rea mentioned that people with pain in neck ans shoulders often have stuff built up in their system. I know both my mom and I have some problems with that.

Oh and I meant to ask if any of you have problems with mediaction at all? Since I was a child I haven't been able to eat Ibuprofen because I get shortness of breath and severe fatique from small doses. (My mom has this too.)

I noticed that after my stomach problems started that I am sensetive to medication. I react to things like an elderly. I usually get much more side effects and I can handle much less of most things. For example I usually take Acetamenophen for pain and fever and I used to be able to take 1 gram without really feeling much at all. Now the same amount makes me fall asleep almost. I usually take 500 mg only now. My mom also have this problem (she seems to have GI problems from possibly gluten intolerance too that she is ignoring).

I was wondering if anyone else have anything like this? I feel like a freak.

I ate Omnicef for a sinus infection probably 2 years ago and my stool turned all red. It was weird. They checked it for blood but it wasn't. They hadn't heard of anyone else that this happened to. I seem to be a freak show since I got Celiac.

My doctor? I was tested by Enterolab after all the celiac testing came out negative. I'm not being treated by a doctor for my gluten intolerance.

I based my statement on having family members tested on the fact that if we don't have the celiac genes, we literally all have the gluten intolerant genes unless we're of Asian descent. So, since almost all Americans, except those of Asian descent, have gluten intolerant or celiac genes, and only a certain number of us have a problem with it, I think the genes are irrelevant in the case of gluten sensitivity -- we all have them!!

Of course, I think family members should be tested in the case of celiac.

Gluten intolerance apparently can cause some kind of damage. I seem to be digesting my food more completely.

No, I meant the doctor Karen's sister saw.

There was a doctor that was speaking on Dr Fine's seminar. He said he was gluten intolerant. He hadn't been able to get any children because his sperms wouldn't swim. 5 years after he stopped with gluten he now is becoming a father (of he probably is a father by now). He said it was because of the gluten, so it sounds like eating gluten and being gluten intolerant still do damage to me.

It is hard! My son has Celiac's and we basically just do not go out and eat. It's really hard with him because he doesn't get sick when he is glutened...but I know just because he doesn't physically get sick, it still hurts his insides if he has wheat products. But it makes it hard sometimes for outside people to understand that.

But I ran into something with my boyfriends mother...we usually go to a lake for vacation and generally my kids haven't gone, but this year I'd like them to go along, she was all ok for that until I told her that one thing we would have to do more cooking in the cabin than eating out because I just don't trust restaurants and with him being 11, if he can't have what he wants, he gets bummed so easier if i just cook for him. She got quiet and went oh didn't think of that. I was instantly angry...This isn't just because he's on some diet to loose weight...lord knows we went in and out of restaurants one year because she was on a diet to loose weight and she made a big deal out of everything we ate. So once I gathered my cool, I told her that it was really no big deal, her and the rest of the family could go out to eat, and my son and i would stay at the cabin and i'd grill something for us and we'd have some mother/son bonding time. Just irritating how people can be.

OK i'm done venting!!!! No one else can appreciate this but everyone on this message board!

I can so relate to the restaurant and vacation part. My SIL used to lactose intolerant and I remember one time when she forgot her enzyme pills and she couldn't have any ice creme. her poor husband almost had to leave the restaurant to drive home and get them for her! It was a big thing and everything that is slightly hard for my SIL is drama. But she has absolutely no understanding for me. I have had similar situations as for your son happening to me amny times with her. Stupid people!

Hello and welcome! This is a great place. I have so much to thank this place/the people here for.

But doesn't gluten harm a non-celiak gluten intolerant person still? I am not sure I see the difference there. Seems no matter what genes you have (celiak or non-celiak) gluten still is harmful.

I am a little with Carla about Gluten not being that great for anyone, but people do not handle that opinion very well I have noticed.

I don't like the doctor she has seen.

