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ENF

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Latest Celiac Disease News & Research:

Everything posted by ENF

  1. ENF
    ORLANDO, Fla., Oct. 7 /PRNewswire/ -- Alba Therapeutics Corporation presented results from two clinical studies this week at the American College of Gastroenterology (ACG) 2008 Annual Scientific Meeting. Data from study CLIN 1001-004, the first Phase IIa trial conducted in celiac disease and the first to assess the prevention of immunologic changes in celiac...
  2. ENF
    I enjoy BOAR'S HEAD Lite Skinless Beef Frankfurters. The package says, "DAIRY FREE GLUTEN FREE" on it.
  3. ENF
    Traficet-EN, by ChemoCentryx, was intended for Irritable Bowl Disease, Crohn's disease and ulcerative colitis, but is also being tested on Celiac Disease patients. Open Original Shared Link It's great that there are several companies working on products that may help with problems associated with Celiac Disease. The more information we have, the...
  4. ENF
    There are no Walmarts in New York City at this time, but I made some calls today and found that a CVS in my area has the Mylan Alprozolam, so as soon as I get the Rx that's where I'm going to have it filled. Thanks
  5. ENF
    Hi Deb, I switched from Xanax (due to gluten issue) to Klonopin six months ago, but would rather have Mylan alprozolam. I was planning on calling the local pharmacies to see if it is avalable (some Walgreens and CVS stores carry it), but I wondered if you may know of one in the NYC area that carries Mylan's generic version. Thanks!
  6. ENF
    I would think that it is too difficult to remain gluten free with a job that requires a lot of travel. I know I couldn't handle it. I have a friend with Celiac who gave up a position as a music educator/performer because it required frequent travel. He loved the work, and the travel, but couldn't handle the diet while globe-trotting. At least there...
  7. ENF
    It's looking encouraging, but no date yet on when it will become approved and available. Open Original Shared Link
  8. ENF
    April 24, 2008 Washington State University researcher receives NIH grant to develop wheat free of harmful gluten proteins PULLMAN, WA - Washington State University researcher Diter von Wettstein has been awarded a four-year, $837,000 grant from the National Institutes of Health to further his work on developing wheat varieties safe to eat for people...
  9. ENF
    One the Celiac community's most respected experts, Peter H.R. Green, M.D., director of the Celiac Disease Center at Columbia University, in New York City, is from Australia. Open Original Shared Link Here are some more links for information and help in Austraila: https://www.celiac.com/articles/230/1/Australia/Page1.html Good luck.
  10. ENF

    ARCHIVED Repeat Endoscopy?

    ENF replied to DMS's topic in Coping with Celiac Disease

    Dr. Peter Green, in his book, CELIAC DISEASE - A HIDDEN EPIDEMIC, recommends a followup endoscopy in 2-3 years after diagnosis, but in cases where the diet isn't working it should be done sooner, or more frequently. There is much more information in the book. Good luck.
  11. ENF
    Oberlander's Chocolate Roll is delicous. This is a kosher for passover product that is gluten free. Kind of high in Cholesterol due to the eggs, I guess, but worth it once a year. http://www.aviglatt.com/DisplayImage.asp?i...LS3208974%2Ejpg
  12. ENF

    ARCHIVED Dr. Amy De Felice

    ENF replied to luciasmom's topic in Doctors

    I have been to the Columbia Celiac Center in New York, to see Dr. Lee, and the resident Celiac nutritionist. I also had all blood tests and an endoscope at the facility - my second time for Celiac, but the first time at Columbia. There was an improvement in my blood tests, but still some damage in to the villi. It is not unusual for adults to heal slower...
  13. ENF
    We picked up a box of Leaf Cookies, by Shabtai Gourmet. They are Gluten, Lactose, Casein, Soy and Dairy Free. This is a seasonal Kosher for Passover item. They're chocolate leaf cookies, like the old style, but crispier due to being gluten-free. They are delicous. They also make a number of other Gluten free treats, including Chocolate Chip Cookies...
  14. ENF
    This is a new website that has resources for easier gluten-free travel planning, including reviews: Open Original Shared Link
  15. ENF
    Thank you, that is very reassuring. I don't get the "Big D" very often anymore - and my health has improved immensly since being diagnosed and going gluten-free three years ago. So, I am going to reduce the 5-HTP dosages a bit, and take it with meals from now on. I was previously taking it between meals, before I knew about it's potential side effects...
  16. ENF
    I have noticed that 5-HTP, which I take daily, is not recommended by some manufacturers for people with gut problems, including Celiac. My intestinal problems are much, much milder than before going gluten-free, even with taking 5-HtP. I am hesitant to stop using it, because I'm afraid that I'll have to go back on anti-depressants. The label on...
  17. ENF

    ARCHIVED Fat/mental & Celiac?

    ENF replied to Cag's topic in Doctors

    I have both celiac genes. I got the test a year after diagnosis by endocopy and blood tests. I believe that most people who have celiac DNA do not have active celiac disease, as in noticable or measurable symptoms. It's interesting to know whether you have a genetic factor, but remember that it's not ironclad proof that your symptoms are due to celiac...
  18. ENF
    We have the Panasonic NB-G100P Toaster Oven. After almost three years of daily use it's still going strong. It's an excellent choice if you frequently use store-bought frozen gluten-free bread, since slices that are frozen together come apart easily after a couple of minutes or less, and toast very nicely after five minutes more. It's also very good...
  19. ENF
    I just sent the following Email to a company called Mediterranean Delights, which is located in Vermont, regarding their Baba Ganouj. The ingredient list on their package top lists: Freshly Cooked Chickpeas, Sesame Tahini, Sulfite-free Lemon Juice, Roasted Eggplant, Spices, Sea Salt, Citric Acid (to preserve freshness). To my complete surprise, it also...
  20. ENF
    If the pope was diagnosed with Celiac, you can be sure of one thing: It would remain a secret.
  21. ENF
    The reason that there are so many celiacs from Finland and Northern Ireland may be because these areas were not introduced to Roman grain until recent times.
  22. ENF
    I have a Senseo machine, but I became suspicous of the glue on the pods and stopped using them. I bought a refillable coffee holder, called Mypod, designed for Senseo machines, which allows the use of any ground coffee and eliminates the need for the Pods. It's cheaper than using pods, but a bit less convenient.
  23. ENF
    Thank you very much for the information that you have provided, Dr. S. Before I was aware of celiac, and still consuming gluten, I had an incident, after an extraction, of tissue filling in the space. This totally confounded the dentist, and he asked me if I was on some kind of "crazy" diet. I was sent for oral surgery, and given a Rx for vitamin A...
  24. ENF
    In New York City, there is the Weill Medical College of Cornell University, Department of Neurology and Neuroscience, Peripheral Neuropathy Center, 635 Madison Avenue 4th Floor, New York, NY 10022, USA, (212) 888-8516 Several of the neurologists at this location specialize in Celiac, and have written medical papers about it. They have collaborated with...
  25. ENF
    I am doubtful about the accuracy of gluten free drug lists. At least one of them (referenced in a post above), Open Original Shared Link, still has Xanax listed as gluten free - which is wrong.
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