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Helena

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Helena

  1. Helena
    Simply V---I briefly checked out your site (will look at it in more detail later). I was interested in the whole issue with the citric acid in the Whole Foods' 365 soda. I can totally see that happening. By the way, I asked my allergist which corn-derived ingredients are safe for people with a corn allergy (seeing as I have one)--I said I had no idea....
  2. Helena
    Thank you both---I guess it is one of those things where I'll have to wait and see and hope for the best. I've heard conflicting things about the rotation diet---my sister's naturopath put her on one for awhile. And it does make sense to me--it seems that people tend to be allergic to the foods that are commonly eaten---i.e. here wheat allergy is one of...
  3. Helena

    ARCHIVED Photophobia?

    Helena posted a topic in Related Issues & Disorders

    Besides having celiac myself, I'm related to someone who I am sure has it. Most of her symptoms (including the classic GI ones when ingesting gluten!) would be explained by celiac disease. The thing is, though, she got sick after coming down with a weird illness and not recovering entirely----I'm thinking the virus triggered celiac disease. The one symptom...
  4. Helena
    I'm trying not to get too stressed about health problems which I *don't* have because I have enough on my plate as it is. But I can't help but wonder about the possibility of developing other food intolerances. I was *hoping* that maybe some of my allergies might be related to celiac disease (insofar as people with celiac have other immunological problems...
  5. Helena
    No, that isn't generally true with allergies. Once allergic, people tend to test positive on the tests regardless of whether they have avoided the food or not. Sometimes peoples' RAST levels do drop when they are still allergic . . . so maybe it happens, but most people will always have allergen-specific antibodies circulating in their blood stream. The...
  6. Helena
    Allergists don't generally deal with intolerances, but it is good to get checked out to make sure that the "intolerance" isn't an allergy . . . My allergist put me on an elimination diet . . he sort of supervised it, but I didn't find him to be of much help during the diet. (He is helpful about other things.) For one thing, the diet is what clued me in...
  7. Helena
    Interesting question. I don't know, but I would guess that it is the same reason why for instance if we have chicken pox once we generally won't get it again. Once the immune system recognizes something as pathogenic, it continues to do so.
  8. Helena
    Yeah, I had to cut out corn, too----I went wheat free before I had this celiac disease thing checked out, and I started to react more seriously when I added a lot more corn to my diet. Think: corn bread, *large* bowls of pocorn smothered in butter (sigh. how I miss popcorn!). But I think I've always had an allergy--when I was a kid, too much corn on...
  9. Helena
    You can't tell on the basis of the RAST (blood) test how severe the allergy is! If there is a high level, it means that there is a higher *probability* of a reaction. It *is* even possible to have a negative RAST test but to have a severe reaction. Seriously, the doctor should decide on the need for the epi on the basis of how severely your son reacts...
  10. Helena
    I just read through this thread quickly so I've probably missed a few things . . . I've been to a *lot* (and I mean *a lot*) of allergy appointments, so I figured I'd put my two cents in. but a few things that caught my eye: 1) when your son is complaining of things tasting "spicy" that sounds like an allergy to me. For most of the things I'm allergic...
  11. Helena
    Good luck with getting things across to your family. I hope your nephews listen and get tested. You shouldn't blame yourself for not figuring this out---if your doctors didn't figure it out, how were you to be expected to? My family has actually been pretty good----at first I got the impression that my mom thought that throwing out wooden cutting...
  12. Helena
    If your blood tests were positive across the board, I'd say you have celiac--especially if the EMA test was positive. But even so the biopsy might be helpful in telling your dr. how extensive the damage is so that she can monitor your progress. You might ask your doctor about this--some doctors follow their patients more closely than others. I didn't...
  13. Helena
    I'm not in my teens and I'm not going to "cheat" on the diet, but I'm wanting to show this thread to my sister who I think has celiac disease (she is in her late 20s). I find it interesting that people often don't start showing the symptoms of celiac disease until later in life . . . thanks, everyone, for sharing your story. I think I've had celiac all...
  14. Helena
    From what I've read, the genetic tests are used to rule out celiac. i.e. if someone *doesn't* have those genes, there is a 99% chance (or something like that--it isn't 100% but close) that that person does not have celiac. But there are a lot of people walking around with those genes who do not have celiac and will never have it because there are other...
  15. Helena
    I will look forward to trying gluten-free oats, but I will be careful about it. I guess that's one positive aspect of this whole ordeal . . . I thought that maybe I was allergic or something, but hopefully it was just the gluten contamination. I think I should wait until I've been on the diet longer before I introduce the oats (in case I'm among the...
  16. Helena
    I'm avoiding Rice Dream now for sure and am looking into cross contamination issues, disposing of cutting boards, wooden spoons, and even my beloved coffee grinder which I stupidly used for grinding barley (for porridge) when I was back on gluten. I'm just saying that my course of action would be different if I knew that I was having issues with gluten because...
  17. Helena
    Thanks everyone for your input and for explaining about the tTG tests. gluten-free Betsy---My GI doctor had told me that my first test was considered "slightly" positive so maybe he was using a similar scale. Based on those ranges you've posted., it does seem like 50 constitutes a negative dietary response to gluten--thanks for the info. Well, I think...
  18. Helena
    To recap: had the celiac blood panel, June 2006. was on a nearly gluten free diet. test results: negative EMA, slightly positive anti-tTG; negative gliadin Reintroduced gluten . . . but then ultimately decided not to do the biopsy. But I didn't want all that gluten to go to waste----so I suggested we redo the test to see if I had responded to gluten...
  19. Helena
    How annoying---I hope you have better luck the next time it arrives. Good to know that it has received good reviews.
  20. Helena
    Hi Pilgrim South, Thanks very much for the tips and for the links. I called the store where they used to sell grain mills . . . they confirmed that they are in fact not selling them anymore! I like the sounds of that Nutrimill grinder. The guy at the store likes the Schnitzer mill--I might check that one out too. Those grain mills *are* expensive...
  21. Helena
    I am seriously considering purchasing a grain mill and/or grain flaker to make rice flour. I will need to do some research into finding somewhere where I can purchase the mill . . . the store that used to sell it doesn't seem to anymore . .. but I know where I can get a grain flaker. Has anyone been happy with homemade flour? Has your mill lasted for...
  22. Helena
    Thanks for the reassurance on the plain rice issue!
  23. Helena
    Yep, I eat millet--thanks for the suggestion. It is one of the few grains I can eat. I hadn't thought of stir frying it in oil first--that sounds good! I'm a bit concerned about the particular type of millet I buy, though (Oak Manor)---the company manufactures flour too. I'll have to try to find millet that is safe for the nut allergic (Bob's Red Mill...
  24. Helena
    In the information booklet that my dietician gave me, buckwheat was flagged as one of those grains which can be cross contaminated . . . . she said you have to make sure you get a gluten free variety (not that I can eat buckwheat---I tend to react to seeds and things!)
  25. Helena
    Thanks for the advice. There's one product in particular that I really really want to continue eating--I eat millet processed by Oak Manor (a Canadian company), but I should probably give it up because they also mill wheat flour. (I would buy Bob's Red Mill millet if it weren't for the fact that their products aren't safe for people with severe tree nut...
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