angel-jd1

Country Time Lemonades are gluten-free.

Last time I checked with Minute Maid everything was fine, but it has probably been a year since I checked. Maybe someone has some more current info.

-Jessica

OUCH reading this hurts my eyes...can you change the font size it's very very small!!

gluten-free Doc has posted some good asian recipes in our recipe section. She posted Egg Rolls and Kung Pow Chicken and some others..you can find them here:

Open Original Shared Link

I found this article while looking at the Clan Thompson site. I had no idea that Celiacs HAD brain lesions. Do we ALL have them? Does anyone know more on this subject? Maybe I am just reading the article wrong, help me understand. Here is the article I found:

Open Original Shared Link

QUESTION: I have heard that the brain lesions between MS and celiac disease are identical but I've been unable to locate any info on this. Can you help? ?

DR. RUDERT: Neurologic disorders may be associated with Celiac Disease: The majority are uncommon except for migraine headaches. It is thought that at least 4% of migraine headache sufferers are undiagnosed celiacs.

The brain lesions in cerebellar ataxia, which can be seen with Celiac Disease are identical to MS. Both involve "white matter" changes. The NIH in Bethesda, Maryland is looking to enroll patients with cerebellar ataxia. Ataxia is diagnosed in a patient who has difficulty walking a straight line. They are screened for celiac and regardless of the results are placed on a gluten-free diet and monitored. The Nurse Coordinator can be reached at 1-301-435-8518, or call Barbara Kimber at 1-301-496-0600.

An article you may find of benefit: Ghezzi, A., Zaffaroni, M.: "Neurological Manifestations of Gastrointestinal Disorders, with Particular Reference to the Differential Diagnosis of MS", Neurol Sci 2001; 22 Suppl 2:S 117-122. Also, Pengirna, T.C., Wills, A., Holmes, G.: "Neurological Complications of Coeliac Disease", Postgraduate Medical Journal 2002; 78(921): 393-398.

What kind of tests are you planning on getting for your little one? If you are planning on the blood pannel, the baby will have to be on gluten to have accurate test results.

You might want to push to at least get the blood drawn while he is still on gluten.

Turn into a "psycho mom" if you have to. Rant and rave at the doctors. MAKE them hear you. You are the only person who can be an advocate for that little one. He is depending on you to help him get better!!

Best of luck!!

-Jessica

FYI, in Italy, they test EVERY child at age six for celiac disease...none of this ignorant nonsense that goes on in the US.

All I have to say is AMEN!!! I sure wish they would do that here in the U.S. then we wouldn't see people suffering for 10,20,30, and 40 years with pain!! I remember reading that fact when I was first diagnosed and being astonished, hard to believe one country can be so ontop of it, and another has no clue what the disease is about!!

-Jessica

I made this again the other day. Made a Ham and pineapple pizza was SOOOO good.

I used regular sauce, but then also added a little bbq sauce (sweet baby ray's) for some extra kick. It was AWESOME!!!

-Jessica

I was just curious if anyone was planning on attending the CSA conference. It is in Oklahoma City, OK this year. It is not terribly far from me, and I am thinking about going.

I was just kind of wanting to know if anyone else was going, and also for those who have been to one before maybe you can share some information as to what goes on there. The website doesn't have much information on it yet. I was curious if it was worth the time to go.

-Jessica

The 27th Annual CSA Conference - October 21-24, 2004

27th Annual CSA Conference

Open Original Shared Link

Conference Objectives:

This conference will enable attendees to:

Appreciate patient-centered education and promote self-management of celiac disease and dermatitis herpetiformis

Develop and enhance life-long skills in areas like coping with change, stress-relief, personal goal-setting, etc.

Gain new knowledge of the increase of incidence, and the complexities of symptoms, diagnoses, research and treatment of celiac disease

Understand the role of human and plant genetics, the environment, and exposure to triggering proteins as they relate to celiac disease and dermatitis herpetiformis.

Designed For:

Individuals and their families who are interested in health and diet issues relating to celiac disease. Includes opportunities for networking and offers CEU's for physicians and other health-care professionals.

Registration Fees:

To be announced.

Exhibits:

Product vendors will display and sell products, provide samples, and accept orders during posted hours. CSA Central will offer CSA materials and special conference promotions as well.

