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SpikeMoore

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by SpikeMoore

  1. SpikeMoore
    Hi Reading your post sounds like many of us here. I guess you have to decide how important an official diagnosis is to you. I stopped at hearing "your blood test was negative, therefore you do not have celiac". I felt like an idiot for bothering the doc in the first place. But reading here, only positive tests mean something. So, I don't care, the proof...
  2. SpikeMoore
    Hi and welcome You will find this forum extremely helpful. I encourage you to research and read here. I'm a relative newbie too. I have found great help here and the experienced people that post here are very helpful both with knowledge and moral support. I am guessing that you had some sort of symptoms to lead to a gastro's office. Try the diet and...
  3. SpikeMoore
    Hi Peggy I had a very similar experience. My GP biopsied a lesion, not the clear skin next to it, and it came back "inconclusive", but like you, I was told that it could be DH. And, like you, I did a little research and the light bulb went on as I linked the digestive symptoms, weight loss, anemia etc. So I started gluten free immediately and had no more...
  4. SpikeMoore
    Hi There I suggest seeing an eye doctor, either optometrist or ophthalmologist, ie someone who looks at your cornea and conjunctiva with an instrument called a slit lamp.
  5. SpikeMoore
    Hi There My advice would be to re-do the ultrasound. I am wondering about endometriosis and specifically an endometrioma (ovarian cyst of endometrial tissue that can leak and cause spotting). Although with endo, periods tend to get heavier as time goes by. Also, pick up the book "taking charge of your fertility". It has excellent info on cycles even...
  6. SpikeMoore
    Just a follow up, the box was gone when I returned to work, the janitor had been in, so I won't know if it was the caramel or caramel colour.
  7. SpikeMoore
    Thanks for that excellent and concise explanation, Tricialee!
  8. SpikeMoore
    Has anyone had swollen lymph nodes in the same area? On occasion when there has been a particularly large blister, I have noticed that the lymph nodes in the area get a little tender and swollen. I am guessing that it could be from the autoimmune system being overactivated in the first place. If there are several smaller spots, this doesn't seem to occur...
  9. SpikeMoore
    For what its worth, as I had an inconclusive biopsy, before I went gluten free, I would get them after a work out. Often along an elastic band area. Went gluten free 2 months ago and none since.
  10. SpikeMoore
    That's so interesting. I too have noticed fuller breasts (easy to notice when you hardly had any) and improved dark circles. Other than the commonly noticed improved GI tract, I also have noticed no longer being covered in bruises and no more itchy rashes. I went gluten free 2 months ago.
  11. SpikeMoore
    You're right. I'll check at work on Monday and get back to you. I cannot recall if it was caramel or caramel colouring. But the box did say may contain gluten and I didn't see any other ingredients that were suspicious.
  12. SpikeMoore
    Deb My situation is very, very similar to yours. The GP said that this recurrent itchy rash may be DH, so I read about it and its connection to celiac. I went on the diet when I thought about my use of Alka Seltzer over the years and all of the other related things fit. I got negative blood work after 4 weeks or so of gluten-free. I did eat gluten 5 days...
  13. SpikeMoore
    Hi On the caramel thing. I work in an office and we got a box of fruit jelly candies from one of our suppliers for Christmas. We opened them when we got back to work and I scarffed down about 6 Wednesday. Wednesday at 1 am I woke up with the old familiar stomach discomfort had had to take some pepto. I went into work Thursday and read the box. They...
  14. SpikeMoore
    Within 4 days I woke up and felt a sense of well being internally. I called it "happy guts". I hadn't realized what it was like to feel normal in years. I realized that there had always been a low grade discomfort. It's been 2 months and I still feel great. I've gained 5 lbs (needed them), bruises gone, dark circles under eyes gone and no more itchy...
  15. SpikeMoore
    Hi there I too had an inconclusive biopsy, but it was a lesion that was biopsied (I've read it should be on clear skin). Most of the spots looked like bug bites, but on a close look, had a tiny blister on the top, but I understand that these are easily scratched off by most people because they are so itchy. Locations the same as most of you. For me they...
  16. SpikeMoore
    Thank you for your replies. It certainly is very interesting to know that others have such similar situations. I'm 36 years old and haven't totally given up on having a baby. Anyone have any sucess after going gluten free? Am currently on the pill to control a type of ovarian cyst from endometriosis. Once it is surgically removed in the spring, I...
  17. SpikeMoore
    Hi there I am wondering if you must have a symmetrical rash to be DH. I only get rashes on one side or the other at one time, but they are suspicious for DH in all other respects. Also wondering about the location of the biospy. Is it a lesion that should be sampled or an area of skin that is not in the rash that should be sampled? My GP took a lesion...
  18. SpikeMoore
    Hello everyone I'm new but have been reading for a couple of weeks. Had a negative blood test but for me the circumstantial evidence is significant so i will continue gluten free. I would like to ask for some input from you as you sound quite knowedgeable on the topic. Briefly here's the history itchy recurrent rashes on buttocks, legs, arms and...
  19. SpikeMoore
    Hi There Add another one that soaked through a tampon and pad every hour for 1-2 days with occasional severe cramping. This may be suggestive of endometriosis and I think there may be a link. I have this and am on the bcp for now until I can have a laproscopy to remove the endometrioma on the ovary. I have just gone gluten free for a month and feel great...
  20. SpikeMoore
    Hi There I've had a very similar inner forearm thing over this summer intermittently. Also on the legs, back of neck and lower back but never in the classically described symmetric pattern. GP took a biopsy which was inconclusive. He threw out the possibilty of DH in conversation and I read a little and went gluten free as an experiement. Felt great...
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