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Gemini

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Everything posted by Gemini

  1. Gemini
    The whole thing has become so ridiculous, It's almost impossible to keep track of how they bill. But I know what you mean. Insurance companies now can charge an additional co-pay for discussing certain chronic health conditions. Hashi's is one of them. So.........I don't discuss it with my new PCP. I have a private doctor for my thyroid because it was...
  2. Gemini
    My husband and I received a box of these from a family member and the complete ingredients list was included in the box of strawberries, along with allergy warnings. It appears that some of the dipped strawberries are gluten free and some are not. There are versions that have a lot of stuff on the berries and some are just plain chocolate dipped. I did...
  3. Gemini
    You probably don't know any others with Sjogren's because doctors suck so badly at diagnosing it! Symptoms that stem from Sjogren's usually do get better on the gluten-free diet, so that is why doctors become confused. There is so much symptom overlap with AI disease, patients usually can figure it out before their doctors do, by tracking symptoms. I...
  4. Gemini
    Now if everyone out there who probably has a gluten problem adopted your attitude, they would be having a much better life. After over 10 years gluten-free myself, who really cares about gluten pizza? I go months without gluten free pizza, which is very good by the way, and I am not an emotional wreck. Imagine! Glad you feel better and yes, it was...
  5. Gemini
    ...and CoQ10 deficiencies can occur in those taking statin drugs. Really important to monitor that if you are on statins.
  6. Gemini
    It took all of 3 years before ALL of my symptoms resolved and it was the neuro ones that were the last to go. If you have been careful about your diet, then you may not be getting glutened as much as you think. It sounds like you have been careful because you are questioning things you should question to get clarification on. I am sure if you were doubtful...
  7. Gemini
    Thank you, Arlene, for making tea come out my nose! I should have known not to read your post while drinking......
  8. Gemini
    sella.........in 11 years gluten free, I have never been glutened by natural flavorings. I know some of the older literature on Celiac says it may contain gluten but they rarely do. For more info, I have put in a link that briefly explains how it works with labeling for those. The link is dated 2013 but I have yet to read any updates that list any pertinent...
  9. Gemini
    Yes, you absolutely need to be tested for Celiac! Sjogren's seems to be another close friend to Celiac, unfortunately, and if your SSA was positive, then you have Sjogren's. I have both diseases and found myself that my Sjogren's symptoms calmed down once I had been gluten-free for awhile. I still have moderate symptoms but they were almost unbearable pre...
  10. Gemini
    You are misunderstanding the term hidden gluten. A food item, of which probiotics are not covered under, can legitimately have trace amounts of gluten and still be gluten free. There is no test that can test down to zero, regardless of what you hear. Most testing generally tests down to 5ppm and the vast majority........ most likely 99% of Celiac's, will...
  11. Gemini
    It can be difficult to refuse food from others but, with time, you can learn to not let it bother you. Yeah, easier said than done, I know. But your sense of humor came through in places in your post so use that to make "empowered no BS responses"!
  12. Gemini
    This is a common sense answer! I used to eat Godiva years ago and was dismayed they had no interest in appealing to anyone with a food allergy/intolerance. That's OK......Ghirardelli chocolates are very good about divulging what they do and most of their chocolates are gluten-free. Again, you have to understand label reading and investigate further...
  13. Gemini
    If a food product contains wheat, it must be labeled by law. I have been gluten-free for 11 years and have found that this whole concept of hidden gluten (aside from cc) is really not quite true. You have to learn how to read labels correctly to identify what is in the food you are eating. If in any doubt, do not eat the product until further inquiry is...
  14. Gemini
    Hives can be caused by so many things but primarily, it's either allergy related or autoimmune related. You can have autoimmune hives which can result from having one or more AI diseases. I get hives but mine pop when it gets warm and wet......I am severely allergic to molds. They just about appear and disappear quickly, if the weather goes from wet to...
  15. Gemini
    The clues keep mounting, don't they? If more docs paid attention to all this, they wouldn't be complaining about how many people go undiagnosed! Part of the problem is the medical attitude.
  16. Gemini
    Although Hashi's can raise tTg levels, usually it's a lesser increase than a 124. I have both Celiac and Hashi's. So...it would not be a false positive at all. You either just have Hashi's or you have both Celiac and Hashi's. Seeing as Hashi's occurs frequently with Celiac, you need to eat that awful gluten for testing. Also, Synthroid may not be the...
  17. Gemini
    Yes, everyone has the right to monitor their diets as they wish but keep in mind that many companies have shared facilities and do a good job to prevent cc. It is not an assumed automatic that food has been cc'd just because they are made in a shared facility. Lots of Celiac's find companies they can trust, who do not make them sick, without being certified...
  18. Gemini
    I will also add the ANA can come down with long term adherence to a gluten-free diet. I have 3 other AI disorders, along with Celiac and 11 years ago, at my Celiac diagnosis, my ANA was 1:2560 and the last time I was tested in 2013, it was 1:320. Lower the inflammation and numbers go down!
  19. Gemini
    With blood results like these, your husband most definitely has Celiac Disease. The biopsy is just to check to see how much damage. Keep in mind that even with high, high test scores like these, damage can still be patchy. Although I would be very surprised if they didn't find enough with numbers like these! Thank goodness he was able to have a definitive...
  20. Gemini
    Lacie, a few comments on your test results.............while they are certainly not what doctors like to see when trying to rule Celiac in or out, they tell a little story . The EMA test was positive and you should know that no other disease will cause a positive on that except for Celiac. When you have a positive tTg and a positive EMA, that is pretty...
  21. Gemini
    Yes, I agree with cyclinglady. Think of it this way......Celiac Disease can cause ADHD, anxiety and the list of other issues your son has suffered from. ADHD is not a diagnosis of anything. They are symptoms and most doctors symptom treat by putting these kids on meds, which makes me crazy. No 9 year old child should have all these adult problems so there...
  22. Gemini
    jenn....did they ever do a complete Celiac panel? If not, then they haven't done enough to rule Celiac out. A negative biopsy does not rule it out, either. I say this because all the symptoms your son has and has had, both gastro and neurological, scream of gluten intolerance on some level. I would not rule out Celiac or NCGI just yet!
  23. Gemini
    Check out this thread: https://www.celiac.com/forums/topic/83588-gluten-free-and-still-high-ttg-iga-level/ I am not sure if gluten-free oats would keep tTg elevated. I tolerate them just fine so have no experience with this. Has your daughter been tested for other AI diseases that would cause tTg to remain elevated? Have they repeated the DGP...
  24. Gemini
    Yes, jenn....thrush can be common with Celiac. I had thrush problems for years and it never truly resolved until I discovered the Celiac. I would follow the anti-candida diet and take meds but it always came back, until I went gluten free. All the good gut bacteria that keeps yeast and other organisms in check are not usually there when a person has Celiac...
  25. Gemini
    I spoke with my co-worker this morning and he was only too happy to help! The name of the medication he takes is Promacta. It is a synthetic protein that stimulates the production of platelets in the bone marrow. It is not an immune-suppresant, which is always preferable. We are in the United Sates so what is available in your country may be different...
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