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Rogol72

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Everything posted by Rogol72

  1. Rogol72
    @suek54, If it's of any interest to you, medichecks in the UK do private blood testing if you can't get them through the NHS ... https://www.medichecks.com/. I've been researching into nutrigenomics and genetic testing relating to nutritional status. For example ... "The PEMT (phosphatidylethanolamine N-methyltransferase) gene plays a significant...
  2. Rogol72
    Yes, that was my experience. I was diagnosed about 15 years ago, was on azathioprine for uc at the time. It took me many attempts to get off it, probably 10 or 15. It wasn't until I basically went on the AIP diet for a while that things got better. I got sucked into the gluten free alternatives rabbit hole ... eating gluten free breads, pastas and biscuits...
  3. Rogol72
    From what I've read in the medical studies, the TTG3 antibodies in the skin that cause the itch and blisters in dermatitis herpetiformis takes longer to dissipate over time than the TTG2 antibodies involved in the small intestine. I would also consider testing your Coeliac antibodies on a regular basis to see if they are coming down. Regular cheese of any...
  4. Rogol72
    I'm not poly-autoimmune but I do have Ulcerative Colitis, it was moderate to severe. I'm in remission for a long time, but have to be careful. I was told never to take an NSAID as they could induce a UC flare, and that I would accumulate more autoimmune diseases over time, but so far, only UC and Coeliac Disease/dermatitis herpetiformis. I've never taken...
  5. Rogol72
    Hey @suek54, I also have Dermatitis Herpetiformis. I used to be on Dapsone but have managed to wean myself off it after many attempts. It's quiet a toxic drug, as it affects the bone marrow and red blood cells. It also artificially reduces Hemoglobin A1C. Mine was at 21 at one stage, I think normal is around 37. With dermatitis herpetiformis, you need...
  6. Rogol72
    I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
  7. Rogol72
    @HAUS, I was at an event in the UK a few years back. I remember ringing the restaurant ahead to inquire about the gluten free options. All I wanted was a few gluten free sandwiches, which they provided and they were delicious. The gluten-free bread they used was Warbutons white bread and I remember mentioning it on this site before. No harm in trying...
  8. Rogol72
    At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
  9. Rogol72
    Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they...
  10. Rogol72
    I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
  11. Rogol72
    @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough...
  12. Rogol72
    Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm...
  13. Rogol72
    I also take Paracetamol. I haven't taken an NSAID in years since being diagnosed with UC. The can cause UC flares.
  14. Rogol72
    Folks, Does anyone know statistically, how common Thyroid issues occur in Coeliacs? Hypothyroidism, subclinical hypothyroidism and Hashimoto's. Thanks in advance.
  15. Rogol72
    A friend of mine is in the bar trade most of his life and has never heard of lines being mixed for different type of beers and ciders. Better to stick with cans.
  16. Rogol72
    I've never had an issue this side of the pond. If I'm out I drink Bulmers Cider. Sometimes draft and sometimes bottled. The draft cider lines are for Cider only.
  17. Rogol72
    @Celiacpartner, I agree with Scott. We have a food festival yearly in the town I live in, with artisan food stalls everywhere. I spoke to the owner of one of the artisan burger stalls, enquiring if the burgers were gluten-free when I said I was Coeliac ... he said he had a serious anaphylactic allergy to fish himself. He possibly carries an epi-pen or...
  18. Rogol72
    I can confirm this. I no longer have any issues with Iodine since being strictly gluten and dairy free.
  19. Rogol72
    Hey @annamarie6655, I think we've all glutened ourselves during the learning process of what it takes to be truly gluten free. Don't be hard on yourself. You're not glutening yourself purposefully ... it takes time to figure it all out. You should stand up for yourself and advocate for yourself at all times. The family dynamic can be very difficult...
  20. Rogol72
    I'm afraid not. Try the Atly app free trial ... or blog posts by gluten free travellers.
  21. Rogol72
    @Theresa C, I was in Italy last year for a family wedding. There were several Coeliac's on the guest list including myself. Never had any issues both days and the second day was a pizza party. The gluten-free pizza was excellent. Italy is one of the best countries in Europe for Coeliacs. The Coeliac Society of Italy have regional offices and branches...
  22. Rogol72
    Wow! I'd be interested to know where you get the tinctures. You can DM me if you wish. There's a Spanish company ... hifasdaterra ... who make high quality medicinal mushrooms in capsule form.
  23. Rogol72
    We've got plenty Tiernan's over here across the Irish Sea! I think anything will irritate an open wound in the skin. My dermatologist suggested Aveno moisturiser and E45 Emollient shower cream when she thought it was Eczema. I'm sure they will help during a dermatitis herpetiformis outbreak, or be the least irritating. Rinsing off after exercise should...
  24. Rogol72
    Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back...
  25. Rogol72
    @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains.
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