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Susanna

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Everything posted by Susanna

  1. Susanna
    Hey, angel42--oh, yeah--that first gluten-free birthday was tough. My husband took me to a really nice restaurant, and we talked with the chef ahead of time, and she came up with a fantastic, beautiful, delicious piece-of-art-looking dessert just for me (fruit, meringue, whipped cream, drizzled with chocolate sauce and served on a beautiful crystal plate...
  2. Susanna

    ARCHIVED Need Help

    Susanna replied to Jenny1972's topic in Coping with Celiac Disease

    Jenny--what a rough time! I'm so sorry you're having to go through it. I say, if the gluten-free diet was working for you at least initially, stick with it and I would NOT agree to gluten challenge in order to get a biopsy. What about Enterolab? Lots of people who post on these boards have used Enterolab and gotten diagnosed that way. I think you can mail...
  3. Susanna
    Kelly--Know that many here never get a firm diagnosis. Celiac is a difficult disease to diagnose. We celiacs present with a crazy array of symptoms, and the available tests aren't foolproof. So, many folks you'll read on these boards finally just commit to the gluten-free diet, and viola!--feel better. If you are going to give it a go, I recommend you commit...
  4. Susanna
    OK, here are mine: This one is super quick and easy, and a family please: Enchilada Casserole 15 corn tortillas torn into large pieces 2 cups cooked, cubed chicken (VEGETARIAN OPTION: substitute 2 cups of rinsed, drained black beans) 2 cups shredded cheese (monterrey jack, or mexican blend, or cheddar) 1 28 oz can enchilada sauce (I use La Victoria...
  5. Susanna
    Those vans gluten-free waffles are great! I use them for pb & j sandwiches, cold cut sandwiches, etc. My 11 year old celiac son loves them, too.
  6. Susanna
    Welcome, Tat000z--You have a diagnosis--halleluia--now you can eat to treat, and soon feel better. Here are some key coping strategies to get you started. 1. Know that you will grieve your old favorite gluten-filled foods. I actually tear up when I see a brioche sometimes. Grieving is normal. People around you will eat treats you can't have and you will...
  7. Susanna
    You are all so smart and creative! Suzie gluten-free Family--the menu ordering idea is sheer genius. Here are my tips (I have an 11year old celiac son, and 5 non-celiac kids) 1. Kids like control, so let them pick what goes in their lunch. I tell them that to build the perfect lunch, they must include: --One protein, like beef jerkey (read labels...
  8. Susanna
    Breakfast ideas: I hardboil about a dozen eggs at a time, and just always have them in the fridge for a quick, no fuss breakfast (or anytime snack). a couple of hard boiled eggs, and some sliced tomatoes--yum Almond butter spread on gluten-free bread or rice cakes, and with raisins sprinkled on top is tasty. Beef jerky and a piece of fruit (but...
  9. Susanna
    Hey, runner girl--welcome to the boards! Sorry you are celiac, but since you are, I'm glad you know about it so you can live gluten-free and maximize your health. Yes, marshmallows are generally gluten-free--I have never found any that have gluten, but of course you ALWAYS have to read labels to be sure. Yesterday was my one-year anniversary of...
  10. Susanna
    Hi, All--Yes, there is a lot of misinformation out there. I met with my hosp. dietician just 2 weeks after I was diagnosed, and I'd already read enough on celiac to know more about the diet than she did. And don't even get me started on how huge my understanding of celiac is compared to my gastroenterologist's. I talked to a dear friend about this--she happens...
  11. Susanna
    Tiffany--I'm not a teenage girl, but I was one once, and I have jr high and high school daughters now. It is such a tough time--wanting to fit in with your friends, and feeling less close to your parents. Know this: you will never in your life be as much under the microscope and be scrutinized by other girls as much as you are when you're in jr high and high...
  12. Susanna
    Emily--good for you for doing a thorough gluten check at your house--while you're at it, don't forget to think about envelopes (don't lick them--envelope paste has gluten), and if you go to church: communion wafers. Have your husband try gluten free Dragon's Gold beer by Bard's Tale--I found it at Whole Foods Market--it's pricey, but my husband (a non...
  13. Susanna
