ENF
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Latest Celiac Disease News & Research:
Everything posted by ENF
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ARCHIVED Serious Bowel Disfunction
ENF replied to marycontrary's topic in Coping with Celiac Disease
Not to scare you, but according to Dr. Oz on TV last week these are some symptoms of ovarian cancer: bloating, increased abdominal size, abdominal pain, pelvic pain, difficulty eating, feeling full quickly. -
ARCHIVED Serious Bowel Disfunction
ENF replied to marycontrary's topic in Coping with Celiac Disease
I'd first make sure that this is not a bowel obstruction - they're one of the leading causes of emergency room visits, and can be deadly. -
I use Benadryl, it's gluten-free and I never had a problem with it.
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Is the name of it British Beer Company? Thanks. Edit: OK, I looked it up and get it now.
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ARCHIVED Can Someone Please Help Me Figure This Out :(
ENF replied to imracin68j's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
If your daughter comes back positive, it does not mean that you have Celiac with false negatives, or even the genetics - she could have gotten it from her mother. I have a Celiac gene from each of my parents. As far as a "full life", we're all in the same boat - you'll just have to be gluten free so that you don't get sick. There are currently about ... -
ARCHIVED Can Someone Please Help Me Figure This Out :(
ENF replied to imracin68j's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
To answer your questions, yes a child can have celiac even though neither parent has it - but it has to be passed down genetically from at least one parent. About 30% of the population has one or both of the main "celiac" genes, but only a small percentage of those with the genes develop celiac. There are other genetics involved, as well as diet, and sometimes... -
ARCHIVED Getting Officially Tested, Trial For Treatment As Well?
ENF replied to CGally81's topic in Coping with Celiac Disease
You don't have to travel, EnteroLab does it through the mail. Again, EnteroLab's results are not considered to be a "diagnosis". -
ARCHIVED Getting Officially Tested, Trial For Treatment As Well?
ENF replied to CGally81's topic in Coping with Celiac Disease
When we did Enterolab we just filed a claim with the insurance company, and were reimbursed for most of the costs. No doctor of ours was involved in this at all. As you probably know, the results from Enterolab are not a diagnosis - they only show if you have genes and/or antibodies that are associated with Celiac and/or gluten sensitivity. The only... -
I tried to post a short video about Celiac Genes, by Dr. Alesio Fasano, but this site's system won't let me. It is not an advertisement.
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The best tests that Dr. Fine's company has are the genetic tests for Celiac and Gluten Sensitivity. If you don't have Celiac genes, it is impossible to get villi damage from gluten.
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ARCHIVED Casein? Something Else? Mild Headache Cause
ENF replied to CGally81's topic in Coping with Celiac Disease
The DPP IV enzyme is supposed to work for casein, which may help you. As far as casein, I have less trouble with goat's milk products, but even that can get to me if I overdo it so I don't have it regularly. I don't consume cow's milk, or anything that contains it, at all anymore. Oscar Meyer Deli Fresh turkey slices are gluten free, and I've never... -
I've never tried the DPP -IV product in your link, but they mention Houston Pharmacuticals which is where I think the original line was developed. I don't think that there is a chewable DPP-IV. The only DPP-IV products that I've had are from Kirkman, and BioCore. I switched to BioCore because they're cheaper. They are in capsules, and you can order them...
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Bifidobacterium lactis, in your link, looks interesting, even though it hasn't been proven in human trials to help Celiacs with gluten. There might be a type of probiotic that has it. Mine doesn't, probably because it's a vegetarian product. Another thing that I sometimes use is DPP IV (dipeptidyl peptidase), a protease enzyme forumla. I take it...
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It helps prevent D to a certain extent, for me at least. I don't know it if can heal the gut, but I am certain that it can't "digest" gluten, or protect against glutenings.
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That's an expensive product. You could buy it in capsules, and sprinkle it on your food - it's a lot cheaper. I use Kyo-Dophilus Probiotics, it's gluten free and non-dairy as well. They recommend two a day, which comes out to about 20 cents a day. I only take it once a day.
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ARCHIVED Is It Worth To Make The Trip To Columbia In Nyc?
ENF replied to blondebombshell's topic in Doctors
The child could also get Celiac genes from the father. I have one from each parent. -
ARCHIVED Is It Worth To Make The Trip To Columbia In Nyc?
ENF replied to blondebombshell's topic in Doctors
I don't know. I did it through the mail with EnteroLab, a few years ago. Since then, there are other places that you can do it with. I think that it was just a cheek swab, where you scrape off a bit of tissue and send it in. Here's a lab that's advertising on Celiac.com: Open Original Shared Link -
ARCHIVED Is It Worth To Make The Trip To Columbia In Nyc?
ENF replied to blondebombshell's topic in Doctors
No one can say, because sometimes the blood work is false negative. I think that, in your case, you should first get the gene test before proceeding to make a trip that may not be necessary. -
ARCHIVED Is It Worth To Make The Trip To Columbia In Nyc?
ENF replied to blondebombshell's topic in Doctors
I went to The Celiac Disease Center at Columbia University, where I had an endoscopy, bone density test, blood work, and consultation with the dietician. If you are going to be tested, you'll probably have to go back to eating gluten for the results to be accurate. In your case, I would get the genetic test done first, if you haven't already, which could... -
ARCHIVED Why Don't Fudgsicles Gluten Me?
ENF replied to CGally81's topic in Coping with Celiac Disease
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ARCHIVED Why Don't Fudgsicles Gluten Me?
ENF replied to CGally81's topic in Coping with Celiac Disease
I'm just wondering if you have the autoimmune responses, including villi damage and antibodies, that are usuallly necessary for Celiac Disease. You also have to have the genetics. -
ARCHIVED Why Don't Fudgsicles Gluten Me?
ENF replied to CGally81's topic in Coping with Celiac Disease
Is it possible that you don't have Celiac Disease? -
ARCHIVED Osteopenia And gluten-free Calcium Supplements?
ENF replied to hhdavid's topic in Coping with Celiac Disease
I was diagnosed with osteopenia. I use Caltrate 600-D Plus minerals, which are chewable. I also take MagOx 400 magnesium supplements. I don'y know if all Caltrate products are gluten free. Nature Made is another good brand that will have gluten free printed on it. -
ARCHIVED Question About Difference Between Celiac And Gluten Intolerance
ENF replied to CGally81's topic in Coping with Celiac Disease
The "difference between celiac and gluten intolerance" is the billion dollar question, lol! If you asked a hundred different people, who have some kind of problem with gluten, you'd likely get a hundred different answers. Can't answer your question about gluten ingestion, and tolerance, since I don't eat it at all anymore and do not allow myself to... -
ARCHIVED Experiencing Diarrhea With gluten-free Diet....help
ENF replied to kymom's topic in Coping with Celiac Disease
I take Probiotics, the nondairy types because I don't want to ingest any casein. It seems to help.