I have given up on trying to convince my family about getting tested. My mom and aunt both have sumptoms and it seems my brother has them too (has also has ADHD and it seems to be common with with gluten intolerance having that). I have tried to explain to them about possebly feeling better and stuff, but they don't want to hear about it. I feel I can't do more than what I have done. Now it is up to them.

Here is the homepage of that Environmental Health center: Open Original Shared Link

They have a store there where one can get some recommendations on what stuff to use. Most of them I have been able to find locally.

I am a little interestded in getting one of the water filters. I guess the plastic bottles that most water comes in give away a lot of bad stuff into the water. Water should come in glass bottles. Glass bottles are hard to find and are very spendy I have noticed. so I am thinking about getting one of the filters (must be plastic free).

Thanks, I was thinking the same of yours!...looks like they could be really good friends!!

Is that Enterolab's Dr. Fine's DVD? looks worth buying...

Yes, it is his DVD. I liked it. I felt I got inspired by it and felt I got many questions answered.

What type of dog is yours?

Mine is a 50/50 mix of German Shepherd and Labrador Retriver.

I am glad she is doing better. I'll send of some good thoughts her way.

So tomorrow is my endoscopy in Saskatoon. I'm so terrified. My nerves are going off the roof. I'll never sleep tonight. I've gone through an endoscopy before, was even AWAKE from not enough anesthetics, I KNOW this time it can't be any worse. But i'm still sooooo scared. Also tomorrow is when I have to start eating gluten...I sent a text message to some friends and i honestly cried just from writing a text message, I feel so pathetic. Everyone please help me.....I need you all

~ lisa ~

Oh, I'll be thinking of you. I was a complete wreck when I was gonna have one done too. It wasn't because of gluten and I had it done in Sweden (where they give nothing but a little spray to numb the throat). Let them know you didn't get enough meds to sleep last time, if they don't already know.

My heart goes out to you. I hate those things too.

I hope it will go fast and easy.

YEs, this is true for me, as well. I have suffered from allergies since I was very young. Food, seasonal, animal, environmental, you name it. Now that I am older, and I pay more attention to what I expose myself to-putting it in my mouth or on my body. And I do notice that I am sensitive to MSG for sure. Household cleansers make my asthma flare up, too. That make sense. Where did you get the DVD?

OH, I love your doggie picture!

I got it here: Open Original Shared Link

I am really glad I bought it actually.

I was listening to Dr William Rea from the Environmental Health Center (Dallas, TX) at the "Intestinal Health ...and beyond!" DVD.

He mantioned that if you have more than 6 allergies you always have chemical sensitivities too. I thought that was pretty interesting and it is true when it comes to me. I have well over 6 allergies besides my intolerances and I am sensitive to parfume/fragrances and chemical sun blockers. I also have a hard time with those laundy drier sheets and household cleaning products.

I have started to look into more environmentally friendly products and stuff that is organic and kinder for humans to deal with.

What about you? Is his theory true when it comes to you and what kind of chemical sensitivities do you have?

Yes it felt very nice. I was almost expecting a battle there.

I got Antibiotics for 10 day (3 times a day). The last year I have had a hard time getting well when I get viruses (I started out with the flu before I got the sinus infection). It probably has to do with my body being busy with the Celiac.

Very true, sounds more like a sibling than a friend ... it's exactly how my sister is!!

Or a Sister in law like mine.

I would stay away from her as much as you can.

It is hard for me to handle other peoples remarks. My husbands family do not understand me much. I have gotten much more understanding from strangers than them. I try to ignore it. Just do my thing. I know I feel better this way and do not need more proof.

It's been a slow thing for me. I noticed small changes at first but nothing bigger. I am sure the fact that it took a couple of months for me to figure out I can't have any Legumes at all and no dairy. Once I stopped with these things I started to get more energy, but I still have a long way to go.

According to EnteroLab and Dr Fine it is normal that it takes time. I bought his DVD of a seminar and one doctor there said to expect soem changes within a month, then the most of the GI problems should change withing 3-6 month and up to a year, even 2 years he said, for depression, anxiety and chronic fatigue to get better.