To Receive a Brochure:

To be placed on the mailing list for a CSA conference brochure, you are invited to send an e-mail request to celiacs@csaceliacs.org; a faxed request to 402-558-1347; a personal request toll free to 877-CSA-4CSA; or a written request to CSA Office, P.O. Box 31700, Omaha, NE 68131-0700

Regional Conferences

The national CSA organization assists with regional and state conferences. National educational conferences are scheduled generally in the fall-usually in October. State and regional conferences are encouraged to be held in the spring.

JamieK-

You DO need to worry about lotions and makeup. It is very easy to have some lotion remain maybe under your fingernails and you lick your finger because you got something yummy on it. OOPS accidental gluten ingestion!! Then you are sick.

All products you use should be gluten free. Shampoo, conditioner, lotion, dish soap, hand soap, body wash, toothpaste, chapstick, lipstick, makeup, sunscreen, and the list goes on.....

It is better to be safe than sorry in this case. Just go gluten free and you will feel better!!

-Jessica

CALL THE DOCTOR!! I agrree with everyone else. There are some serious conditions that have that symptom(Lupus, another autoimmune disease), and you really shouldn't be waiting around to see what happens. Get to the doctor as soon as you can. Swelling is your body's way of letting you know something is going on and you need to listen to your body.

-Jessica

Hillshire farm meats are all gluten free except beer brats and corn dogs. I eat their ham quite often.

-Jessica

You should feel blessed that they discovered what is wrong so early in his little life. I was born with colic and wasn't until 24 years later they discovered what was actually wrong!! Be happy that your baby can be healthy now!!

Things seem very hard at first, but this board is a great support. Visit often and ask questions. You are on the right track, you are just very overwhelmed right now. That is TOTALLY normal. Keep doing what you are doing with the research, research, research!! It will make you feel more confident and calm with the diagnosis.

I don't have any local support groups near me either, but use this board and another to have many questions answered and just support when needed.

Things will settle down, you will get a routine and you will successfully find foods to give your baby. Everything is new now, just relax and learn all that you possibly can. You will do great!!

-Jessica

If it is an IV it is going directly into your blood stream and not into your stomach and intestines where it would do damage. So you are not likely to have a problem.

If you are still worried, call the hospital or dr and see what they will be using. Get the manufacturer name and then give them a call to check ingredients. This is the easiest way to get the most reliable answers on medications.

-Jessica

You are lucky richard, stores around here add colorings, and preservatives and fillers!!! Always ask your butcher!!

-Jessica

Corn pops are not safe, there is a chance that you got ahold of an old box, but as of Jan 1, 04 they were adding wheat to their ingredients.

Most of the cereals that are mainstream and "ok" are very small. For example Post Fruity and Coco pebbles are ok, but they are pretty tiny for a 6 month old.

There are some cereals made by EnviroKidz that are larger and very yummy!! I love the peanut butter panda puffs Open Original Shared Link They also have a gorilla munch Open Original Shared Link which is much like Kix. You might try those.

As far as finger foods for little ones go you might try:

Quakes rice cakes (love the carmel corn) Just read the labels!! not all are safe

Frito Lay chips are a brand in which you should be able to read the label and see clearly if it contains any gluten products. However some people worry about cross contamination with this company.

Mainstream cookies are pretty much a dream! ha But you can find some great one at the health food store. Mi-Del makes a GREAT animal cookie/cracker. They are WONDERFUL!! As far as the other cookies go, I have found it easier to just bake my own chocolate chip etc. They taste 100% better than store boughten.

You could also make some little gluten-free pancakes and give him some of those to chew on. Minus the syrup of course.

I'm sure others with kiddoes have some better ideas, but wanted to let you know about the corn pops!!!

-Jessica

I was just curious how the Birthday turned out? I sure hope that everything went well. Let me know what you decided to do and how it went!!

-Jessica

One good way to help with iron absorbtion is to drink some juice when you have iron containing foods (ex: meat). The vitamin C helps to break the iron down and help it absorb better!!

-Jessica

yep

Got a letter back, just thought I would share it:

Dear Jessica,

Thank you for contacting me with your views on food

allergens and food labeling. I appreciate hearing from you.

Americans are blessed with a great variety of choices in the

foods that we eat. I recognize, though, that some citizens must be

cautious for health reasons in the food selections that they make.

To this end, I support commonsense legislation to protect

American consumers and to provide them with the information

necessary to make healthy choices.

H.R. 3684 would change the way many foods are labeled.

