ENF
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Latest Celiac Disease News & Research:
Everything posted by ENF
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ARCHIVED Us Issues Draft Codex Positions On Gluten-free
ENF posted a topic in Publications & Publicity
The title of this posting should have been "US..." (as in United States), but the program assumes we can't type and automatically changes the second letter to lower case. US issues draft Codex positions on gluten-free By Lorraine Heller 9/26/2007- Standards for gluten-free foods must encompass all types of foods that do not contain gluten, said... -
Alba Therapeutics has announced that they have dosed it's first patient in a six week Phase IIb trial with oral AT-1001. See the Wed., Sept. 19, 2007 item: Open Original Shared Link
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The link below, from the story on the original thread, has an email for comments. Open Original Shared Link
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I don't know if this is a typo, sarcasm, a double negative, a British type of wording that is unfamiliar to an American reader, or something else in her writing style that I am not getting: You may be cutting out something you don't need to which might be putting your nutritional health and your longer term health at risk Tanya Haffner Nutritionist...
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How this for some dangerous misinformation, confusion, and (at the bottom) reactionary responses? BBC NEWS Tuesday, 18 September 2007 Many 'imagine' food intolerance Millions of people in the UK have self-diagnosed a food intolerance and may be avoiding key foods as a result, a poll by a testing firm suggests. Less than a quarter of the 1...
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Great news! The big job now is getting the word out and reaching more people that suffer from celiac, and other disorders caused by gluten.
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According to his "New York State Physician Profile", Dr. Green takes Medicaid and Medicare - but the website advises to check with the doctor's office to see if this information has changed. For the Profile, just key in his first and last name, and go to his "Practice Info".Open Original Shared Link
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ARCHIVED I Have Been Turned Upside-down!
ENF replied to silly celiac's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If you have been gluten-free for a while, and never had a blood test before, but do have Celiac, your blood tests do not have to be positive for the endoscopy and biopsy to show damage previously done by gluten. If your blood work was negative even while consuming gluten, it probably isn't worth doing a biopsy because you likely didn't get to the point... -
ARCHIVED I Have Been Turned Upside-down!
ENF replied to silly celiac's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Why can't you get an endocopy/biopsy without having gluten again, just to see if there is any damage? I've had endoscopies two years after going gluten-free, and there is still some evicence of damage, albeit much milder than the original tests showed. Doesn't it usually take adults at least a couple of years to heal? Anyway, good luck! -
ARCHIVED Sept. 13 2007: National Celiac Disease Awareness Day
ENF posted a topic in Publications & Publicity
On Monday September 10, 2007, for the second year in a row the US Senate designated September 13, 2007 as National Celiac Disease Awareness Day Open Original Shared Link 110th CONGRESS 1ST SESSION S. RES. 314 Designating September 13, 2007, as "National Celiac Disease Awareness Day" IN THE SENATE OF THE UNITED STATES September 10, 2007 Mr. INHOFE... -
I'm OK with Lara's Creamhill oats for the most part, but they do cause a major cleaning out of my digestive system. The reaction isn't exactly the same as when I had problematic celiac digestive symptoms before going gluten-free - but makes me wonder if it's only because of the fiber in oats, which is one reason some people eat them, or if something else...
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Celiac article in the current edition of Newsweek: Open Original Shared Link
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When you're first diagnosed, there is a substantial learning curve and there is much work, research, trial and error, etc. Villi damage usually takes at least several years to heal, for most adults, even under the best of circumstances. Having a job 'on the road" is the worst job a person with celiac can have. I do not think that it's possible to travel...
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ARCHIVED Pros And Cons Of Testing
ENF replied to devell's topic in Parents, Friends and Loved Ones of Celiacs
We use DariFree, a healthy milk alternative which is made from potatoes. -
There was a thread about gluten-free beer in Ireland, recently updated with a beer list by Davey, "Courtesy of The Irish Coeliac Society": Open Original Shared Link
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Thanks, this helps greatly - I can take the list to the dentist on my next appointment, or before. It's too late to do anything about the temporary glue, but it's important to know the status of the final cements.
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I'm at the point where I don't want to deal with it in the dentist's office anymore. I am having a new bridge procedure (my third one), and I've had to have a temporary bridge put in, taken out, and glued back in several times. The final bridge should be ready next Monday. Although they call it "permanent", they're not as I've had my original two replaced...
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ARCHIVED Video Capsule May Soon Diagnose Celiac Disease
ENF posted a topic in Publications & Publicity
A new device -- video capsule enteroscopy (VCE) -- accurately detects intestinal atrophy in patients suspected to have celiac disease, according to a report in the American Journal of Gastroenterology. Open Original Shared Link -
I've got my fingers crossed for Alba Therapeutics Corporation's AT-1001 study - it looks very promising. If all goes well, otherwise, I hope it doesn't take numerous years for them to obtain approval for marketing it.
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I've been gluten-free for about 2 1/2 years, and had an endoscopy today, at a good local facility. I won't have the biopsy and bloodwork results for a few days, but they have a new policy of issuing the initial findings on the same day as the test(s). Here's the results: * The esophagus appeared normal * The gastroesophageal junction appeared normal...
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Sounds like you've been there and done that. How many times have you done jury duty? Were you completely healed when you served?
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I went to a new, local gastroenterologist for the first time today, and asked him if he would be willing to write a medical excuse to get me out of jury duty the next time I'm called. He agreed. This is a great relief for me. The last time I served, a few years ago, it was on a New York State grand jury. Although I was very sick, I was not yet...
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ARCHIVED Absolut Cirtron Vodka?
ENF posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I just bought a bottle of Absolut Citron, which contains citrus fruits, and now I'm curious because I've read that some of their "flavored" products are not recommeded for people with gluten problems. I do not know if Citron is one that is not recommeded. It certainly doesn't seem that oranges, grapefruits, etc., would be harmful, and I can't see why gluten... -
Thanks for the tip. I bought two packs of Rizla's yesterday: "red", and "green" (both the exact same materials just cut differently). I recently E-mailed Rizla, and Zig-Zag, to inquire about the content of their products, but have not recieved a reply. Most Rizla's are likely made from rice (Riz is French for rice). I have read that the glue on both...