Hang in there! I know what you are going through. We all do.

Those are weird. They might "taste" fine but they don't have a chewy texture. I'm not sure exactly how to describe them in texture. Sort of like an Altoid or a Wintergreen lozenge. And if I recall correctly no matter the flavor they all have the same brownish color. I can't say that I cared for them.

I have tried a Key Lime candy and a Raspberry one from this brand and they are a bit weird in the texture. Fall apart in the mouth kinda. I am pretty desperate so I'll probably end up trying some but I'll keep on looking for other stuff too because it doesn't sound like a winner.

Thanks for the reply.

Gah! I didn't know Gimbals had soy. It says they do process soy but the few kinds of things I bought from them didn't list it. Actually daughter didn't care for them anyway so it didn't really matter.

Anyway... Running Rabbit is quite good if it is the true licorice flavor you want. Here's a link but I've bought it elsewhere. Our local Central Market carries it.

<a href="Open Original Shared Link free.com/item_detail.aspx?ItemCode=951023" target="external ugc nofollow">Open Original Shared Link free.com/item_detail.aspx?ItemCode=951023</a>

The raspberry flavor does have a licorice aftertaste so if you're looking for something like Twizzlers, that's not it.

If that's what you want, then you might like Candy Tree. Yet another link:

Open Original Shared Link

I have read that soy is used to keep things from sticking to things. I know it is commonly used with cough drops for example. It is a cheap product I guess so very popular. So maybe they are using it for that...

I'll post the answer I get from Gimbals about the soy when I get it. Nothing so far.

I can't get the first link to work. I tried to remove some stuff in it but still nothing.

The second link/licorice is out for me when I am allergic to strawberry and cherries. Looked like they used that in all of the flavors...

Thanks for posting them though. =)

I like the proper licorice. The salty kind mostly, but that seems hard to find in a gluten free form. I am originally from Sweden and licorice is big over there. Usually very different licorice from over here in the US but I'll take what I can get.

I found these; Open Original Shared Link

Anyone tried their licorice? Does it taste "normal" (now I don't think Red Wines or any of that red stuff is licorice)?

I had to go see my regular doctors office for a sinus infection the other day and I brought my EnteroLab results. The doctor accepted it with no problems. The fact that my heart burn is sooo much better helped too I am sure. Such a relief, I was a little worried about it when I ended up with a negative blood work result there last spring. I saw a different doctor this time and she actually commented on that I was gluten free as I had the tests done and that she had also heard it wasn't rare to get false negatives on them so that was all nice.

I LOVE licorice and haven't been able to find any gluten and legume/soy free one. Does anyone know of any???

(I was looking at Gimbals but they use Soy in their facilities it said on their page. I did write them an e-mail about how they used it and on all machines..but it is probably out when I am very sensitive to that stuff.)

We feed our dog gluten free food (because of me) and first we tried "Solid Gold Barking At The Moon". It is both soy and gluten free. It is high in protein though so it can be a problem for some dogs. Our dog kept on having really bad gas on it so we started using "Canidae" Instead. They are all gluten free but has legumes (not soy though I belive). Works much better.

There are some other brand out there too that we looked at but couldn't find them in a local store. Can't remember the names now but if anyone is interested in more I can try to find them.

I mean to post what brand the fish was. It is called Wild Pacific. The Halibut was fine but the salmon, well my fingers turned orange so they must have had a coloring on it. Unlabeled.

I read that the same food coloring as is used in yellow cheese is usually used in fish. I did a search on this board and it is said to be gluten free, but can create a reaction in Celiacs. So maybe it was it.

I haven't has the raisins or the fish after that so who knows for sure. I didn't eat that many raisins and had them a couple of times before I had the salmon, so I am still guessing on the Salmon.

It is scary how easy it is for some people to just think of themselves. I hope it turns out ok with your son. Hopefully she will end up giving up and do what is best for you and your son. Good luck!