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pwalasik

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by pwalasik

  1. pwalasik
    Hi Just met someone today who's son was diagnosed with Celiac and his only symptom was alopecia. You could have a genetic HLA typing blood test (usually covered by insurance companies if there is a 1st degree relative with celiac- please check). If she doesn't carry the gen then no problem but if she does then I would follow annually with blood tests and...
  2. pwalasik
    I am so glad you brought up the "grape" artificial coloring. My daughter, who has Celiac has suffered on and off with green poop for years, she is now 10. When talking to my mother-in-law a few years ago, she mentioned to me that my husband had green poop as a child after eating anything with artificial grape flavoring (jelly, jam, kool-aid, grape flavored...
  3. pwalasik
    Hi- Could you possibly get the bloodwork order and for about 6-8 weeks eat barley and rye every day with the hopes of getting enough gluten in your system to triger a response? Then you could go to a lab for the blood work. Take Care
  4. pwalasik
    I had an endoscopy today. The impression says..... Subtle scalloping of the duodenal folds noted. Multiple cold biopsies were obtained. Evidence of nonerosive gastritis of the antrum. The mucosa appeared erythermatous. Multiple random cold biopsies were obtained from the antrum and the body of the stomach. The esophagus appeared normal. I was diagnosed...
  5. pwalasik
    Maryland Cel-Kids & the Baltimore Area Celiac Support Group present: Eating Gluten-Free at School and at College Sunday, April 13, 2008 ...
  6. pwalasik
    Hello, I think the school nurse may be a wonderful resource. My daughter who has Celiac Disease (no official medical paperwork on file either, other than info that I have provided on emergency cards) has difficulty regulating her blood sugar levels. Extreme highs and extreme lows. Needless to say, she can not go too long without a snack, specifically protein...
  7. pwalasik
    The same thing happened to my now 9 year old daughter. Can't believe I didn't even think about Celiac as a possible cause. She did have a few cavities so I just chalked it up to bad genes. We have very soft, easily decayed teeth, regardless of care. However, our dentist just cleaned them very well and was able to temporarily whiten them. As long as we go...
  8. pwalasik
    Hi, After reading your thread, I instantly thought diabetes. Since both Celiac and Diabetes are autoimmune disorders and often occur simultaneously in individuals, I would mention to the Dr. ASAP and pursue testing. Good Luck
  9. pwalasik
    That is wonderful!!!!! Keep up the good work. Does anyone know what number is considered to be elevated? Thank you-
  10. pwalasik
    I am sorry to hear that you are going through this difficult situation. When my daughter needed to pack on the pounds, a dietician recommended spreading high fat butter or olive oil on everything, like gluten-free pasta's toast, crackers before feediing it to her. I understand dairy is an issue so I guess olive oil would be a better option. Are...
  11. pwalasik
    What are the genes that indicate gluten sensitivity versus the genes that indicate possible predisposition for Celiac Disease? Thank you for any information regarding genes/ HLA typing.
  12. pwalasik
    Hello, As far as bread is concerned, I haven't found any brand that is similar to the wheat versions, as far as texture, consistency and taste is concerned. However, my whole family and all of the neighbors kids love Mission corn wraps when browned/sauteed in cooking spray (PAM) approx. 1 minute each side and then lightly salted. We fill them with ham,...
  13. pwalasik
    Any Fresh Fruit Apples and caramel dip Any Fresh Vegetable Jello/ or Jello jigglers Pudding (Jello and Kraft brands list contents) You can buy the containers that come in 12 packs gluten-free Yogurt cheese popcorn (not sure how you feel about this with their age) Fruit snacks or Fruit Roll ups (otherwise known as fruit gummies, make sure they are...
  14. pwalasik
    Hello and Welcome, My eight year old has been looking for others to talk to for years but I wouldn't let her explore the teenage only section. She is 8 but VERY mature and VERY knowlegeable on the topic. She has been gluten-free since she was 18 months old. She knows a lot about gluten-free and life. She even educates me about gluten-free issues often...
  15. pwalasik
    I read in a magazine where a lady who was getting married gave several bags of a mix called yellow moist cake from "Cause your Special" and her baker made her entire wedding cake gluten free. All of the guest enjoyed the cake. I have used this mix before and think it's wonderful. Congratulations! By the way.. Cause your special is either out of Wisconsin...
  16. pwalasik
    My daughter has the exact same symptoms when she goes too long without food or eats too many sweets without protein. She acted like this recently about 2 hours after cake and candy from the pinata at a birthday party. She hadn't eaten anything substantial since lunch. She is now 7. We have never done an official glycemic diagnosis but I just keep her food...
  17. pwalasik
    Hi, I'm Amanda and wonder if you have any suggestions for Gluten Free and Dairy Free lunches. I'm getting bored with my options. Thanks! Amanda
  18. pwalasik
    My 2nd child, as well as other people who have Celiac Disease, present with constipation versus diarehea. My 1st child had diarehea, so yes the symptoms can be very different from child to child. Good luck, my thought is that all family members should be tested and genetic testing is a good option too.
  19. pwalasik
    I am so sorry you are going through this whole experience and guessing game. I too went through all of these tests with my daughter, (false negative blood tests, Cystic Fibrosis tests and many others like a 72 hour fat absorbtion test to see if the pancrease was functioning normally). TRUST ME!!! False negatives are VERY common in young children. When my...
  20. pwalasik
    Hi PW, First of all, remember you have been through a lot, medically speaking, and feeling good/ motivated may take awhile physically & emotionally. Maybe you should try going back on your medication. Possibly a combined med/ therapy, may prove to be most effective. I am sorry you are having a problem with motivation. Maybe it is unrealed to celiac...
  21. pwalasik
    Hi Deb, I agree with what everyone else posted regarding GER or GERD. Just wanted to fill you in on my personal experience with this topic as another option. My daughter (who has Celiac) had this same problem, until her tonsils were removed. Basically, they were so large, they obstructed her airway, making it difficult for food to travel to her esophagus...
  22. pwalasik
    I hope your daughter does not have CF. I also went through the sweat test with my daughter and it is a nerve wrecking few days waiting for the results. Unfortunately biopsies or even blood tests can't be deifinitive, especially in children. Sometimes as parents we have to go with our instict despite medical advice. How does your daughter do on a gluten-free...
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