ENF
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Latest Celiac Disease News & Research:
Everything posted by ENF
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OK, now were getting into more of what I'd like to talk about. The Celiac people of the world are survivors, unfortunately we often have to relearn and reinvent ways to do this because many of the old standards no longer apply. If you are dealing with a person that is extremely nasty, or "wicked", at work, you can't always just put them in their place...
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I am gluten free, soy free (almost 100%), dairy free, corn free (mostly), and lentil free. The stomach issues are not that bad as long as I am not in a particularly stressful environment - including, but not limited to, being denied bathroom access. I also have mitral valve prolapse syndrome, with dysautonomia (also probably related to Celiac), as well...
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Thank you, larry mac, apology accepted. Our courts, in NYC, get the worst of the worst including everything from the Somalai "Pirate" to the terrorists who bombed the WTC in 1993 (I was close to the scene when that happened, as well as the events of 9/11). I have served on juries and grand juries for things like armed robbery, sexual abuse of a...
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I went to the court this morning and have been permanently excused from jury duty in New York State. I am sorry that my reasons are not acceptable to some of you, but I have served under great duress several times before diagnosis, including State Grand Jury. Many other people, with no medical problems at all, never get served with a jury duty summons - I...
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I have received a notice to report for jury duty at the end of the month. I am on a strict gluten-free diet, and my condition has improved, but still have problems as many of us do. I obtained a signed statement from my gastroenterologist today saying that he does not recommend that I serve because of Celiac disease and complications including the need to...
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ARCHIVED Weight Watchers Smart Ones
ENF posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Just picked up two Weight Watchers Smart Ones that are labeled gluten free on the side of the boxes, under the ingredients: Chicken Santa Fe, and Cranberry Turkey Medallions. -
ARCHIVED Blood Test Is Positive...
ENF replied to HQ Victor's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Brenda, A positive blood tests for Celiac is considered very accurate, but if you plan on getting an endoscopy you must continue to consume gluten. As far as you parents' and the need for gluten free foods, they should understand that to not do it is putting your health in further jeopardy. As you may already know Celiac Disease is an autoimmune... -
It sure can! I had ferritin levels of zero, and dangerously low iron. Went to two hematologists, one on 57th Street in Manhattan, and they didn't even consider Celiac. I also had all kinds of tests done, at various NYC hospitals, and the doctors never suggested, or tested for, Celiac. BTW, are you on a gluten free diet?
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ARCHIVED New To Celiac And Having Heart Palps
ENF replied to codyb87's topic in Related Issues & Disorders
If you don't do this already, I would recommend taking fish oil supplements, or eating fish several times a week. This seems to keep my mitral valve prolapse and other valve problems from bothering me too much. I saw two hematologists, before my Celiac diagnosis, and neither one even mentioned Celiac. They just gave me Rx's for iron because of severe... -
ARCHIVED New York Named Most Celiac-friendly Destination
ENF posted a topic in Publications & Publicity
This refers not only to New York City, but other areas of New York State as well. IDK, maybe this should be in the Travel forum. Open Original Shared Link Open Original Shared Link -
Glad you have an Uno that is on the ball. My recent experience with the gluten-free service, or lack of, at UNO's Brooklyn location was a disaster. https://www.celiac.com/gluten-free/index.php?showtopic=53485
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We ordered two chicken dishes from the UNO gluten free menu, and both were delivered with large bread sticks on the plates. The manager we spoke to, before ordering, assured us that there would be no problem with ordering gluten free. When they brought the orders with bread sticks on the plates, we put on our coats. The person that brought our food...
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A Faster Test For The Food Protein That Triggers Celiac Disease - Analytical Chemistry Journal 14 Nov 2008 "....scientists describe development of a new sensor that detects antibodies to the protein gliadin, a component of gluten. Laboratory tests showed that it is superior to the so-called enzyme-linked immunosorbent assay (ELISA), now the standard...
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I now have Blue Cross and Blue Shield, but was insured by United Health Care when I had medical tests done at Columbia Celiac Center We did not petition the insurance company for payment of the dietician servics at Columbia, but your's is a good suggestion for anybody else that goes to a dietician that is not covered.
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I had a lot of tests done at Columbia's Celiac Center, paid for by my insurance. When I saw Anne Lee, she did not accept my insurance, and I'm not sure whether she was taking any others, either. A friend of mine, who also has Celiac, has recently gone to a dietician in NYC that did not accept his insurance, so he also paid cash. He said that the only way...
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ARCHIVED Does Stress Aggravate Your Digestion?
ENF replied to celiacker's topic in Coping with Celiac Disease
Just to add one thing, taking probiotics has helped me a lot with similar problems. I avoid dairy completely, and do my best to stay away from products containing corn or soy. -
ARCHIVED Vodka Gluten Free?
ENF replied to MarsupialMama's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't think that anybody could predict whether this will "have reactions". You can use vodka made from potatoes - there are a number of brands, including Cold River and Chopin. I don't know which, if any, are 100 proof. -
What does this have to do with gluten intolerance or Celiac Disease?
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ARCHIVED Alvine Pharmaceuticals Reports Positive Results
ENF replied to patriceo15's topic in Publications & Publicity
It's great news for those of us who would like protection against cross-contamination. Many people with Celiac will want it, even if just for eating out in restaurants or at someone else's house. Bring it on! -
ARCHIVED Sanity Check: Validity Of Enterolab
ENF replied to climbmtwhitney's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you, Rachel, for clearing that up. -
ARCHIVED Sanity Check: Validity Of Enterolab
ENF replied to climbmtwhitney's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Has anybody ever taken the Enterolab tests and NOT gotten results that were positive for gluten sensitivity or intolerance? -
Chopin Vodka is made from potato. It's not hard to find in liquor stores and is considered by vodka experts to be one of the best tasting vodkas in the world. I'm no expert, but it tasted pretty good to me. There is at least one other potato vodka, but I don't remember the name. Open Original Shared Link
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ARCHIVED Anemia And Gluten Intolerance?
ENF replied to brittluck's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Remember that Celiac is only one of many causes of anemia. About seven years ago, I was extremely anemic, and my ferritin level was zero. At this time, before I was diagnosed with Celiac, I had colonoscopy, middle bowel, and non-celiac specific endoscope tests done to see if there were problems. The results were all negative. The doctors were not looking... -
Thanks for posting the article. This is quite something. It's the second Celiac article is as many days to appear in the New York Times - which means that millions more people will now be aware of it.
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ARCHIVED - Alba Therapeutics Corp: New Data For At-1001
ENF replied to ENF's topic in Publications & Publicity
I understand where you're coming from, Larry, but the suits and the scientists at Alba could be on different wavelengths. At least it's a start, and that's something. If they get it on the market, other research will hopefully follow. I do not understand if AT-1001 is supposed to be a complete protection against immune responses to any amounts of gluten...