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NewB

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by NewB

  1. NewB

    ARCHIVED I Give Up On Eating.

    NewB replied to a topic in Coping with Celiac Disease

    Many celiacs have milk issues, too. But your symptoms sound iron/folate related. it has taken me a year to dial in the the sublingual B12, Active Vit B ,6 Folate and Iron needs. We, apparently, lack some enzyeme that absorbs these properly...I had numerous blood test and no one said a word to me about it. Then I started on the b12 (must be shots or under...
  2. NewB
    You are 110 per cent certain that you are not casein intolerant??? I personally avoid all packaged foods...a wee bit of soy sauce can set me off.....the gut is really "old" and it doesn't react well to all these "modified this and thats" and i have stared on digestive enzyemes
  3. NewB

    ARCHIVED Elevated Ana

    NewB replied to de caps's topic in Related Issues & Disorders

    ...Gobs of people lack certain enzyemes that diget certain foods..it's genetic!!! ANA is buildup of of plasma born proteins--peptides--like fibrins or CRPs...changing your diet alone may not be enough (God I sound like a commercial...but honestly, I have been trying to get feedback about this new enzymatic treatment --newly posted) and it has really worked...
  4. NewB
    I was gluten free for almost a year ( and still felt unglued) until I started using sublingual B12 and elimineted Casein....but honestly, the first time i put that thing uner my tongue I thought I was reborn
  5. NewB
  6. NewB
    Hi, Just had to answer since no one else will... this is an odd message board. I reccommend the Chebe breads (but use goat milk where needed) as a pizza dough etc....the site also has a couple decent cake mixes (again, watch for that casein)....bigger orders are cheaper to ship...Do you have any alternative type markets where you live ch ....are they willing...
  7. NewB
  8. NewB
    Check out the Enzymedica web site....I started them and have far less less pain in neck and hands...they are ungodly expensive but so far give me hope...they have a gluten ease one...but i only take it if i think my food has been contaminated...Your best bet is to always be Gluten-free Casein-free but these enzymes might help
  9. NewB
  10. NewB
    Sorry.. forgot about the iron def...check all folates etc...do sublingual B12 (as methycoblamin) so your body can assimilate it ( or B12 shots if you can afford it) as well as P5P/Pak B6 tablets along with a normal Super....Again, a lot to be learned about "absorbtion" of every nutrient etc on Wikipiedia
  11. NewB
    Hi Sam, It's a long hard battle...I hope you have better luck with this site (from a truly academic standpoint) than I have since I first logged on....but some general ifo: Firstly, I went a long time wothout realizing that cow's milk was just as bad as gluten for me (and other celiacs) and so I suffered big time. Just check out Wikipedia to find out...
  12. NewB
    Am wondering if anyone has feelings about products like GlutenEase and other enzyme treatments that digest certain proteins in the stomach before they (supposedly) become toxic in the smalll intestine; and while we are on the subject--probiotics; If you "KNOW' you are casein intolerant and very sensitve but you are assured that .001 percent milk will not...
  13. NewB
    Brilliant!! Beer again...though i had one in Guatemala last month (people told me it was rice beer--but it didn't taste like sake) and no reaction!!!
  14. NewB

    ARCHIVED India?

    NewB replied to justme's topic in Traveling with Celiac Disease

    Yes I spent a great deal of time there in the 80's...where do you live? Perhaps trying Indian food out first would be a good idea. You really will have a lot of choices...it's very vegan and Paleo based food
  15. NewB
    Carrie, Go to Essential Day Spa dot com ( In Van, I think)...they have everything under the sun, but I liked the Decleor line Climatique when I lived in Wyoming...meant for sub zero temps and all botanical based...
  16. NewB
  17. NewB

    ARCHIVED India?

    NewB replied to justme's topic in Traveling with Celiac Disease

    There will be lots of things you can eat: Dal (lentils cooked with many different curries depending on where your cook is from) aloo (cabbage) potato dishes just to name a few... Chicken Tikka and lamb dishes--you will just need to avoid Chapati (a wheat tortilla) and Nan (a bread) that comes at nearly every meal. There are also Pappadum which are a southern...
  18. NewB
    Hi! My user name says it all: However someone recently gave me L-Glutamine to help "build my immune system" It is supposed to "aid rapidly growing cells (immune system lyphocytes and intestinal cell enterocytes). ..and is a nitrogen transporter." I've just started to read about the peptide chains set off by certain proteins affecting celiacs... and, well...
  19. NewB
    Thank you! I'll look at Nina's now...no one ever gets my jokes... "help" insurance etc...but I am a goose in new world here: Never been in a chat room, never posted antthing on a forum before...just been reading in an online encyclopedia...there is a celiac artery, celiac plexes,celiac ganglia etc etc...I seem to be having "refered pain" from these areas...
  20. NewB
  21. NewB
    The best advice is as everyone says: Stick with it...it took a while for me to just slightly improve with all the multiple symptoms and I sometimes wonder if I'll ever be completely normal again...but things got better...but now I am worrying about soy (since reading this forum). You have to be vigilant. Good luck!
  22. NewB
  23. NewB
    Just "diagnosed" (figured it out myself) after my Dr just kept treating me like a hypochondriac. So, like jhun I have questions and wonder about the best way of sorting through all this. I am on the West Coast so perhaps there is no one out there right now who can help--but any info is appreciated. Oh, and i lost my help insurance right after being "diagnosed...
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