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ENF

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Everything posted by ENF

  1. ENF
    I do think that having celiac is causing some of us to have a problem with opiates, either all of them or certain types - there is a growing body of scientific studies that shows how similar gliadin is to opiates when it goes to the brain - not the opioid receptors, but ones that are very similar to them. I'm no scientist, but I'm sure that somebody who...
  2. ENF
    I agree. Alcohol is good in some cases, but in NY we're waiting for decriminalization of the other stuff for medical use - currently there's all kinds of domestic stuff floating around but it's hard to get the right varieties for specific uses, such as sleeping, pain, etc., so I don't bother too much with it.
  3. ENF
    Thanks, but I am not "sensitive to painkillers, in general", since I can take everything else including aspirin, naproxen sodium (Aleve), Ibuprofen (Motrin), Acetamiophen (Tylenol), and others. Novacaine, which is not an opiate, is also fine. Only drugs containing opiates give me problems - and these reactions are not gastrointestinal, they're more neurological...
  4. ENF
    I know that Gluten can mimic the effects of opiates in cases of Celiac. I've also heard anecdotal evidence that opiate-derived painkillers are not good for people with Celiac disease. I have never liked Tylenol with Codeine - it makes me very weak, I feel horrible and doesn't work well for pain. I was in the hospital a few months ago for eye socket surgery...
  5. ENF
    More groundbreaking Celiac research news from Dr. Alessio Fasano and his colleagues. Scientists Pinpoint Critical Molecule To Celiac Disease, Possibly Other Autoimmune Disorders ScienceDaily (Sep. 7, 2009)
  6. ENF

    ARCHIVED Whats The Deal With Drs?

    ENF replied to crimsontopper's topic in Doctors

    It seems that various states have different rules for allowing insurance companies to deny coverage for testing and other procedures. My state is pretty good in this regard, and I can usaually get whatever tests I want.
  7. ENF
    David Marc Fischer, owner of the blog Gluten Free NYC, died on Aug. 6, of a rare, agressive form of Leukemia. He was 47 years old. I never met him, but enjoyed his Gluten Free NYC blog - which is still online and contains a wealth of very interesting information and features. He was a very busy Celiac Disease activist, and will be greatly missed. ...
  8. ENF
    Alcohol (wine) and gluten (wheat) comprise the sacraments of Holy Communion, as the "body and blood" of Christ, as well.
  9. ENF
    I tried to go on Kennesaw's website, and my spyware program blocked it.
  10. ENF
    Thanks Amy, I don't plan on eating it, lol. Once in a while I have to do a reality check, because I've been so careful since learning the ropes of gluten free living over the past four years, that I get nervous when a variable like this is entered into the equation. There's plenty of non-gluten toxic things that most people come into contact with every...
  11. ENF
    I got a haircut while on vacation a couple of months ago, and the barber used a "light hold styling cream", which they also sold in the shop. I bought a tube, without checking the ingredients. I just read the ingredients, and it contains, among many other things, Hydrolyzed Wheat Protein and Hydrolyzed Wheat Starch. I have not have any skin problems...
  12. ENF
    When it was at it's worst, I had intense panic attacks with gastro problems that were way beyond what I thought was "IBS". I felt like I was going to have a heart attack, and feelings of impending doom as well. Cold sweating, heart palpitation, swings in BP, extreme fatigue and weakness were symptoms - even at bedtime. Most of these symptoms have been...
  13. ENF
    Before I found out that I had Celiac, I thought that my dysautonomia was due to mitral valve prolapse (which I have), but I now believe that it's caused by years of undiagnosed celiac and the valve irregularities as well. Fish oil supplements, magnesium, and calcium work well for me as a general treatment for my neurological problems. I stopped...
  14. ENF
    I stopped having dairy products a couple of years ago, due to casein and lactose issues. At the time, most "dairy" that I was ingesting was cow's milk products. I had tried goat's milk once or twice, but I was not yet healed enough to notice any difference. Earlier this week, I decided that it was time to try goat's milk again, so I got some goat's...
  15. ENF
    To tell you to continue to eat gluten is about the worst advice any doctor could give you. I've been to several doctors who were trained in China and Russia. While they were not taught anything about Celiac Disease, once they learned about it at least they acknowledged it's existence and recognized the importance of the gluten-free diet.
  16. ENF
    I also use Source Naturals Essental Enzymes. They won't interfere with your diagnosis or treatment. I take probiotics, and intend to get some goats's milk kefir later today - which is also loaded with beneficial stuff for the intestines. I have never had a problem with constipation. If you haven't already, I'd suggest trying more natural remedies than...
  17. ENF
    Stop & Shop in Brooklyn, NY, also has gluten free sugar cocoa ice cream cones, by Goldbaum's.
  18. ENF
    There are stool tests for gluten sensitivity, but Celiac Disease cannot be diagnosed through a stool test. The only accepted medical tests are through blood tests and endoscopy/biopsy procedures. A blood test is usually first performed for determining whether Celiac Disease is present. A positive blood test is usually a very good indication, but false...
  19. ENF
    How about magnesium supplementation, with calcium? Of course, you may not need it since your diet is so healthy, but most people do, including non-celiacs. Among other things, magnesium makes my heart's mitral valve prolapse (murmer) less annoying. Because I have reason to believe that cow's milk casein is bad for me, I've been dairy-free for several...
  20. ENF
    New York City is the number one travel destination in the world for Gluten-Free dining accomodations. Lilli and Loo, on the Upper East Side, is fantastic - my current hands-down favorite Asian food place in NYC. I was diagnosed 4 1/2 years ago, so I can remember eating at many similar restaurants in NYC, and elsewhere, before going gluten free. The food...
  21. ENF
    Double post
  22. ENF
    Hello, There's a number of places in NYC that have menus with gluten free choices. Most of them are easily found on the internet, and in past posts here. While these restaurants are varied and (usually) safe for gluten intolerance, there are also many other places in NYC which have delicious food that is naturally gluten free. This is the subject...
  23. ENF
    Imagine being a Celiac patient who is hospitalized, with nobody as their advocate, and the meals are prepared by a staff that doesn't have a clue - and the hospital's "dietician" has never learned about gluten intolerances, or how to feed people who have them. Recently, I was in the hospital and this could have happened to me, but fortunately my wife was...
  24. ENF
    I stopped consuming all cow's milk product several years ago, and have used Vance's DariFree potato milk as a substitute. Goat's milk products are more easily digestible by people who have problems' with cow milk. I've had it in the past, and plan on getting some goat milk cheese, and yogurt, later today. Recent studies suggest that it is healthier,...
  25. ENF
    Glad you posted this. I expect to have the August issue in few days. It sounds like it's very interesting, as well as being an excellent source of accurate information in the publicity and public awareness department.
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