ENF
Advanced Members-
Posts
303 -
Joined
-
Last visited
Content Type
Profiles
Forums
Events
Blogs
Latest Celiac Disease News & Research:
Everything posted by ENF
-
This article says that he has, among others, a wheat allergy: Open Original Shared Link
-
Yes, I agree that magnesium is very important, but I find it difficult to tolerate. Which brand or type of powdered magnesium supplement do you take? I was considering getting buffered magnesium from Kirkman Labs. Do you take calcium supplementation as well? Thanks!
-
I haven't had breathing problems. I was told by Enterolabs that I had elevated soy antibodies, but I have heard that soy lecithin is not hamful to anybody. I don't know - I won't eat Tofu, or drink Soy "milk", and I try to avoid soybeans, but it's hard to eliminate soy completely. Does anyone know if soy leithin is safe for everyone, including soy...
-
ARCHIVED What's The Difference? Need Help!
ENF replied to January Flower's topic in Coping with Celiac Disease
If your blood test is positive, and you have "the big D" often, I do not think that the doctor understands that Celiac disease, not "gluten sensitivity", is present. You may have a "mild" case, but have it nonetheless and must eat accordingly. If you do not plan on eliminating gluten from your diet based on this doctor's advice, I'd recommend getting a... -
When there's no glue stick around, we wet the envelopes' glue with a sponge, wet paper towel or napkin, moistened finger, etc.
-
Just today I saw loaves of frozen Ezekiel yeast-free rice bread, but the ingredients on the back of the plastic bag listed wheat as an ingredient. You have to be really careful - even in health-food stores.
-
ARCHIVED How Long Until Feeling Better?
ENF replied to AllysonBrightMeyer's topic in Coping with Celiac Disease
I felt better, after going gluten-free, very quickly - as in a few days to a week. I did have a severe case of celiac, probably because I was consuming a lot of gluten. My villi, one year after going gluten-free, still showed signs of damage after an endoscope exam at Columbia, but my blood work was excellent. I plan to get tested again soon. -
ARCHIVED Does Celiac Lead To Vitamin Deficiencies?
ENF replied to angel42's topic in Coping with Celiac Disease
There could be several answers to this question. If you have villi damage that is still healing, then you're probably better off taking vitamins and supplements. If you are talking about deficiencies due to a limited diet with Celiac, then it would probably be a good idea to take supplements along with your meals as well. -
ARCHIVED Emergency Surgery For Total Intestinal Blockage
ENF replied to ENF's topic in Coping with Celiac Disease
Thank you for your replies and encouragement. She got sick within a few days of the operation, presumably because food was introduced too fast. Gluten was never a digestive problem for her in the past, and she's been 100% gluten-free for five months, but she ate a few things that contained it in the hospital- not out of weakness of will, but because... -
ARCHIVED Emergency Surgery For Total Intestinal Blockage
ENF posted a topic in Coping with Celiac Disease
My wife started throwing up bile two weeks ago, and had to go to the emergency room. We were told that immediate surgery was necessary to remove an intestinal blockage - probably caused by adhesions from previous (non-intestinal) surgeries including hysterectomy, appendix removal, ovarian cyst, and myomectomy. There was no time for second opinions - a... -
Wondering what people think of this new report about a "safe gluten threshold", which was in the latest Celiac.com Update (and this site). Research Study on the Establishment of a Safe Gluten Threshold for Celiac Disease Patients Celiac.com 01/10/2007 Celiac disease researchers in Italy and at the Center For Celiac Research in Baltimore, Maryland...
-
ARCHIVED Do I Have celiac disease Or Not?
ENF replied to GPPizza420's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think that this "doctor", and I use that term loosely, is very wrong - but many of us have had similar experiences. I think that you should dump him. If he's really a G.I. and hasn't gotten the Celiac message by now, he's a lost cause. There are many similar stories here, including my own. The antibody test results, when positive, are almost 100... -
ARCHIVED Please Read - No Celiacs Can Have Soy!
ENF replied to srokie's topic in Food Intolerance & Leaky Gut
To eliminate guesswork, and put the question of soy and casein to rest, we both had the soy and dairy tests done by Enterolab, and the results showed above-normal Fecal Anti-Soy and Anti-Casein IgA Units - which closed the book for us. We are now Gluten, Soy and Dairy free. Maybe they'll come out with some research and statistics as to the prevalence... -
ARCHIVED My Enterolab Results Are In....
ENF replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In my wife's case, she had no celiac gastro symptoms, but took the Enterolab tests just to shut me up. The results were positive, and she felt the same way about it that you do - in the beginning. After going gluten free, she started having noticeable heath benefits - the most dramatic thing was that her body shape has noticeably improved. She is now... -
ARCHIVED My Enterolab Results Are In....
ENF replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Maybe you need a second opinon. So, get the biopsy and/or blood tests if you think that you need a more convincing diagnosis. It's very important, even if you have to pay to come to New York for a visit to the Columbia Celiac Center - or you could go to another qualified place that's closer. People on this board know where other good ones are located... -
ARCHIVED My Enterolab Results Are In....
ENF replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It can take two or three years for the average adult Celiac's intestines to heal and, in rare cases, they may never recover. You may have high numbers, but no intestinal damage, and there's no way of knowing unless you get the biopsy. Another way is to have the malabsorbtion test from Enterolab, but that can be misleading due to causes other than gluten... -
ARCHIVED My Enterolab Results Are In....
ENF replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you can get an appointment soon, I'd get the blood test and, if you can, an endoscope as well - just so you can compare how you're doing after a year or two on a gluten-free diet. If you can't do this in a hurry, just go gluten-free and get tested anyway in the future. I've had two endoscope exams for celiac, both before and after going gluten-free,... -
ARCHIVED My Enterolab Results Are In....
ENF replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, Those numbers are pretty high - even for people like me with 2 gluten intolerance genes, positive blood work and a biopsy-confirmed Celiac diagnosis. The only benefit that I would think you would get from telling your HMO about this is a reimbursement for the cost of Enterolab testing, having further work with a gastroenterologist and/or nutritionist... -
ARCHIVED Gluten-free Brewery Planned For Arkansas
ENF posted a topic in Gluten-Free Foods, Products, Shopping & Medications
The Associated Press December 11, 2006, 5:43PM EST Gluten-free brewery planned for Arkansas Constance Rieper-Estes and brew master Leigh Nogy plan to open the Dark Hills Brewery, which will produce gluten-free beer. Open Original Shared Link -
ARCHIVED Gluten Free Holiday Cooking W/carol Fenster Ph.d
ENF posted a topic in Publications & Publicity
Favorite Holiday Foods Making You Sick? Monday December 11, 5:08 am ET Gluten Could Be Culprit, Says Nationally Recognized Expert Carol Fenster, Ph.D. Open Original Shared Link -
Video shown on ABC, New York, Channel 7, Dec. 7 2006. Dr. Green and others: Examining Celiac Disease by Dr. Jay Adlersberg Open Original Shared Link