The bill defines the most common food allergens and would

require that foods containing these ingredients be properly labeled,

for example using common ingredient names and more clearly

defined terms, such as "gluten free."

H.R. 3684 also outlines new requirements for the Food and

Drug Administration (FDA) concerning food allergens. The bill

would seek to improve awareness of food allergies by increasing

education programs for health care providers and by expanding

research and data collection on food allergies. Furthermore, to

respond to the nearly 30,000 Americans annually who need

emergency room treatment for food allergies, H.R. 3684 would

direct the FDA to include food allergy treatment in trauma and

emergency care facilities.

H.R. 3684 is currently in the House Subcommittee on

Health for further consideration. Please know that I will keep your

views in mind if this legislation comes to the House floor for a

vote. Please feel free to contact me again with comments or

concerns on matters that are important to you.

God Bless You,

Jim Ryun

Most of them are supposedly not. There are a couple brands sold that is for sure. You can buy one at the Gluten Free pantry called "let's do organic Chocolate Sprinkles"

-Jessica

ok with all this brownie talk, I caved in and made a batch of gluten free pantry brownies!! haha

Getting ready to put some frosting on, then pour a big glass of milk. Maybe top with some ice-cream (bryers vanilla) and some reddi whip and have myself a brownie sundae!! YUM!! Who says a girl shouldn't spoil herself? haha

-Jessica

Ok I finally had some time to go back to the old board and look for that list, found it and here it is:

From Fernandofamily on the old board: 9-7-2003

here is a list of symptoms associated with celiac disease that I put together to give to my doctor. I would like to know how many of the symptoms any of you have ( or had in the past if you a gluten-free now). I have 32 symptoms off this list, many of which taken separately could have been something else, but when you look at them together you can tell there is something really wrong! If you have anything to add to this list that would be great. Most of this was compiled from the aafp.org and celiac.com websites info on celiac symptoms.

List of symptoms associated with Celiac Disease (also known as Celiac Sprue and Gluten Intolerance):

Lassitude (a term describing a feeling of tiredness, weakness or exhaustion)

Inanition (exhaustion, as from lack of nourishment)

Depression

Fatigue (often chronic)

Irritability

Fuzzy-mindedness after gluten ingestion

Dental enamel defects (lots of dental cavities due to weak enamel)

General malnutrition with or without weightloss

Any problem associated with vitamin deficiencies

Diarrhea

Constipation

Lactose intolerance

Flatulence

Anorexia

Nausea

Vomiting

Burning sensation in the throat

Abdominal pain and bloating

Borborygmi (audible bowel sounds)

Abdominal distention

Steatorrhea (fatty stools that float rather than sink)

Foul smelling stools

Bulky, greasy stools

Anemia (iron deficiency)

Hemorrhagic diathesis (bleeding disorder)

Osteoporosis/osteopenia (bone loss or thinning)

Bone pain (especially nocturnal)

White flecks on fingernails

Short stature (due to slow growth)

Arthritis

Rheumatoid arthritis

Arthralgia (pain in the joints)

Tetany (spasms and twitching of the muscles)

Parasthesia (abnormal or impaired skin sensation including burning, prickling, itching, or tingling)

Amenorrhea (absence of menstrual bleeding)

Delayed puberty

Infertility

Impotence

Cheilosis (inflammation, cracking and dryness of the lips)

*Angular cheilosis (specifically cracking in the corners of the lips)

Glossitis (swollen tongue)

Stomatitis (any form of inflammation or ulceration of the mouth, such as mouth ulcers, cold sores, thrush, etc.)

Purpura (purple or red spots on your skin caused by bleeding under the skin, more common in elderly)

Follicular hyperkeratosis (corns, calluses, plantar warts, psoriasis, nail fungus)

Atopic dermatitis (a tendency towards allergies and a predisposition to various allergic reactions)

*Scaly dermatitis (inflammation of the skin, includes dandruff and topical allergic reactions)

Hyperpigmented dermatitis (can't find the definition, must have something to do with the color of the rash?)

Alopecia areata (loss or absence of hair, leaving the skin looking and feeling normal)

Edema (accumulation of serum-like fluid in the body tissues)

Ascites (accumulation of fluid in the peritoneal cavity-the space between the abdominal wall and the organs)

Selective IgA deficiency

Seizures, with or without occipital calcification

Hepatitis (inflammation of the liver, may be acute or chronic)

Dermatitis herpetiformis (skin rash characterized as intensely itchy skin eruptions like red bumps and blisters. Burning, stinging and itching is very bad. It appears in groups around the body, most often on the head, elbows, knees, and buttocks, much like the lesions of Herpes which is why the name is herpetiformis-meaning "like herpes". Must be diagnosed by a doctor. Only occurs in celiac patients.)

