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Gemini

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Everything posted by Gemini

  1. Gemini
    Sorry....I just don't buy into this hype that many Celiac patients do not heal. I have been doing this for a very long time and have seen a lot over 11 years and am surprised how people "follow" a gluten-free diet. If you do it right, then you should heal, unless you have underlying problems or don't fully understand how to do the diet correctly. Being...
  2. Gemini
    The doctor should be doing a full Celiac panel and not just a tTg. If a full Celiac panel is done and the tTg and EMA are positive, then a biopsy is not needed for confirmation. However, in minor children, doctors do not follow this protocol and seem to want to insist on a biopsy. I always felt it depended on blood results and symptoms in order to have...
  3. Gemini
    Chiachick.......yes, prednisone can skew Celiac testing because it's an immuno-suppresant and you are looking for antibodies in the blood work. They even use prednisone to treat refractory Celiac. It should make some of your Celiac symptoms calm down or go away temporarily but that is not optimum, is it? You want answers. From your history and that...
  4. Gemini
    Karen......I know this is an older post you made but I wanted to make a comment on what you said in this paragraph. MS would not raise Antigliadin antibodies in someone as that only elevates with Celiac Disease from the gluten you are eating in your diet. What it might raise is the tTg numbers as MS is an autoimmune disease and tTg can be elevated by some...
  5. Gemini
    I have yet to find any thyroid hormone that does contain gluten. I know many believe that Synthroid is not gluten free but I think the problem lay in the fact that the company will not label it as such or verify it directly. A CYA statement. I use Nature-throid, which is almost the same as Armour. Contains both hormones and both are gluten free. You...
  6. Gemini
    OK......after looking at all the links and reading the labels on the products, I have to play Devil's Advocate here...which I am sure will surprise no one. Am I outraged? That's a little too far up the anger spectrum for me. I guess I look at things differently than many. This annoys me, it truly does, and no one should be able to label something...
  7. Gemini
    I have only had great experiences at the Virgin Atlantic Lounge. They have a great menu and offer some things that can be done gluten free very easily. Never been sick from anything I've eaten there and I'm very sensitive. I think that American carriers are very different than their European counterparts. You get much better food and most people there...
  8. Gemini
    With positive blood results and anemia, this is most likely Celiac Disease. Your doctors are just behaving as doctors do and hinge everything off of the biopsy. I hope they find evidence of Celiac after all these biopsies because then you can get on with your life and get rid of that anemia! If not, then its just another case of patchy damage they have...
  9. Gemini
    You mean you have to wait until July in order to just get a referral????????? Are you in the US? That is inexcusable because your daughter is going to be just miserable by then. Is there an alternative way for you to go so that testing can be speeded up? As for a Naturopath doctor, sometimes they can do more harm than good. I agree with you that...
  10. Gemini
    I posted an article about gluten in meds under this subject topic, which may be very helpful. But I will add that Teva brand of pharmaceuticals are very gluten-free friendly and many of them, if not most, are gluten-free. I have used their antibiotics without issue.
  11. Gemini
    That must be a California law because here in Massachusetts, it's 18. 15 is ridiculous......you're her mother!
  12. Gemini
    Oh...........NYC is awash with fantastic gluten-free places to eat so I would recommend any Celiac going there without fear. I am glad you had a good time! Hang in there, baby! You'll be fine and adjust like the rest of us did. Until then, feel free to have a little freak out now and again. Get that frustration out!
  13. Gemini
    Hives can be caused by many different things and it is an allergic reaction, not a Celiac reaction. Usually it is not caused by food. Environmental allergies are a bigger reason they occur. Do you have seasonal allergies? They can also occur because of autoimmune issues and this article has a lot of interesting information. I have a problem with hives...
  14. Gemini
    The older version of the DGP, the AGA or anti-gliadin antibody tests are fairly useful for both diagnosis and monitoring dietary compliance. I know the DGP claims it is more sensitive but when I do repeat antibody testing every couple of years, I use Genova Labs because they were the labs where my blood work was done for diagnosis. For the consistency thing...
  15. Gemini
    Open Original Shared Link Here is an article about gluten in medications and what to look for. I thought it very informative and may help those who are worried about being glutened by their meds.
  16. Gemini
    I like your tenacity and thought processes in figuring out what seems right and what doesn't! I agree with you wholeheartedly. You know, my mother has constipation problems and I do think she may have a gluten problem. They keep blaming her GI problems all on constipation but I keep saying.......what the hell is making you so constipated? They just don...
  17. Gemini
    Celiac disease can elevate ANA. The test is not a test for anything specific but a test for general inflammation. There are multiple AI diseases that will raise ANA. Mine was sky high at diagnosis of Celiac and now, after 11 years gluten-free, it has improved dramatically. But I have 4 AI diseases in total so I doubt it will ever be normal. I don't worry...
  18. Gemini
    Anxiety and ADHD are related to EE? That's news to me! Your son may very well have EE also but those symptoms are symptoms that most Celiac's suffer from and I am also one of those small people who ended up having celiac. I hope you get answers when the testing is done!
  19. Gemini
    The GI doctor needs to do a complete Celiac panel. I take it this was not done? Then the endoscopy should be moved way up because all of his symptoms and growth issues scream of celiac so waiting until he takes meds for 6 weeks, which he should never have to be put on at that age, is ridiculous. How does the doc figure that his poor growth is related...
  20. Gemini
    I have another person in my group at work who has Celiac, although she was never tested. Her mother has it as bad as I do so she assumed when she developed symptoms that was it and went gluten free.......or so she thinks! She is the one who will eat frosting off of a gluten cake so when that happened at a group birthday party at work, one of the secretaries...
  21. Gemini
    We have all heard the "this is in your head" BS from docs and I am no exception. I guess he never read that some mental health issues are firmly connected to Celiac. It affects the brain as well as the small intestine. I am SOOOOOOOO glad you pushed back hard with your thyroid. My God, what would have happened if you hadn't? With the fact that you...
  22. Gemini
    Hannah........Thyroid disease and Type 1 diabetes are the top 2 "other" autoimmune diseases that occur with Celiac. Apparently, the thyroid and the pancreas are 2 other places that the autoimmune system likes to gravitate to and destroy. I suspect that genetics plays key role. But let me tell you something.......I have Celiac and Hashi's thyroid disease...
  23. Gemini
    I think it is still essential to see if her DGP is elevated because if it is, then you know she is ingesting it somewhere and can try and tackle that. It has happened to people before and you just will not know for sure until that testing is repeated. They are supposed to be doing that anyway, with the yearly blood work. I am not implying that your daughter...
  24. Gemini
    Frankie.......The original testing that showed a positive EMA and anti gliadin are pretty definitive for Celiac Disease. No other disease but Celiac will give you a positive on the EMA. However, because the doctors failed to find villous atrophy on your biopsy, they will not give you a Celiac diagnosis. Just because the biopsy was negative does not mean...
  25. Gemini
    I have not been to this restaurant myself but others I know have and recommended it. I plan on a trip to NYC within the next year and will be checking this place out! I have no idea if this is close to where you will be staying but I know I have traveled some distance for safe, gluten-free food and there is always the subway...... Open Original Shared...
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