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kenlove

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Latest Celiac Disease News & Research:

Everything posted by kenlove

  1. kenlove
    I never liked the black licorice ones either but the clove ones are great. Their site lists all the flavors too!
  2. kenlove
    Received a roll of Necco wafers and visited their web site to see if I could still enjoy them. The question was in their FAQs Which Necco products are Gluten Free? We make the following products which do not contain gluten from wheat, rye, oats or barley: Necco Wafers, Mary Janes, Mary Jane Peanut Butter Kisses, Sweethearts Conversation Hearts...
  3. kenlove
    Hi, ,I tend to bring my own food to dinners too. Everyone who has celiac has different degrees of sensitivity. It could be your sister is extremely sensitive as I am. Last night at a friends I got sick because they had been making tenpura earlier and there was still flour in the air. Nothing else could have caused it. Cross contamination is a big issue for...
  4. kenlove
    Right, I didnt have any trouble after the hormone injections and going totally gluten free. The injections came about 2 months before diagnoses and in themselves helped a lot and I have no more testicular pain. I still have some problems, but was tested for lactose and a variety of other things which dont seem to be a problem. I eat way more cheese than...
  5. kenlove
    Yep, I did prior to diagnoses. When they ran some hormone checks they found I had no testosterone left and 2 other hormones that I forget. Two injections and a patch for a month helped but after they figured out celiac ( took 6 months), I was back to normal in no time. Might be a good idea to get your hormone levels checked. good luck Ken
  6. kenlove
    Hard for my wife but there can be no baking with flour in the house any more. I learned that a year ago. Just the stuff in the air even when she tried to mix the batter outside, layed me up for 3 days. I spent last xmas in bed because of it. Some celiac friends say i'm very sensitive but it has sure made a difference since we stopped all flour changed...
  7. kenlove
    Another thing to look at is the peanut butter. Some have modified food starch and/or Hydrolyzed vegetable protein/oil which can contain wheat. Some brands are ok and some not. Since what we get here in Hawaii is often different, I have to check the labels each time. It's a total lifestyle change with teh hardest part being finding something to eat/snack...
  8. kenlove
    Joe, I also lost most of my muscle -- so much so that I couldn't walk for a week and spent 2 months where I could only walk with a cane. They found that I had lost almost all of the testosterone and many other hormones. Once they figured that out I had a few injects over 2 weeks and feeling better although it wasn't till I was totally gluten-free that...
  9. kenlove
    Thanks much -- Good to know it works on someone. it seems to help my itching some but it does not help the healing so I get pretty bad scars on my arms and neck. thanks again
  10. kenlove
    Hi Joe, I have the same problem if I get too much sugar -- just goes though me. I was told it will take about 2 years for my small intestines to heal. Thanks to people on the form I learned to cut back on lettuce and other abrasive foods and am doing much better. Could be the cookies were not totally gluten-free or had something in the sprinkles or had...
  11. kenlove
    Try adding a banana or two which can sometimes have the same affect. Ken
  12. kenlove
    I was given Betamethasone Dipropionate .o5% ointment for my DH which seems to have little or no affect. Just wondered if anyone had experience with it. I've also used some Da'ok oil made from the Calophyllum inophyllum tree that I picked up in Guam. He seems to help clear up old soars better than anything I tried yet. Ken
  13. kenlove
    Thanks, just ordered the book on Amazon. I have to wonder how the modified wheats of the 60s have affected our health as well as wheat in general.
  14. kenlove
    The kitchen staff and executive chefs are usually very helpful getting around the buffet + you dont have to wait in line! I just hope you have a great trip. Ken
  15. kenlove
    Your right to be concerned about CC, it is a big issue here. Just a few weeks ago at a dinner they were making me special checked on a newly cleaned grill but then used the tongs that were sitting in the soy sauce laden chicken to turn it. At another dinner Sunday night I just didnt eat as watching people at the buffet use the same tongs to grap everything...
  16. kenlove
    Its a good question. I think in general people were much closer to their agricultural roots in the 50s. Growing up in the 50s were were the first generation to eat a lot of the additives, fast foods, tv dinners and such, at least in the US and in other countries affected by US agribusiness. In the 60s with the change in wheats it further removed us from the...
  17. kenlove
    I work with a lot of chefs in Hawaii although not on Maui. Make sure you let the executive chef and Sous chef at the Sheraton know too. Some chefs here do not realize that soy sauce, ponzu and terriyaki sauce that they use contains wheat. You can also tell them if they want more information they can contact the ACF (American Culinary Federation) in Kona...
  18. kenlove
    All of the comments show how important it is to keep celiac in the media. Having never heard of it until I got it,I was surprised at the numbers of people I know who do have it or have a relative who suffers. The more I read here the more I believe it's a disease caused by civilization if you will. Big Agribusiness with their changed wheats in the 60s...
  19. kenlove
    A lot I think. How long did it take them to diagnose you? Took them 6 months to figure me out including a few weeks of being treated for Parkinsons, three trips to the hospital and a host of other useless expensive tests. Finally my old doc in Chicago sent me a list of things for the doc here to do. That solved the problem. Ken
  20. kenlove
    Sure is too bad but i hope they understand once you explain. Sometimes even when I do explain to friends -- its "Ah come on -- one beer wont hurt you" Usually i reply no it wont, it will kill me. I started breaking out last night from dh which was not good as I had to do a segment on the ABC Honolulu morning show -- on avocados and some of teh research...
  21. kenlove
    Sure hope you can make it Joe. I didnt eat for 2 days when I had to go to an event last year. The diarrhea for me was not as bad as the dry heaves. My system rejected everything at times and I threw up 2 or 3 times a day for 6 months. Good luck! y
  22. kenlove
    I do miss the romain and other lettuce but I'l give it a try. Never cold eat much meat but since being diagnosed have had more than I had in the past 30 years. Beans have not given me any trouble. Other salads like carrot and gobo (burdock) are ok too. Guess it just takes more time to sort things out. thanks again Ken
  23. kenlove
    THanks again Ursa Major, As agriculture research I can appreciate the analogy. It is also good to know that there are reasons I have trouble with foods that are gluten free after 2 years. Celiac is not common in Hawaii which I guess its why it took them 6 months to figure out what was wrong with me. Take care
  24. kenlove
    Thanks much for posting this info. I had wondered why I felt like garbage after a salad for the past 2 years. The fruit does not seem to bother me but the greens sure do. My biopsy less than 2 years ago showed the vili were almost gone. I used to eat big salads for dinner each night which i've had to stop. Guess I still need to figure out foods I can eat...
  25. kenlove
    Hi Joe, I had to read your message twice to make sure it wasnt me that wrote it. Went through damn near the same thing a few years ago. I'm also 56 went from 260 to 220 which was ok except for the dry heaves and runs all day. My pants went from 42 to 36 but the stomach is bigger than ever and I get teased about a beer belly all the time. never was...
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