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Gemini

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Everything posted by Gemini

  1. Gemini
    beverage.......I have Hashi's thyroid disease and have been on thyroid hormone for years and tolerate it just fine. It's funny that you mention Ashwaganda because my thyroid doc gave me some to try for some of the symptoms I had and it was a disaster. If you read the particulars of it, it can be a GI irritant and it was for me. Every time I take it, I...
  2. Gemini
    I am happy the surgery is behind you, my dear. My cousin just went through this and ended her chemo in June. She is doing much, much better emotionally and physically and you will too! You will receive good guidance with your options on treatment and I will send you positive healing prayers. Too many women go through this but do really well, long term...
  3. Gemini
    No, not really. I am very familiar with EMA testing and just because it is done and read by an actual trained human being does not make it any less accurate. Machines are only as good as the person running the test. So, the fact that you had a negative EMA proves nothing beyond the fact that any immune system testing is dicey to begin with. Immune response...
  4. Gemini
    Well....I would say that those are very positive changes! With time, things may improve much more.
  5. Gemini
    Yes, those symptoms are consistent with Celiac/gluten intolerance. Doctors tend to not take people seriously when they don't have diarrhea but I never had it until the very end when I was very sick. Then it kicked in. They tend to lose interest when you say you don't have it and that is a mistake. So, if they ask you that and you say no, then make sure...
  6. Gemini
    It took me 3 years to rid myself of all symptoms but I am a lot older than you. As for the treatment you had, I am not sure I would be doing that right now. Let me explain. I am a believer in some things alternative. I do believe in energy work because I am an electronics tech by trade and understand the whole concept of how it works. After all, your neuro...
  7. Gemini
    I have always said that one of the worst things society has done is outlaw spankings and those trips to the woodshed. Bullying was never as much of a problem when I was a kid because you were allowed to take care of the problem yourself, or with the help of friends....which we did. Funny thing about bullies....they are chicken when you get them alone. They...
  8. Gemini
    Ohhhhhhhh.....I know that feeling well and I am 57 years old! Sometimes it would be great to just be a kid again with little to no responsibility. If you are feeling a lot better and your symptoms have improved, even a little, then I would personally forgo any other testing for now. That is just my opinion and you do not have to follow my lead. You...
  9. Gemini
    The EMA is usually the slam dunk with celiac. No other disease will cause a positive. In conjunction with the tTg/IgA, that is considered as good of a diagnosis as the biopsy. tTg/IgA misses many people and that is why they do panels of more than one test. Matijas.....as both of these are negative, it would appear that you do not have celiac. However...
  10. Gemini
    I think the decision is totally up to you. If you have severe neuro symptoms that you absolutely have connected to eating gluten, then just stay off gluten and see what happens long term. It will take awhile for changes to be noticed, most of the time, so be patient. But if you really feel like there is something else going on, then you will have to have...
  11. Gemini
    If you were gluten free for 3 months before the blood draw and it still came out positive as you stated, then your antibodies must have been really high before you originally started the gluten-free diet. Too bad the blood work wasn't done then. However, all is not lost. If the numbers of whatever testing they did were in the 30's, then that is a positive...
  12. Gemini
    You know, you both sound like me. I had vomiting (not every day), extreme nausea like morning sickness, extreme weight loss when I hit the wall with it like your sister. I was already underweight to begin with so it got ugly. After 3 days on the gluten-free diet, my diarrhea stopped completely, without taking any anti-diarrhea meds. I knew I had it before...
  13. Gemini
    Excellent! I am happy your family is listening to you and if your sister ends up having it, then that puts you into the high risk category, which might make for a clearer diagnosis, of sorts. The 2 1/2 year old might be a difficult test because it can be hard to get accurate results in one so young. I think the DGP, both IgA and IgG versions, do a better...
  14. Gemini
    We did not get off topic. It's all relevant. Just because you had no GI symptoms does not mean you do not have Celiac. Many people, including myself, have had severe neuro symptoms. They go hand in hand with Celiac. It all depends on how you present with the disease and the variations are many. This is why it is so hard for some to get an official diagnosis...
  15. Gemini
    Although an elevated IgG is suspect, that is generally used as a back up when someone is IgA deficient, making the IgA class of antibodies a no go as far as blood work goes. What were the numbers of the lab ranges and the actual test results? They should have gone on to complete the panel because that one test alone is not a diagnosis. I just don't understand...
  16. Gemini
    There is no test for gluten sensitivity, only for Celiac Disease. It is possible that someone with actual Celiac could still test positive for antibodies after 3 months because it can take up to a year for antibodies to normalize. Did you have a full panel done?
  17. Gemini
    Vikki Petersen, who wrote that article, is not the most reliable source of information for anything gluten related. She tends to be an alarmist. She is also not an MD but a chiropractor. I am not against chiro's either......I have a very good one myself that I see regularly BUT I do not ask him about Celiac Disease. He is an expert on bones and the spine...
  18. Gemini
    Where are you reading this information? It is not true. Tylenol is not fatal to anyone unless you swallow a full bottle or something along those lines. Your brain fog is most likely due to Celiac Disease and you have only been gluten-free for 3 months....that is just the beginning of healing! Make sure you are not ingesting any gluten unknowingly. Check...
  19. Gemini
    I drink wine and eat potatoes! Both agree with me well so thank God for small miracles......
  20. Gemini
    Kurasz.........the reason you have extreme brain fog is you are very new to the healing process and what you are experiencing is common. I had the same problem for awhile and had to give up reading anything longer than 1 page or I couldn't retain the information. Brain fog is a neurological symptom and those take the longest to go away. I can assure you...
  21. Gemini
    No, it does not. Damage can be very patchy with Celiac and, considering your small intestine has the surface area of a tennis court, it can be very easy to miss unless your small intestine is very compromised. When some of the testing comes out negative and you have severe symptoms of a gastro problem that could be Celiac, it is very important to do all...
  22. Gemini
    I agree with Squirmy on this. I personally think you need a new, better doctor because you don't have one right now. He is ruling out Celiac when you have flattened villi but he never did the blood work to back up the diagnosis? That is just plain dumb. He found flattened villi on the test that is supposedly the "Gold Standard" and then dismisses Celiac...
  23. Gemini
    Hello Hanna! I have the same problem with hives and red splotches sometimes so understand your frustration. Do you have any seasonal allergies? Mine are triggered by my allergy to mold and now that it is extremely humid here, its not a good combination. I have to stay in the air conditioning. The problem with hives is that there are many causes so...
  24. Gemini
    As far as feeling better once I went gluten free, it was immediate for me. I was in kind of a crisis at the time of diagnosis because I was losing weight daily and was down to 92-94 pounds. I could not eat anything without getting really sick so it was do or die. Yet, miraculously enough, after only 3 days of eating plain, gluten free food, the diarrhea...
  25. Gemini
    GottaSki......baby!......so lovely to see you on here! I have a question for you because you are such an expert on this. The allergic type symptoms, mainly hives, can be caused by too many mast cells in the small intestine? Do you have to have many allergic symptoms and feel bad or can it just be 1 symptom but, overall, you feel fine?
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