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Rogol72

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Rogol72

  1. Rogol72
    I had a Fanta Orange in a pub for the first time in years this summer. I reacted to it, skin started itchnig. Don't know what the offending ingredient was and haven't bothered to investigate.
  2. Rogol72
    @Arietti, I wasn't aware that NSAIDS are linked to DH but it wouldn't surprise me, since upon my UC diagnosis my gastroenterologist said to avoid NSAIDS as they can cause UC flares. It was a sudden ichty eruption of what appeared to be eczema on my back, which was biopsied when steroid creams didn't clear it up. No idea how many biopsies, but probably...
  3. Rogol72
    @Arietti, My celiac disease diagnosis was by skin biopsy for DH. I get it on my elbows pretty bad if I'm not careful, on the knees, backs of the knees and hips. I'm trying to figure out what my threshold for iodine consumption is since we need it for thyroid, and coeliacs are prone to thyroid disease! I know my triggers, I thought it was the teabags...
  4. Rogol72
    Hey @LaLeoLoca, sounds like you're having a really tough time. I saw you're previous posts and see that you have UC. I empathise with you cause I also have UC, in remission for years thankfully. Personally, anytime I tried juicing it didn't sit well with my stomach, but I was an undiagnosed Coeliac at the time. Juicing can raise blood sugar which is not good...
  5. Rogol72
    Hi @MiriamW, I've had UC since ’02 caused by C.Diff. It’s been in remission for years. UC later led to celiac disease/DH. I did the juicing thing for a while before celiac disease/DH diagnosis. Maybe I’ll get back to it sometime. I’ve looked at Steven Gundry’s stuff on youtube. I like his ideas on plant lectins which I avoid. I’ve never tried quercetin, ...
  6. Rogol72
    Thanks for that tip @MiriamW, much appreciated. I have DH, the skin version of Coeliac Disease but my gut and brain also take a beating from it!! At the moment, I only eat sweet potatoes most days as I'm mostly on the AIP diet (for UC also) which excludes nightshade vegetables. I try potato once or twice a year, but too many and my stomach is sore the next...
  7. Rogol72
    @MiriamW, If you wish to geek out on nutrition, allergies and all things Coeliac related, check out Dr. Robert Pastore's podcast. He's a Phd Clinical Nutritionist who's worked with some top Coeliac experts in the US. I've found some of the topics very educational. He's a Coeliac with DH and a severe dairy allergy. Here's an episode on Lactose Intolerance...
  8. Rogol72
    I hear ya @MiriamW. As I understand it, gluteomorphins and casomorphins result from the breakdown of gluten and dairy proteins in the gut. They both have an opioid like affect on our brains, that's why bread and cheese are so addictive! So I do believe they apply to sheep's and goats products also. Maybe @knitty kitty who is more knowledgeable about microbiology...
  9. Rogol72
    I’m 12 years on this journey @MiriamW. Some things are easy to deal with, others not so much. We persevere though! It’s the casomorphins in dairy that make it so addictive. And it’s highly inflammatory. You might benefit from the AIP diet for a while to heal your stomach. Knitty kitty is a big advocate of AIP and I agree, it helps to stop the reactions and h...
  10. Rogol72
    @MiriamW, I can't tolerate dairy ... and stay away from it, though I fall off the wagon occasionally! It gives me brain fog (histamine), gurgling stomach and my skin starts itching. At present I follow the AIP diet 80-90% of the time. Just fruit and vegetables ... the freshest meat, lambs liver, poultry and fish possible ... and I'm making progress fixing...
  11. Rogol72
    No problem @MiriamW. The Warburton's bread seems to have less ingredients likely to cause issues ... https://www.warburtonsglutenfree.com/products/supermarkets/white-loaf Regarding thinning hair, I've read that deficiencies in Zinc, Selenium and Iron can cause this. I've always had thick hair, but many years ago I noticed it going thin (at the Barber...
  12. Rogol72
    You're welcome @cristiana, really nice pub/restaurant. A good find so had to share.
  13. Rogol72
    Getting a little off topic here but I'll share anyway. I don't eat gluten-free bread any more, but I attended a wake for a friend in the UK this time last year. A day trip from Cork to Heathrow and back. The staff at the pub/restaurant were incredible, it was a bufffet/finger food. I contacted management prior and made it known I was a sensitive Coeliac....
  14. Rogol72
    I don't envy you @Charliexxx doing the gluten challenge. Hope you get through it. Good to see that you're still smiling!! If I had to do the gluten challenge, it would feel like I've eaten a bowl of broken glass, literally ... or my intestines were used in a tug of war. I'm curious what was the private test you used to test your copper levels? Is it...
  15. Rogol72
    Went back to the optician to get me reading glasses, we discussed Blepharitis again ... he said it's caused by a bacteria imbalance in the eyelids. He said it's just a matter of managing it carefully. I'm wondering if a good probiotic would help correct that bacterial imbalance?
  16. Rogol72
    I agree 100%. I keep a food diary most of the time ... I use the Reflection app on my Macbook.
  17. Rogol72
    @Wheatwacked, I assume the Celiac Risk column refers to the risk of deficiency in untreated Coeliac Disease?
  18. Rogol72
    Dermatitis Herpetiformis is an absolute unbearable itch, so much so that you will scratch the itch down to the bone. Nothing will ease the itch except for Dapsone and/or a strict gluten free diet depending on how bad it is. It may be worth getting a second option from another dermatologist. It does not sound like DH, but if it is ... a definitive diagnosis...
  19. Rogol72
    @itarachiu, Good news that you are doing so well! Adding a low dose Iron Bisglycinate supplement (with the approval of my GP) has made a big difference to my histamine intolerance. Iron Bisglycinate is easy on the stomach. Regular black tea which is fermented causes a noticeable histamine increase when I consume it.
  20. Rogol72
    I think we focus on getting the main minerals like Magnesium, Zinc Iron and Calcium and tend to forget about the trace minerals which are just as important, especially Selenium. I know I do!!
  21. Rogol72
    This is very interesting. So what is the therapeutic dose of Niacin to correct a deficiency or a subclinical deficiency? Is it a case that the cells need to be saturated with Niacin to be of significant benefit as is the case with Thiamine? Is there a helper mineral or nutrient that helps Niacin to do it's thing similar to Thiamine and Magnesium?
  22. Rogol72
    Based on my experience with DH, it occurs on both sides of the body at pressure points on the skin ... so the elbows, knees, hips from clothing etc. The blisters cluster together and are clear and watery. I initially had what was thought to be eczema on my back which didn't respond to steroid cream. It was biopsied and came back positive for DH. The symmetrical...
  23. Rogol72
    That's hillarious ... into the cheese barrel!! It was last Thursday I had the Eye test, which are healthy. The Optometrist recommended fish oil for Blepharitis. So I had one capsule of Wiley's Wild Atlantic Fish Oil Minis after my lunch with added gluten-free fresh mashed potato as a treat (Potato (90%), Milk, Butter (Milk), Salt, White Pepper) ... and oh...
  24. Rogol72
    Thanks. It's pretty mild though annoying. I think every "itis" in the body has some connection back to Coeliac Disease!! While I am dairy free for the most part, I fall off the wagon every now and then and gobble a half block of cheddar cheese!! I think this is dairy related, and I will conquer it!
  25. Rogol72
    Folks, Just had my eyes tested today, pretty thorough test to be honest which impressed me. Went to an independent optician instead of Specsavers! I've got Blepharitis ... so I was wondering if anyone here has had Blepharitis (blocked oil glands in the eyelids) and how they overcame it? The treatment prescribed is eye drops for dry eyes and one of those...
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