Liver disease

Xerophthalmia (an eye disorder which causes the conjunctiva and cornea to become abnormally dry)

Night blindness (inability to see well in dim light)

Thyroid disease

Unexplained neuropathic illnesses, including ataxia and peripheral neuropathy

*Peripheral neuropathy (disease, inflammation and damage to the peripheral nerves, which connect the central nervous system to the sense organs, muscles, glands, and internal organs. Damage to sensory nerves may cause numbness, tingling, sensations of cold, or pain, often starting at the hands or feet and moving toward the body center. Damage to the nerves of the autonomic nervous system may lead to blurred vision, impaired or absent sweating, headaches, episodes of faintness associated with falls in blood pressure, disturbance of gastric, intestinal, bladder or sexual functioning, including incontinence and impotence. In some cases there is no obvious or detectable cause)

*Ataxia (incoordination and clumsiness, affecting balance and gait, limb or eye movements and/or speech, making one appear as if they were drunk)

Dementia

Diabetes mellitus type 1

Sjogren's syndrome (eyes, mouth, and vagina become extremely dry)

Collagen disorders

Down syndrome

IgA neuropathy

Fibrosing alveolitis of the lung (body produces antibodies against its own lung tissue, creates a dry cough and breathing difficulty upon exertion)

Hyposplenism, with atrophy of the spleen (underactive spleen)

Pancreatitis (inflammation of the pancreas)

Lymphoma (any group of cancers in which the cells of the lymphoid tissue multiply unchecked)

Leukopenia (abnormal decrease in white blood cells, often reducing immune system function)

Coagulopathy (blood clotting disorder)

Thrombocytosis (low blood platelets/damaged platelets, causing large amounts of bruises due to uncontrolled bleeding under the skin)

Melanosis (black or brown discoloration of the colon, usually due to chronic constipation)

Erythema nodosum (red-purple swellings on the legs and sometimes arms, with fever and joint pain)

In children:

Failure to thrive

Irritability

Paleness

Fretfulness

Inability to concentrate

Emotional withdrawal or excessive dependence

Nausea

Pale, malodorous, bulky stools

Frequent, foamy diarrhea

Wasted buttocks

Anorexia

Malnutrition:

*With protuberant abdomen (with or without painful bloating)

*Muscle wasting of buttocks, thighs, and proximal arms

*With or without diarrhea

(as well as any number of the above diseases and disorders)

Additional information:

Reactions to ingestion of gluten can be immediate, or delayed for days, weeks or even months.

The amazing thing about celiac disease is that no two individuals who have it seem to have the same set of symptoms or reactions. A person might have several of the symptoms listed above, a few of them, one, or none. There are even cases in which obesity turned out to be a symptom of celiac disease.

Here is my reply from the old board:

I have 33 of the symptoms,I am not sure about some of them, they would require further testing which I have not done such as bone density.

    I began my struggle at age 3 with atopic dermatitis. The Dr's told my mom I had dry skin and to put some lotion on it. Here I am at age 24 and FINALLY diagnosed!! We have been doing extensive testing since approximately age 16. It is amazing how much doctors sometimes miss. I agree with you that Celiac is a very individualized disease. I think that is what makes it especially hard to diagnosed without the blood panels and scopes. However, that is no excuse for a doctor to miss it for YEARS which is par for the course in most of us.

    Nice job putting together your list. Best Wishes!!

-Jessica

.

Jean-

I do not have a recipe for a crust, but the Gluten Free Pantry Open Original Shared Link makes a great pie crust mix. YUMMY!!! You will have to try it sometime.

-Jessica

Jean is right on, I also use my old recipes and just substitute Bob's Red Mill All Purpose gluten-free FLour and some xanthan gum and it works fine for the most part.

For the brownies, I do LOVE the Gluten Free Pantry Chocolate Truffle Brownie Mix with some dunkin hines homestyle milk chocolate frosting! and a big glass of milk! I might just have to make some of those today now!! haha

I hope your daughter has a great bday!!

Just remember frosting covers up any cake mistake! ha Also instead of sprinkles, could chop up some M&M's to add some color! YUM!

-Jessica