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Nikki2003

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Everything posted by Nikki2003

  1. Nikki2003
    My older daughter is going for her biopsy. She can't eat or drink anything but clear liquids after 12am. This will be tough. She is a big time midnight snacker. I have locks on the cabinets but she knows how they work. If I tell her she can't eat she wont really care if she is hungry,This will be tough.Maybe if she eats alot before bed and put her to bed...
  2. Nikki2003
    Nicole will be starting pre-k in a few weeks. Does anyone have any ideas about which snacks like for school are gluten free that you can purchase in the store. Maybe a list so I can give her teacher I know about the ingredients I mean like a list of snack already made would be great. Because the teacher does the snack shopping. Also there is 1 other child...
  3. Nikki2003
    Me and my husbands blood work came back neg and both are daughters have it. Celina
  4. Nikki2003
    I can't believe she is 3 already. celina
  5. Nikki2003
    Nicole was diagnosed in july of 06. I had my older dd tested because they have a certain % of having it also,Plus when she was a bit younger she has issues with constipation. We did the blood work and hers it positive also. She is having her biopsy on the 27th of this month. Celina
  6. Nikki2003
    Also check out celiac.com or org. there is a clickable recipes section on the side I have tried a few they are good. Celina
  7. Nikki2003
    I think they would be positive for a bit longer after being gluten free,It does take time for the result to be neg. My daughter is having her repeat blood work next thursday she has been gluten free since july 22,2006. She is so much better too. Celina
  8. Nikki2003
    The Gi dr is repeating her bloodwork next thursday to make sure she is in fact gluten free although those cheerios may show up. They check the levels every 4 months or so. Wish us luck. Celina
  9. Nikki2003
    Nicole actually got ahold of some regular cheerios,And I think she ate some,She has been completely gluten free since the end of july. But I can tell she ate some on friday afternoon,Because friday night she was up screaming like her belly hurt and she got constipated then diarhea again and she even had a low grade fever. Last night she only got up 1-2 times...
  10. Nikki2003
    Nicole actually seemed fine until her 1st birthday,When she was born she was 8-12. Has always been very high on the percentiles,when she started to eat baby food she would eat around 3 jars a day plus formula.She basically stopped eating around her 1st birthday.Got constipated alot got fevers and sickness alot more that other kids. Had a bloated belly and...
  11. Nikki2003
    I would ask that if they do stuff like that at school again that involves food at all to call you first to make sure it is ok. I don't think there would be any problem with that. Just to be safe because as we all know it is hiding just about everywhere. I hope it all works out. Celina
  12. Nikki2003
    Well I ahve already posted that my older daughter alivia tested + for celiac also. But the GI dr ran some more blood work and i emailed him the results and if they were ok. He said that her wbc are slightly decreased (her celiac screening they were also decreased in aug) and her allergy cells wre very high. And he then said the results of the biopsy should...
  13. Nikki2003
    forgot to add. 1 of Nicoles speech areas before the diet were at 12-15 months and she was 25 months at the time. Since the diet her last assesment at 33 months was at 23 months which is a huge jump from last time 8 months ago. Don't you think? Incase you are wondering here is her last assesment noted areas:33 months old Social/Emotional-27 months Gross...
  14. Nikki2003
    Can celiac cause developmental delays? I thought I read somewhere that it does,But cannot find it now. Nicole is behind in alot of areas. I am just trying to figure out id celiac contributed to it. Thanks if you know we are trying to get her into pre-k. I don't know if that info would help but it can't hurt. Thanks Celina
  15. Nikki2003
    I also have the incredible edile Gluten free foods for kids,It is great and actually geared towards what kids eat which is the best part. Celina
  16. Nikki2003
    Hi there. My 2 yr old daughter had this in Julyof this year. It wasn't too bad they actually put the IV in after she was asleep. Just make sure to tell the Anesthesiologist if there are any reactions to it in the family,I know they willa sk anyway. But she did great. That is the only 100% way to tell and shows if anything else is going on to. They also found...
  17. Nikki2003
    I heard back from the rheumy. She said her ANA is slightly positive. And over 5% of patients with a + don't even have autoimmune disorders. But I then asked if she can explain what all her other symptoms that seemed like lupus symptoms. But we will see what she says. And the immunoglobulin they said it is ok to be low in kids with periodic fevers but I also...
  18. Nikki2003
    She had those already and the biopsy and she does have celiac. But these tests the rheumatologist did,I am just trying to figure out their meaning. Thanks
  19. Nikki2003
    I will talk with her ped on tuesday when my older daughter goes to see him. Thanks C
  20. Nikki2003
    Nicole's teeth came in fine she is almost 3. But she does have some decoloration even though we always brush. She is seeing the dentist for the first time in Dec. Should be interesting. Celina & Nicole
  21. Nikki2003
    Hello. I have a question of some results and I hope you can help. I got copies of nicole's blood work and I don't really understand them Alpha 1Antitrypsin Phenotype; 38mg/dl normal: 76-190mg/dl --------------------------------------------------------------- Immunoglobulin D: <0.2mg/dl normal: 1.0-7.4mg/dl ---------------------------------...
  22. Nikki2003
    I Think it is just called pacific they have a rice milk and almond that are gluten free. My daughter likes them both also there is natures's best that is gluten free and I believe rice dream but don't quote me on that one it may have barley or something sililar just read the label. Hope they help
  23. Nikki2003
    My daughters GI dr said if they are not eating gluten the tests will be neg. So that is why until the biospsy he said just feed her normally and don't cut out the gluten it will make the show neg even if she really has it. It does make a difference I got this info from a dr at childrens hospital in boston. It is true.
  24. Nikki2003
    I have tried to figure it out. But I know the season doesn't matter because it is year round. And they started when we live in our old place. I posted somewhere else in her that her IgE levels are very high for some unknown reason and it is not Celiac related. Her IgE is 272 and the norm is <30 Thanks for the help I will keep you updated. Celina
  25. Nikki2003
    Thank you for that. I am worried about asthma because me and my older daughter have it and a few winters ago I started with Ezcema and last winter my older daughter too. But mainly when nicole gets sick I mean high fever lethargy etc she had trouble breathing she has to breath through her mouth,not that her nose is blocked but she works hard. When ever...
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