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sagemoon

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by sagemoon

  1. sagemoon
    I, too, found out via Enterolab that I have a casein intolerance. I did their test 10 months after going gluten-free but still suffering from joint pain, bloating and gas, and brain fog. Cutting out dairy cleared my head right up and the stomach and joint issues soon followed. Lactose intolerance supplements did zilch. (Side note: My doc suggested Beano...
  2. sagemoon
    You're right about the over eating, I must admit that. It seemed that once I knew I couldn't have any cookies and crackers and cake I was devastated, even though I never ate them to begin with. When I figured out the Gluten-free snacks, then I began to eat them, so I ate a lot of simple carbs that I would not have eaten before Gluten-free. I bake my own...
  3. sagemoon
    My Mom has tried to gluten me every time I visit. She just says "Eat around it!" It is very frustrating but I held my tongue the last time and ate only the baked sweet potato. She was insulted, but oh well, that was a lot better than what I wanted to say to her. I called my husband afterwards, all steamed, and he said to just calm down, that my mom lived...
  4. sagemoon
    Hi, Yep, I've put on 17 lbs since I went Gluten-free Jan '06. My gastro guy says it is normal since I am now properly absorbing my food, but it is very frustrating since I've battled my weight all of my life and was not in any obvious nutritional distress when I was untreated. I have hovered between 10-30 lbs overweight forever. Fortunately, or...
  5. sagemoon

    ARCHIVED Symptoms

    sagemoon replied to draeko's topic in Coping with Celiac Disease

    Hey Nora, Actually, I felt a lot better after going gluten-free for the first month, but just the stomach stuff. Then I got really sick for about a month, all of my previous symptoms were back with a vengeance. I figured out that it was SIBO (Small Intestinal Bacterial Overgrowth). I think it happened because I had lost a lot of my fiber in the...
  6. sagemoon
    I am also on Aciphex twice a day, although lately, I forget the second dose unless my stomach is acting 'iffy'. I also found that taking probitics every day helps immensely, and is most likely why I am forgetting my second dose of Aciphex. Plus George's Aloe Juice, it settles a sour stomach. It tastes like water, not bitter dirt like the other Aloe juices...
  7. sagemoon

