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Gemini

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Everything posted by Gemini

  1. Gemini
    The only time I have ever come across a time when I had to do a teaching moment to those eating gluten at the same table with me is when rolls are being served, or crusty bread, and they do that thing where they TEAR it apart, as you do, and the crumbs go flying everywhere. That is cause for concern because you know the crumbs will land on the Celiac's plate...
  2. Gemini
    I am not being dismissive and I never said that I did not believe you had a reaction. You are so new to the diet and when it's early in the healing process, this will happen. It happened to me in the early days but I did not assume I was glutened every time a food did not agree with me. Sometimes you never figure it out. What you do is pick up and move...
  3. Gemini
    You took the words right out of my mouth, kareng! Geezaloo........why do some people become so food afraid? Sometimes the internet isn't such a good thing because there are too many people with fear who post untrue statements about food suppliers and think there is gluten in everything. There isn't. If you learn how to correctly read labels, and this...
  4. Gemini
    Babybop.........how you mentally face the gluten free diet is key to recovery and attitude. I promise you, you will feel totally normal once you master the diet and feel comfortable with the change. It really is not hard at all....just inconvenient at times. You can travel without fear but it will take more planning for you to eat safely. You may also...
  5. Gemini
    I cannot imagine this forum without our bartfull. You are such an integral part and always dispensed the very best advice. I always admired your attitude regarding the challenges that were thrown at you and am so grateful for all the great posts you made. Your acceptance and peace are amazing and to be admired. God Bless you and know how loved you are...
  6. Gemini
    Although it may seem that way to someone new to the diet, gluten is not in everything. There are many foods we can safely eat that will not cause a problem. If you have a latex allergy, why do you need to go through your clothes?
  7. Gemini
    Just wanted to respond to your post and give a little information to those on this thread. I have Celiac, Sjogren's, Hashi's thyroid disease and Reynaud's, so I definitely feel your pain. I have been doing all this for 11 years now when I was diagnosed with Celiac but I have had the others for far longer. I am almost 57 years old. These are all related...
  8. Gemini
    Oh.....you have no idea! This has been the hardest thing for me to accept.......that I cannot make them see the reality of Celiac in their children. I have never experienced this level of denial before and I don't operate like that. Everyone tells me to just let it go but it is so damn hard as it's kids that are involved. I know all too well how badly...
  9. Gemini
    One thought.........you are experiencing fluctuations in thyroid levels because you probably aren't absorbing your meds well. That was the case with me and I kept having to increase my dose. After 4 years gluten-free, healing was well under way and all of a sudden, I went hyper. I started to absorb meds normally and the dose I was on was too high. That...
  10. Gemini
    You're welcome! You really gave good advice and it's not often I see people who know both Sjogren's and Sarcoids. These are 2 AI diseases that multiple family members of mine have, besides me. Physicsgirl.........I know how you feel as I was desperate and quite sick at diagnosis. I was down to a mere 92-94 pounds and no one was listening. Make sure...
  11. Gemini
    I do not know of any gluten-free truck food but I think it is brilliant and you should give it a go. That is something I miss....being able to eat this type of food because, very often, it looks so good. I see them all the time around Fenway Park before a ball game and they also have some food truck events around here so they are popular. Great idea...
  12. Gemini
    Celiac's can be short and thin.......I really hate the skinny word. It's as bad as calling someone fat and no, I am not lecturing you! I am 5' 4" tall (if you want to consider that tall!) and weigh around 110-112. Because I was always so thin with undiagnosed Celiac, people thought I had an eating disorder so I am sensitive about the skinny word. Silly...
  13. Gemini
    I forgot to add.......to alleviate and help with some of the dryness, I use Biotene mouthwash. It is specifically geared for severe dry mouth and has a really nice, minty flavor. Not the sharp minty flavor of alcohol based mouthwashes because there is no alcohol in Biotene. It contains the enzymes present in your saliva that protect your teeth from dental...
  14. Gemini
    Physicsgirl..........please listen to the incredibly smart lady named HannahZ who gave you some awesome advice about some of your symptoms. Especially the part about Sarcoidosis and Sjogren's. I have Celiac, Sjogren's, Reynaud's Syndrome and Hashi's thyroid disease. My brother, who passed away last August from Type 1 diabetes and suspected Celiac, also...
  15. Gemini
    As you have many symptoms that fit a Celiac profile, I would HIGHLY recommend that you have an antibody panel done and gene testing. Insist on the gene testing because that test is very important and can tell you right off the bat whether you have the genetic predisposition to trigger for Celiac. A positive on that does not mean you have it but means you...
  16. Gemini
    My own sister, who is the smartest sibling out of the 4 of us, and works in health care in a lab where she does all the testing so you know cc and good protocol are essential........she looked at me like I had a screw loose when I told her I could not eat her Thanksgiving turkey because she had stuffed it with wheat bread. What about the gravy she made in...
  17. Gemini
    You can rely on blood work alone if your blood work was really positive at diagnosis. There are many, including me, who had sky high numbers on all tests in the blood panel. If you never triggered the blood work, you would definitely have to rely on the biopsy. You also have to look at other things like weight gain, for those of us who were the skinny Celiac...
  18. Gemini
    Let me clarify........these are my nieces and nephews. Their mother was just diagnosed, although her blood work was positive but they are doing the usual and won't bless her with Celiac until she has the biopsy. She has multiple symptoms that scream Celiac. I have suspected that one or more of her kids have it also. One has had nothing but medical problems...
  19. Gemini
    I think considering the age of your daughter and your own admission you might have trouble sticking strictly to the diet, plus the fact her blood work was not terribly conclusive, it might be a good idea to have one. Doing the biopsy depends on many factors but for kids, those dopey docs never believe it unless they see damage themselves and take the...
  20. Gemini
    Rule of thumb is never, ever eat food someone else has prepared unless it's another Celiac who prepares it and you know without a doubt they know what they are doing. Not too hard, huh? I have been diagnosed and gluten-free for 11 years and have learned that very few people actually get it, as far as cc and prep are concerned. They really mean well...
  21. Gemini
    I have been using the chocolate chips and eating the squares since I was diagnosed with Celiac 11 years ago. The squares I have regularly because it is one of my safe, go-to treats. I mean, way more regularly than most people.....I am one of those skinny Celiac's. I have to not buy them and take a break because they are so good, if there is a bag in the...
  22. Gemini
    I have been eating the Ghirardelli squares and using their chocolate chips for YEARS and have never had any problems. I think the white chocolate chips are not gluten-free and I do not use those but all the rest are safe. I am extremely sensitive and if there were any gluten in them, from any of the 3 grains, I would not be this well. I recently had my...
  23. Gemini
    If you follow the gluten-free diet correctly, without being paranoid about it either......your DGP will drop because you won't be eating the food that makes it rise. I think having a gluten-free house is a great idea because it allows you to relax in your own home. As for reading labels all the time, I have a few comments on that one. In the beginning...
  24. Gemini
    If you have Type 1 diabetes, that will keep tTg slightly elevated. If you have just been diagnosed with Limited Schleroderma, then you could be having an autoimmune flare and that may cause elevated tTg. If you have refractory celiac, that tends to make people really sick because they never heal.....are you really sick? I ask because I have 4 autoimmune...
  25. Gemini
    I urge you to tell us what brand of shredded cheese had gluten in the anti-caking agent because you would be doing the Celiac world a big favor by keeping us safe in our food choices. It would also be good to list the ingredients on here so we could see for ourselves because I have never come across one in 11 years gluten free. That would be a first!
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