Susanna
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Latest Celiac Disease News & Research:
Everything posted by Susanna
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At our monthly staff meetings, the boss usually does this nice thing and orders some minor catering, like cake or a platter of cookies or brownies. Sad me had to skip the treats month after month. Then one day, I said to her, "Hey, you know lots of us are trying to eat healthier--could we get a fruit platter next time?" And she ordered it--we had lovely strawberries...
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Hey rsj--well, if the diet is working for you, I'd say stick with it. I'll give you some tips for that in a minute, but I'm concerned about your dry mouth symptom. Dry mouth can be a symptom of Sjogren's Syndrome--an autoimmune disorder that affects the moisture producing tissues. Other symptoms are dry mouth, dry eyes, fatigue, joint pain--if you have any...
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ARCHIVED Help! Thought I Go Over It
Susanna replied to jambo massive's topic in Coping with Celiac Disease
Wow, sorry you were so sick! Hope you're feeling better now. The other folks who are posting here are correct: celiac doesn't go away--it might take a while for the symptoms to catch up with you if you don't follow the gluten-free diet, but they most likely will catch up with you and inconvenience your life, but more importantly, if you keep assaulting your... -
Hey, Gonbad--sorry you've got so many frustrations with this celiac deal. Here's the thing: no one WANTS to have this disease, but IF you have it, it's important to know it, and get on the gluten free diet, and live it for the rest of your life, because whether or not you have noticeable symptoms, your gut is being damaged, and is constantly inflammed, and...
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ARCHIVED Craving A Candy Bar!
Susanna replied to LoveBeingATwin's topic in Coping with Celiac Disease
If you can tolerate chocolate and dairy--you have lots of options: Reeses peanut butter cup Hershey bar (with or without almonds) Baby Ruth Bar Snickers M&M's (plain, peanut, Butterfinger Milky Way Heath Dove Promises (my fave) fudge If you can't do chocolate and dairy: Divinity candy Starburst Skittles Most hard candies--read labels... -
I notice that the fewer grains (of any kind) I eat, the better I feel--I don't do a strick paleo diet, but I kinda follow it. For breakfast, I hard boil about a dozen eggs on the weekend, then during the week, I grab a couple of hard boiled eggs and a handful of cherry tomatoes for a super quick, no fuss breakfast. I also sometimes eat a handful of mixed...
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Brazlebride--you are most welcome. Yes, all Parkay products are gluten-free--their website says so--here's the link: Open Original Shared Link. Yes, it is sad when those around you eat stuff you can't have. I'm a nurse, and one day a patient's family brought in a huge basket of fresh bagels and spreads for the nurses. I looked at them and thought--that...
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Hey, Brazelbridge--here are my gluten-free newbie tips--now you can eat to treat, and soon feel better. Here are some key coping strategies to get you started. 1. Know that you will grieve your old favorite gluten-filled foods. I actually tear up when I see a brioche sometimes. Grieving is normal, BUT IT IS NOT EASY OR COMFORTABLE. People around you will...
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Hi--welcome to the boards. I know it feels a bit overwhelming at first, but trust this: you will figure this out, and you will adjust, and best of all---now you can eat to treat, and soon feel better. Here are some key coping strategies to get you started. If your town doesn't have a health food store, you might end up shopping on the Internet a bit. www...
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Hey, Mayray--gfp is right--you will be increasing your risk of small bowel cancer, diabetes, osteopenia, and a host of other bad-actor health problems that can have life-limiting consequences. Here are some ideas: Try Bard's Tale's Dragon's Gold beer. It's a sorghum based beer (very commonly, sorghum is used for beer making in some other countries). I...
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ARCHIVED I Would Never Have Known!
Susanna replied to emcmaster's topic in Coping with Celiac Disease
Hey, Ellizabeth--yeah, I bet it feels good to have a positive family history of celiac now validate you. I'm sure my celiac came from my mother--she has chronic digestive complaints, is hypothyroid, is short in stature, and has had breast cancer. I've told her all of these are associated with celiac disease, and they all run rampant in her family. But she... -
Hey, Andrew--sorry your wife's having such a tough time. I know another lady who got diagnosed right after having a baby. I think for many of us, our disease kicks into active mode and we get diagnosed after a stressful time in our lives--pregnancy is physiologically stressful. I got diagnosed after my husband died young and unexpectedly (car accident)--emotionally...