    ARCHIVED Symptoms

    sagemoon replied to draeko's topic in Coping with Celiac Disease

    I have had all sorts of wierd symptoms as well, including a hot face, and just realized yesterday that a few more have gone to the wayside. I have been gluten free since January 2006, but have still been getting some hidden gluten as evidenced by a positve IgA a month ago, but it is a lot better than it was. One of my symptoms was the inability to have...
  8. sagemoon
    Very interesting. I went to the link on the fecal testing and there is a 'reply' tab on that page to read Dr. Fine's reply. My husband and I were just tested by Enterolab and believe the test is valid. Thanks for the investigative work, it is very helpful to hear as much as possible in this ever evolving issue.
  9. sagemoon
    Hey B, That's how I react to gluten, I barf all night long. It always starts with belching, sometimes days before, then it progesses to food regurgitation, painful belly gas, and then I blow chow to wee in the early morning. Sure hope you have a good gastro. Good luck on Wednesday. -
  10. sagemoon
    Hi Pam, I live right next to Silverdale. Central Market has the widest range of gluten-free and organic and exotic foods in the area, I go there only when I really need something (like snacks for a trip) and don't have the time to order online. They stock all of their gluten-free foods in the same aisles as the non-gluten-free foods, so you just...
  11. sagemoon
    I just sent my Enterolab 'stuff' yesterday. So I am hopeful that I see something within 3 weeks. My GI pooh poohed me on Celiac as well and the biopsy was normal, but I had gene testing via Kimball Labs last February and I have the Celiac gene. I also feel tons better after going gluten-free. I am going to Enterolab to corroborate allergy testing I did...
  12. sagemoon
    OHR refunded my money. I turned around and ordered a complete panel from Enterolab. I was only going to retest for the dairy and egg responses, but I spent last night heaving my guts out, so I am ordering the gluten tests as well to see if I have been glutened. I am so careful with what I eat, but today I am looking into other things that I did yesterday...
  13. sagemoon
    Thanks for your input, Joy. I hope eveyone who reads this bulletin board heeds our warning about OHR. Buyer Beware!! Oh, and the egg thing has me flummoxed as well. Not happy about it at all. Retesting elsewhere this week.
  14. sagemoon
    Hi All, This question is probably answered somewhere else, but after reading through a few threads, I'll just ask again. My IGG allergy test came back to say I am allergic to milk, yogurt, cottage cheese, whey and mozarella, but not to cheddar cheese. Since cheddar seems to me to be the same ingredients but with added rennet and then aged, does...
  15. sagemoon
    Hi All, I filed my complaint with the BBB on Wednesday last week, received an acknowledgment from them on Thursday that they had started to work on the case against OHR Labs and by Friday evening I had received an urgent email from OHR with my results attached. The document shows they received my test kit on June 28 and processed it Sep 5. They...
  16. sagemoon
    My Mom made dinner for me last week and hid the empty can for the gravy and the Swanson's chicken broth at the bottom of the garbage so that I wouldn't know.... I, of course, did some garbage diving and wound up eating a yam. You are very lucky to have a family that is trying hard to help you. Just take a breath and know that they will ease off once they...
  17. sagemoon
    I just filed a complaint against Optimum Health Resource Labs (York Labs) with the Better Business Bureau via their online website. I'll let you know what happens. Thanks for the support.
  18. sagemoon
    Hi Gamecreature, Welcome! I just read all of the above and want to add my 2 cents. I was diagnosed in January of this year after years of gas, acid reflux, all-nighter heaves, ADD and debilitating reactive arthritis. What an incredible relief it was to finally find out what my problem was and that it was as simple as eliminating a food! Now, that...
  19. sagemoon
    I was treated with the same dismissiveness as you are by your current doctor. That was in 2000, 2001, 2002, 2003, 2004, and 2005. After years of sickness I was diagnosed with Celiac in January 2006, only after I refused to leave the doctor's office until I was properly tested and then paid for my own gene testing as well. I suffered for 6 years because...
  20. sagemoon
    I have called and emailed repeatedly, all numbers and email addresses given on the website since the beginning of August. I get the answering machine or nothing at all via email. I know the email addresses are correct since I did get an automated 'office closed' answer when the hurricane went through their area. I reported this issue to Scott, just to...
  21. sagemoon
    Has anyone else had a problem with Optimum Health Resources Lab? I paid for and submitted my samples for the 96 food allergy test back in June and have never received my results nor can get any response from my queries.
  22. sagemoon
    Hi Dafadilly, There is also another wheat free soy sauce that is carried in many stores - San-J Organic Tamari Wheat-Free Soy Sauce. Look fo it in the specialty foods area if they don't carry it in the regular sauce section. Or ask your local grocer to carry it. I wrote to San-J this past winter because all of the local sushi restaurants only carried...
  23. sagemoon
    Hi Tom, It was my doctor that told me I couldn't possibly have Celiac. I had come upon it and thought AHA!, but accepted her answer. You may imagine my pique when I came upon it again years later and there was new info on it and it wasn't an impossiblity anymore. I do respect doctors and realize that they have so many patients and just so much time...
  24. sagemoon
    Hello! May I share my story? Just turned 50. (Freaky) 2000 - 2005 Suffered from arthritis, loss of mental focus and memory glitches, headaches, and fatigue for many years. Gassy, gassy girl. Could out belch any challengers. Started barfing to the point of dry heaves once a month or so after heavy carb eating. Loved, loved, loved pasta, bread...
  25. sagemoon
    I used Optimum in June and still do not have my results. Their test enclosure said it could be as long as 6 weeks, and that passed August 1. I would be tolerant of the delay if they would just respond and say that they are experiencing a huge influx of orders now, but I cannot get anyone to answer emails or phone messages. And I am being very polite and...
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