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kenlove

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Everything posted by kenlove

  1. kenlove
    List is a great idea--- I would add: night sweats or general sweating profusely dry heaves loss of muscle mass & hormones no appetite To the nerve problems I would add the shakes. I was treated for Parkinsons for 2 weeks before they figured out the celiac. Couldnt focus on my left leg it was shaking so much. Ken
  2. kenlove
    Sure is a problem for me. After diagnoses in 06, I cant stop eating. Before they figured it out, I had lost 40 pounds in 3 months, couldnt walk and host of other problems. Since then I gained back 60 pounds. Problem is I should have stayed at where I was when I lost the 40. Only I had lost muscle and not the fat. I Still cant eat the salads and other greens...
  3. kenlove
    My wife usually does this once a month where she teaches here in Hawaii. No celiacs in the class but a number of children with peanut and lactose problems. She often makes onigiri, Japanese rice balls. After you make rice, just add some vinegar and sugar to the rice, mix it well and form small triangles or small balls of the flavored rice. She usually...
  4. kenlove
    Its great you already got some good answers, Just wanted to say that for me inhaling flour, grain dust or anything with gluten gives me the abdomen pains. Can't even go into a kitchen until a day after something was breaded. Good uck ken
  5. kenlove
    Thanks for the post. I've read on the forum where others have had trouble with some of Amy's products. I'm very sensitive to darn near everything but have never had trouble with anything from Amy's marked gluten-free. Cant say the same about Bob's RM. I have Amy's gluten-free rice crust pizza 2 or 3 times a month and have not had a problem with it --...
  6. kenlove
    Hi, I wouldn't say we have to look at things on the molecular level but there are many ways you could suffer from cross contamination. There are a lot of variables too. I'm still extremely sensitive to any gluten after being diagnosed in 06. paying attention to the small details pays off in less problems and accidental glutenings. Our dishwasher no matter...
  7. kenlove
    I second nmw's comment. Cross contamination can be a major issue. My wife has pretty much given up on making anything with gluten although she will have her own noodles at time which she makes in her own pot and uses different spoons etc. If she makes them at the same time she will even put a barrier between the burners so no water splashes between the...
  8. kenlove
    Maybe you should print out all the replies here and get him to read them. Or, if you have a mutual friend that he will listen too, maybe that person can get some sense into him. good luck ken
  9. kenlove
    That was really a major issue for me before being diagnosed. So much so that for a few days I couldnt walk at all and most of the time had to use a cane. Didnt have the energy to drive either. In the course of being tested I found out that I lost a lot of various hormones and my testosterone level was .01 -- almost nil. Had 3 shots then patches which helped...
  10. kenlove
    I was off to Guam and wished it was Spanish, or Japanese or Hawaiian or English or even Chamorro. Never could figure out what they were saying.
  11. kenlove
    Sounds like the gluten free meal on Continental airlines -- with bagels dumped on top of the salad. The flour/flower thing will teach me to take my cards to ethnic restaurants -- even when around the corner!
  12. kenlove
    My family was always sharing foods from each others plates in and out of restaurants. That stopped for me when I was diagnosed. When I think back, we always did it, even as a child in the 50s. Meal time was for sharing more than just the days news. My mother always wanted me to try something she ordered or would push her left overs on my plate ( then complain...
  13. kenlove
    And it wasn't even an edible flower! ()
  14. kenlove
    Sounds like the waitress might have been trained here in Hawaii. My comical experience was when my wife wanted to go to a Thai place with me and as I had not checked the menu to see if there was anything besides rice I could have I tried to explain to the waiter that I could not have anything with flour so he took the flower off the table.. Had rice that...
  15. kenlove
    Hope you have a great trip. I can only help you in Tokyo I'm afraid. Just bring a few bottles of gluten-free soy sauce with you unless you can get someone to take you to a health food store. They have a quinoa soy sauce and sorghum soy sauce at many of them. There is a chain of restaurants called Be-good cafe (in English) which has some branches in...
  16. kenlove
    Ran across this gluten-free candy website Open Original Shared Link I guess its the same company as Open Original Shared Link where I usually order fig confections they get from europe like Open Original Shared Link fig salami with nuts and rum is really addicting! ken
  17. kenlove
    It's too bad you couldnt find places. Next time you go back, let us know and I'll send you some names of places that will prepare gluten-free meals and keep gluten-free soy sauce on hand. Ken
  18. kenlove
    wow, thats really strange. I've been gluten-free or going on 3 years after diagnoses and fruit is about the only thing I can eat without some reaction. After diagnoses that was all I could eat for a few weeks. Granted most of the fruit I have is rather strange tropical fruit since my job is researching it in Hawaii but while working in Ca. last fall i pigged...
  19. kenlove
    For me its usually 10 to 30 minutes, faster when I inhale something in the air than when i eat something that was supposedly gluten-free.
  20. kenlove
    Sending a note to the chef is a great idea. It should be on the list. Often they have to answer to the boss too. Chefs and owners, are always at each other over food costs. The letter might help the chef to justify keeping some gluten-free foods on hand. It would make it easier for the next one of us that happens into the place. I also think its why...
  21. kenlove
    This is getting to be a great list. I've asked to check things like corn starch in kitchen to see if it is 100%. Many chefs assume things like soy sauce are made only of soy so perhaps we need to add something like reading the fine print and knowing what we can and cannot tolerate. Soy sauce being mostly wheat etc. All those other chemical gluten...
  22. kenlove

    ARCHIVED Cordran Tape

    kenlove replied to kenlove's topic in Dermatitis Herpetiformis

    Thats Interesting, I use iodine when grafting some types of trees like macadamia nuts and usually get it on me but have never had dh from it. I do get symptoms even when I dont eat so we suspect its something to do with the plants I work with -- just cant figure out what. take care
  23. kenlove

    ARCHIVED Cordran Tape

    kenlove posted a topic in Dermatitis Herpetiformis

    Just wondered if anyone has experience with Cordran Tape (flurandrenolide) A dermatologist gave it to me last week to relieve some of the itching from DH but it seems to be causing it to spread. Have to wonder if there is gluten in the adhesive thats being absorbed in my skin. Any ideas? Ken
  24. kenlove
    I agree and thats the idea of doing this. It would be a full page menu with items made to order and feature a number of side options and specially prepared accompaniments. We've not got into the recipe stage, just the degree of what needs to be done. I don't want them to use the same gluten-free salad dressings like Amys and Drews that we might bring with...
  25. kenlove
    A friend of mine who is the executive chef at a resort hotel here in Kona would like to have a gluten free menu in a new restaurant planned for the hotel. In the future I might ask the forum to contribute recipe ideas for him but for now, I would like to know what members feel is important to include on the menu. Keeping in mind that this is a resort...
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