ENF
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Latest Celiac Disease News & Research:
Everything posted by ENF
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When I hit three years gluten-free, I'll probably get evaluated again by endoscopy, biopsy, bone density test, etc. As far as glutening, I don't think there is anything the doctors can do for you when this happens. I'm recovering from a bad bout of it myself right now.
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ARCHIVED Celiac Panel Results
ENF replied to Rickd's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think that you'll have to compare these numbers to the "reference range" on the report(s) - the way the numbers and ranges are expressed can vary depending on the lab your doctor used, and/or the country the tests were performed in. -
Dr. Peter H.R. Green is founder and director of the Celiac Disease Center at Columbia University in New York City. From Dr. Green's Book, CELIAC DISEASE - A Hidden Epidemic, "The Celac Disease Center at Columbia University is the only center in the United States that provides comprehensive medical care, including nutrician, for adults and pediatric patients...
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ARCHIVED Could I Have Been A Celiac Previously?
ENF replied to Dandelion's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It takes several months to a year for children's intestines to recover. The older you are, the longer it takes. I'm middlle-aged, and the Celiac Disease Center told me not to come back for another endoscopy and biopsy for two years, which is the minimum time it usually takes for an adult to show improvements using this test. -
Well, this may come as a shock to some, but take out and delivery gluten free pizza is not a "pipe dream" in NYC, and you can have many other foods from the gluten free menus in a number of restaurants here as well. It's only a matter of time until other areas have these options, and gluten free accomodations and services are still in their infancy in...
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I'm really happy about this article - many more people will hear about Celiac because of it.
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I had a root canal decades ago, it soon became infected, and had to be redone. This did not help, the infection stayed, and I ignored it for many years. I recently had oral surgery, about 7 or 8 months ago, and it's still infected. The peridontist said that about the only choice is extraction. Since I have so many bridges and crowns, I don't want to...
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Alba Therapeutics Corporation Reports Preliminary Phase IIa Clinical Trial Results for AT-1001 for the Treatment of Celiac Disease Open Original Shared Link "We are very encouraged by the preliminary data and look forward to applying the extensive knowledge gained in this Phase IIa exploratory clinical trial to a larger, highly powered Phase IIb gluten...
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ARCHIVED Sprecher Shakparo Beer
ENF replied to sunshinen's topic in Gluten-Free Foods, Products, Shopping & Medications
I haven't seen it for sale yet in my area. Here's another article about it: Open Original Shared Link -
ARCHIVED Beano: One More Time
ENF replied to ENF's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you for the responses and information. I've had increasing neurological problems, fatigue, bad dreams, brain fog and some digestive trouble for a few weeks - roughly a month to six weeks after I started using BEANO on a regular basis. Since my diet is so carefully gluten free, I am relatively sure that it's the enzyme. I stopped taking it... -
ARCHIVED Beano: One More Time
ENF replied to ENF's topic in Gluten-Free Foods, Products, Shopping & Medications
Wanna buy an almost full bottle, cheap? -
ARCHIVED Beano: One More Time
ENF posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I've been feeling bad lately, including thoughts that I've been glutened. I wondered if it might be the BEANO I've been taking every day, one tablet up to 3X a day, for the past few months. Unfortunately, I didn't check the forums here regarding this product, or read the new listing of wheat on the product's label. These "trace" amounts of wheat could... -
ARCHIVED Beano: One More Time
ENF posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Double post by accident. -
ARCHIVED Enterolab
ENF replied to pnltbox27's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had all of the Enterolab tests (I think), even though I was previously diagnosed with Celiac by endoscope and blood tests. Enterolab found two Celiac genes. According to the results I have soy and casein antibodies, also. I do not know if they mean anything, but I avoid dairy completely, and soy as much as possible. There is a lab run by a diffrent... -
ARCHIVED Blood Work- Does Gluten Intolerance Get Tested!
ENF replied to jimbo1984's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
In the U.S., typical blood work does not contain a Celiac test unless the doctor specifically requests it. -
There was a very interesting thread, with links provided by Ms_Sillyak, about this last year: Open Original Shared Link
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ARCHIVED Freeda Vitamins
ENF replied to BeckyW's topic in Gluten-Free Foods, Products, Shopping & Medications
Somebody in this thread, https://www.celiac.com/index.php?showtopic=23707, said that they are in post #9. They have a store in NYC which I will be visiting soon. -
Metamucil with 100% Natural Psyllium Fiber, but ONLY the powders and capsules. The wafers contain wheat.
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ARCHIVED Genetic Testing
ENF replied to Braunson's-mom's topic in Parents, Friends and Loved Ones of Celiacs
Yes, the genetic testing is easy, quick, affordable and conclusive. It doe not indicate active Celiac, just the predisposition for it - as well as gluten sensitivity. Dr. Peter Green, of the Columbia Celiac Disease Center in NYC, recently mentioned it on the "View" segment that he appeared on and suggested that it is a good test alternative for children... -
DariFree milk alternative is gluten free also. We get it through the mail: Open Original Shared Link The only problem is that they keep raising their prices for the stuff. Seems like every time we order it, it costs more.
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Blue Smoke has a glutenfree menu, on East 27th Street, in the same building as The JAZZ Standard night club. I have not gone, yet. Open Original Shared Link I also recommend: Peter's Gourmet Diner & Bar 1606 1st Ave (east 80's) New York, NY 10028 (212) 734-9600 It's in a very nice neighborhood. They have a gluten-free kitchen, and full...
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ARCHIVED New Gluten Intolerance Test Uses Gold Electrodes
ENF posted a topic in Publications & Publicity
The method works by immobilising gliadins - proteins found in gluten - on the surface of gold electrodes Thursday, 22-Mar-2007 Open Original Shared Link -
The Celiac Center at Columbia will give you a very detailed Biopsy report and Celiac Disease Seriology blood test. You may want to get a bone density test while you're there, or at another time. The Bone Density test is done in another building, right in the area. Hope you have nice weather that day - you might want to pack a lunch and stroll...
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The link says that the video is "no longer available". Same day it was put online? Strange Maybe they'll fix it.
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I just watched it and thought it was excellent. Dr. Green gave a very complete synopsis of Celiac Disease, and said that the genetic testing was appropriate for family members if a relative has been diagnosed. He said, "None of us digest gluten very well. We did not evolve to digest gluten." A number of issues were covered, including DH, the common issues...