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Gemini

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Everything posted by Gemini

  1. Gemini
    Good luck! Please let us know how it goes.
  2. Gemini
    It sounds like classic Histamine Intolerance. You may want to take a look at this article, written by a doctor who has Celiac and was a contributor to this forum for a bit. Open Original Shared Link I am sorry you are suffering with this. I have severe allergies, along with Celiac, and my little trick is hives. I feel your pain!
  3. Gemini
    No, total IgA should always be done with any other IgA based testing to see if you make enough of the antibody for the testing to be valid. There are people who are IgA deficient, which would make any IgA testing unreliable. They then go to IgG based testing. Yes, heart problems are connected to Celiac. A-fib or other heart rhythm issues can be directly...
  4. Gemini
    The IgG testing for environmental allergies are accurate if your allergies are bad enough. It is very hard to trip them but I just had a mold panel done. Not to see if I was allergic to molds because I already know they are severe. It was to see which ones out of a 15 mold panel I was allergic to and how bad they may be. I knew I would get positives because...
  5. Gemini
    Yes, that is why I mentioned always reading a label. Just because one brand of ham may contain gluten does not mean they all do. I have yet to find one that is not gluten free but I am sure they do exist.
  6. Gemini
    Almost everything you listed as containing gluten does not. Some definitely have gluten free counterparts that can easily be found in most grocery stores but things like bacon, red wine, ham and a few others are naturally gluten free so a I am not sure where you came up with this list. Many of what you listed are not the healthiest choices out there and...
  7. Gemini
    It is not hard to avoid gluten in daily life if you understand how cross contamination works. No one should be using a computer if they haven't washed their hands after eating lunch that is gluten heavy. Who wants to get smeared food on their electronics? Plus, hand washing should be the norm, not only for gluten avoidance but for general hygiene......
  8. Gemini
    My cholesterol was always in the toilet, pre-diagnosis. My total was 125 and my HDL was in the low twenties. The LDL was super low also. Doctors thought that was so great but the dopes didn't realize that having your cholesterol that low was a warning sign. It should not be that low. It slowly crept up over the next 7-8 years until it reached around...
  9. Gemini
    tTg is not used for dietary compliance. The DGP is the correct test for that. It can take a year or slightly longer for tTg levels to normalize once the gluten-free diet is started so having an elevated number 6 months into the diet is not cause for concern.........unless the number hasn't gone down at all or the DGP is still elevated.
  10. Gemini

    ARCHIVED Immunologist

    Gemini replied to lacey's topic in Related Issues & Disorders

    The scratch testing doesn't give you much to the degree of severity. If you have the dermal injection type testing, they can measure the weal and have a scoring system for degree of severity. WIth blood testing, you have to do IgE and IgG. I didn't even trip the IgE but the IgG testing was through the roof for molds. People don't always react typically...
  11. Gemini

    ARCHIVED Immunologist

    Gemini replied to lacey's topic in Related Issues & Disorders

    Hi Lacey, I have many allergies myself and am currently doing the SLIT therapy, which is sublingual allergy drops. It is the same thing as allergy shots but formulated for sublingual use. I cannot get to an allergist once weekly because I work for a living so decided to try this method. I have been gluten-free for 11 years now and my gut...
  12. Gemini
    Have you had your blood sugar checked recently? Those symptoms are very common to those with untreated diabetes and those with celiac disease are at higher risk for developing it. I had blood sugar problems before I was diagnosed but they all went away after being gluten-free for awhile. At 7 months gluten-free, you should be able to handle gluten...
  13. Gemini
    It is not quite true that a lot of oats are contaminated or companies are using mechanical separation instead of dedicated fields for growing oats. Most use dedicated fields and the oats are very safe. I have been eating gluten-free oats for 11 years, am very sensitive to gluten but do not have an issue with gluten-free oats. I would not trust Cheerios but...
  14. Gemini
    I think the hardest thing to grasp for many people is the fact that doctors are not infallible, they are only human and they definitely do make mistakes. They are trained to believe that if they cannot find compromised villi, then there is no Celiac. With this disease, you have to include a number of other factors such as associated conditions and certainly...
  15. Gemini
    Oh, my......where to begin??????? When I look at your signature and see how VERY many conditions you have that are associated with Celiac Disease, and the fact that you suffered the cancer that is directly connected to long standing un-diagnosed Celiac, I want to pretty much hire a hit man to take out the GI doctor who is giving you such bad and dangerous...
  16. Gemini
    The name of the doctor is Dr. William Gusten. He is located at Saratoga-Schenectady Gastroenterology. I hope that is closer to where you live. My friend told me that when you call for an appointment, tell them to book the first appointment available in any of the offices they have. She really likes this guy and says he is very compassionate and listens...
  17. Gemini
    Just to clarify a few things here for the newly diagnosed.......envelope glue does not contain gluten and it is safe for Celiac's to seal an envelope. That is an old internet myth. Not as many meds contain gluten as people think. You still have to read labels or check with the manufacturer but many meds are completely safe. I have yet to find one...
  18. Gemini
    Hi Alyssa.......well let me tell you what it was like 30 years ago! It went from "we don't even recognize or look for Celiac" then, to "we know about the existence of Celiac but we have no clue how to test for or read a Celiac panel" today. How is it we have much better knowledge and publicity about Celiac Disease yet there are many docs who act like it...
  19. Gemini
    There is an ex-forum member who had a fantastic GI in upstate NY, nearer to the Massachusetts border. Let me try and get the information on him for you because it might be closer than going to Boston. He was very Celiac savvy.
  20. Gemini
    I have a plan when I retire to finally have another dog. If he/she could sniff out gluten, what a bonus that would be! Thank you for the link!
  21. Gemini
    As long as they don't have gluten sniffing cats, I am good. I am allergic to cats but not dogs. And yes.......I have a cat! Isn't that always the way?
  22. Gemini
    Seeing as the flu shot will stimulate your immune system, it stands to reason that it could make symptoms flare. I have never had a flu shot because I am low risk for catching it. Now, I am nervous to try having one in case the above happens. I am not against vaccines, either, but I have never had the flu and just do not want a flare of symptoms......which...
  23. Gemini
    There's a gluten sniffing dog????????????? I WANT ONE! That way, as a service dog, I could take the pup into a restaurant and not be kicked out. I have always marveled how in Europe, you see some dogs in cafes, sitting besides their owners while they eat. But having a dog to sniff out gluten is just so cool!
  24. Gemini
    So, if this supposed damage cannot be seen under a microscope, how does Dr. Fine state with any amount of credibility that the damage is there? He also needs to distinguish between NCGI and actual Celiac Disease because there is a huge difference. Regardless of what he claims, it is a well established fact that only in Celiac Disease is there villi damage...
  25. Gemini
    I think this might be a good idea for those who do not trip antibody blood testing. However, I noticed that Dr. Hill made the remark: "as opposed to relying on dietary review, symptoms, and TTG testing." You do not use tTg as a test for dietary compliance. We all know you have to do a repeat DGP, in those who were diagnosed using blood antibody testing...
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