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ENF

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Everything posted by ENF

  1. ENF
    Metamucil is pretty good. The powders and capsules are gluten free, but not the wafers. Open Original Shared Link I don't think that it's "all natural", though.
  2. ENF

    ARCHIVED Just Diagnosed

    ENF replied to njakgirl's topic in Coping with Celiac Disease

    Sounds like you're on the right track. By strictly following the diet, there is a very good chance that your digestive, depression and anxiety issues are going to be greatly relieved in the near future - you will probably be grateful that you were diagnosed when you start to feel better. Gluten to a celiac is similar to a dangerous drug - it's got a very...
  3. ENF
    A large amount of credit for Celiac awareness in the U.S. goes to Dr. Alessio Fasano, who is from Italy and Dr. Peter H.R. Green, from Australia. There are other examples, I am sure, but these two doctors have been, and continue to be, a tremendous help.
  4. ENF
    I went to sevaral non-western doctors that were from, and educated in, Russia and China. They weren't any help, either.
  5. ENF
    I do not think that a doctor should tell someone that does not have Celiac Disease that they have it, but if tests are inconclusive then they probably should try the gluten free diet - as well as in cases of possible gluten sensitivity and intolerance. I neglected to mention that there CAN be villi damage from medical conditions (such as HIV) other...
  6. ENF
    Let's narrow down the criteria for a Celiac diagnosis once more, just for clarification. Villi damage from gluten can only occur if you have Celiac Disease. You must have the genetics for this, but having the genes does not necessarily mean that you have active Celiac. You can have Celiac without detectable villi damage, or positive antibody blood results...
  7. ENF
    The only way to rule out Celiac Disease in cases like yours would be through a gene test. Even if the gene tests, blood tests and endoscope are all negative, it still does not eliminate the possibility of gluten sensitivity - which can cause serious medical problems, but not villi damage.
  8. ENF
    This is not true, TotalKnowledge. Although there is a substantial risk of false negatives with blood tests, positive blood results for Celiac are close to 100% accurate.
  9. ENF

    ARCHIVED Imodium

    ENF replied to foodiegurl's topic in Coping with Celiac Disease

    If you use Imodium use, stick with the chewables or tablets - the liquid version isn't certified gluten free.
  10. ENF
    I just saw the news about this on other New York celiac blogs and sites. I'm looking forward to going there, and will soon be in the area of the Citicorp building. If the claims about the bagels being indistinguishable from the real thing are true, I'll eat my gluten-free hat. Even most of today's "real" non-gluten-free bagels aren't close to tasting...
  11. ENF
  12. ENF
    If the villi are damaged from eating gluten, then it's not just "gluten intolerance" - it's Celiac Disease.
  13. ENF
    Eating and drinking rituals are so ingrained into our collective mentality that gluten and booze are considered by the majority to be an integral part of faith, love and happiness.
  14. ENF
    It doesn't surprise me that he's hard to see. Peter Green is the most famous doctor specializing in the most common autoimmune disorder. He likely gets called away frequently for very difficult Celiac-related cases, in addition to his hectic schedule of lectures, teaching, appearances, etc. I didn't even try to see him because does not take my insurance...
  15. ENF
    The doctor should not have told you that you have Celiac Disease, because the diagnosis can't be made by a stool sample. The test can only show that you had a reaction to gluten, and it is possible that you have Celiac. You could get blood tests, and endoscopy, for yourself and your children if you want a diagnosis. For many, a positive response from...
  16. ENF
    Here's some dining info from a non-celiac friend, who is a writer and food expert. A number of good NYC restaurants do not have menus marked "gluten-free", but much of their food is naturally prepared without it. I haven't yet gone to any of them but plan on doing so in the near future. There's a lot of useful ideas in this article, which could lead to...
  17. ENF
    The cover story of the current issue (June 2009) of Harvard Health Letter features an excelllent three page article about celiac and gluten sensitivity, titled "Getting Out the Gluten"
  18. ENF
    Gluten free restaurants, and events, in and around NYC are discussed on The New York City Celiac Disease Meetup Group Message Board. There's been a lot new gluten-free options lately, and this is a good resource for residents, or visitors, to keep track of them with.
  19. ENF
    I have not yet read Elisabeth Hasselbeck's book, but what you have mentioned is consistent with expert advice on preventing cross-contamination - it only takes a microscopic amount of gluten to damage the villi, even if the Celiac patient doesn't notice symptoms. The book has received some negative responses by Celiac experts, and patients, but the cross...
  20. ENF

    ARCHIVED Jury Duty Exclusion

    ENF replied to ENF's topic in Coping with Celiac Disease

    The jury duty notice states that there are no exemptions, everybody that is eligible to serve must do so, and that the court will make accommodations for people with disabilities and hearing trouble. I think that the last thing they want is interruptions due to problems with jurors, which could result in a mistrial. (edited)
  21. ENF

    ARCHIVED Jury Duty Exclusion

    ENF replied to ENF's topic in Coping with Celiac Disease

    The convicted prisoners' religious and health dietary needs are taken care of - they get their custom, special meals cooked to order. When they get out, they are exempt from jury duty because they were convicted of a felony. Since I'm out of work right now anyway, crime is beginning to sound like a worthwhile career for a person with celiac to take up...
  22. ENF
    I use Wakunaga Kyo-Dophilus Probiotic Supplements. They are gluten-free, and milk free. I originally tried a small bottle purchased at Vitamin Shoppe, and now I order a years' supply at a time from Lame Advertisement - which does ship to Canada according to their website. I've had very good results using them. For the first month I took two every day...
  23. ENF
    I never really had too many credit card problems but I've been through lay-offs, firings, evictions, sued by a landlord for past rent, lived at times with no medical insurance, no gas, etc. My dental bills alone could have put several of the dentists' children through medical school. Just hang in there, you'll be OK - at least they don't have debtors...
  24. ENF

    ARCHIVED Jury Duty Exclusion

    ENF replied to ENF's topic in Coping with Celiac Disease

    Yet another lecture about toughing it out. Geez. The consequences of Celiac, and other problems, might be easy to "control" if you live in Gooberville, but it can be very different in a city like New York.
  25. ENF
    I haven't tried Honey Nut Chex because it's mostly corn, which is hard for many people to digest. I do occasionally enjoy the gluten-free rice-based Chex product.
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