    I doubt the birth control pills have gluten, but the only way to be positive is to call the manufacturer and ask. You could get your local pharmacist to help you--go to the pharmacy where you buy your birth control pills at a time when they're not that busy, and ask the pharmacist to call and ask for you. About the Nuva ring--I use it and I LOVE it-...
  14. Susanna
    Greg--here are some instant gluten-free snacks that require no or minimal cooking: Baby Ruth Bars (and Snickers, and Hershey with almonds, and Reeses peanut butter cups, and Heath Bars, etc.) Most macaroon cookies Most meringue cookies Rice cake with peanut butter Trail mix Fresh fruit Dried fruit String cheese Salami Some beef jerkey (read labels...
  15. Susanna
    Girl, I hear ya. It is definitely disturbing to think of your body being invaded by these procedures. However: it. must. be. done. No on WANTS to have a colonoscopy--it's just a fact that you need it. If it makes you feel any better, know that you probably won't remember any part of it. It's one day (not even a whole day) out of your life that will yield...
  16. Susanna
    Good news--Progresso Cream of Mushroom soup is gluten free--I use it a lot and love it. Actually, many Progresso soups are gluten-free--but of course not the noodle or barley varieties, and not the tomato basil, but I've had the lentil and some of the vegetable ones, and they're good--I've had no problems. And these you can find in the regular grocery store...
  17. Susanna
    Trader Joes has lots of great food that is naturally gluten free and just healthy in general. However, they don't have specific gluten-free specialty products, and they don't have a separate gluten-free section. I still love them, because they have lots of great rices and sauces and fresh produce, etc., plus they are comparable in price to the regular grocery...
  18. Susanna
    Hey, Canadiangirl--so sorry you had a negative experience--I think there are many churches out there that are very understanding and willing to work with you. You did the right thing to protect yourself, and just take the wine. Most of the Protestand churches I've been to have been very flexible on this subject. I was raised Catholic, and they do seem...
  19. Susanna
    Hey, Gwendolene--Lutherans have no trouble accepting substitue wafers for communion (at least, my church is cool with it). My pastor was able to order rice communication wafers for me and my son after we got diagnosed last year. Interestingly, as soon as he got these rice wafers and started using them (he has a different platter for the gluten-free wafers...
  20. Susanna
    Hey, jlynn--that time just after diagnosis, but before you figure out what to eat is SO hard! Going around hungry is the worst!! And so lonely-feeling. Hang in there. If you're nauseous--your gut will probably need some time to settle down. During this time, I recommend you keep your diet simple--eat things that are of course gluten-free, but also that...
  21. Susanna
    Hey, akjenny--good news for us: lots of candy is gluten-free: Baby Ruth, Snickers, Reeses peanut butter cups, Hershey kisses, milk and dark chocolate in general (beware of varieties that have cookie crumbs), Butterfingers, Starburst, Skittles, Hot Tamales, Payday, and the list goes on and on. Valentines Day is coming up--so you might wanna call your favorite...
  22. Susanna
    Hi Jesse--It IS so hard in the beginning--missing all our favorite foods, feeling left out at work parties and social occasions because we can't eat the regular food. It sucks. We go through an actual grieving process as we adjust to our new diet. I was shocked when I got diagnosed--then I was HUNGRY, because I didn't know what to eat--VERY LONELY AND ISOLATING...
  23. Susanna
    The only thing plaguing me right now is my nose. It gets stuffy when I lie down at night. But I suspect I've still got something in my diet causing problems. *sigh* Life is good!
  24. Susanna
    I try to be healthy by 1. making good dietary choices (just because it's gluten-free doesn't mean it's necessarily good for me) 2. exercising at least 4X/week and ALWAYS taking the stairs at work, rather than the elevator 3. my DH and I sit and have a glass of red wine most evenings before bedtime. Studies have found that people who do this are healthier...
  25. Susanna
    Hi--It IS so hard in the beginning--missing all our favorite foods, feeling left out at work parties and social occasions because we can't eat the regular food. It sucks. We go through an actual grieving process as we adjust to our new diet. But. It. Gets. Better. I promise. One thing that REALLY helped me in the beginning was to figure out a...
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