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Oh, Jodiegirl--I thought of one more idea: Low fat omelet: whisk together one whole egg, 2 egg whites, salt, pepper, maybe a little chopped chives and cook in an omelet skillet with just a teaspoon of butter or margarine. Fill the omelet with one slice of Veggie Singles soy cheese, which actually tastes pretty good and melts nicely, and fill with whatever...
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Hey--sorry your husband is having such a tough time. Here are some ideas: gluten-free noodles (Tinkyada pasta is the best), tossed with a little olive oil, a little Parmesean cheese, and those good Emeril Chicken sausages cut up and tossed in? Does your man tolerate onions? Sauteed onions tossed in would be good too. You could also toss the pasta with...
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Mariss--I'm trying to think of treats you could eat. What if you made rice pudding and used almond milk instead of cow milk? What if you got the angel cake mixes from Gluten Free Pantry (I bought them at www.amazon .com) and some you could make like regular angel food cake, and some you could sprinkle in carob powder to make it kind of chocolatey...
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So glad I could help! You go, girl! Susanna
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ARCHIVED New Diagnosis, Need Help
Susanna replied to beachitsue's topic in Coping with Celiac Disease
Hey, Beachitsue--I recommend "The gluten free bible" by Jax Peters, and "Celiac disease: the hidden epidemic" by Dr Peter Green. Here are my other newbie tips: 1. Know that you will grieve your old favorite gluten-filled foods. I actually tear up when I see a brioche sometimes. Grieving is normal (BUT IT IS NOT COMFORTABLE). People around... -
ARCHIVED New And Need Some Guidance
Susanna replied to Ary's Mama's topic in Coping with Celiac Disease
Hey, Adina--My son (11 yrs old) and I got diagnosed as celiac a year ago. I'm finding the best places to shop are the health food stores. In Phoenix area, we have Whole Foods, Trader Joes, and Sprouts. Sprouts is the best, in my opinion, for offering lots of gluten-free alternative foods (crackers, cookie mixes, cake mixes, bread mixes, etc.) Here are some... -
Hey, Courtlynn--Sorry you're having a tough time. I've been a nurse for >20 yrs, and I can tell you that once a bowel gets messed up (sick, injured, infected, inflamed, whatever), it takes a LONG time to correct, even with correct treatment. So, stick with the gluten-free diet, but understand that it may take MONTHS, depending on how damaged your gut was...
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Hey, Marisa--yeah, I'm from Flagstaff (Go Lumberjacks!!)--where do you live? I know you're probably feeling kind of overwhelmed right now, but we humans are incredibly good at adaptation and you'll be amazed how much easier this all seems in a few months. Here's your chance to practice patience. Good luck. NoGluGirl--yes, the Zone Bars I mentioned are...
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MarisaB--sorry you're having such a tough time! It is tough in the beginning, and it sounds like you are still finding out about additional food allergies. If things don't settle down soon, you might have to consider an addition diet--this is pretty drastic, but it does help you pinpoint what you can and can't tolerate. You would just eat one food, like rice...
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Hey, Walter--sorry about your double diagnosis. The good new about your celiac diagnosis though, is that the cure is in the food--no meds, no surgery--you can eat to treat, and soon feel better. Here are some key coping strategies to get you started. 1. Know that you will grieve your old favorite gluten-filled foods. You will probably grieve a lot at...
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Hey--yeah, it is hard to get started on the gluten-free life, but SO worth it when you notice how much better you feel. Here are my gluten-free newbie tips--how you get started to eat to treat, and soon feel better. Here are some key coping strategies to get you started. 1. Know that you will grieve your old favorite gluten-filled foods. I actually tear...
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ARCHIVED Pavlova - Best Dessert Ever
Susanna replied to a topic in Gluten-Free Recipes & Cooking Tips
I had pavlova years ago when I traveled to New Zealand--fabulous!! Thanks for the reminder--I will make one post haste. Give Anheiser-Busch's new gluten-free beer called Redbridge a try--it is now starting to be stocked in regular grocery stores (although admittedly, I've only found it at Sprouts so far--but ask your grocer about stocking it). It's not... -
ARCHIVED Help! Hospital Food
Susanna replied to cdfiance's topic in Parents, Friends and Loved Ones of Celiacs
Ryan--so sorry you and your daughter are going through this. I'm celiac, as is my 11year old son. Also, I'm a 20+ year nurse in an acute hospital, and I agree--hospitals have not covered the issue of providing gluten-free diet properly for patients. So, you're doing the right thing by bringing in your own food for your child. At my hospital, I'm seeing...