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cyberprof

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyberprof

  1. cyberprof
    Hmmm...interesting question. Putting aside height, as you said, when would puberty occur? Or would it be missed altogether? It looks like there are some conditions where it has never happened for some boys, mainly due to genetic diseases or pituitary diseases. I know celiac (or the resulting malnutrition) can definitely delay puberty but assumed it would...
  2. cyberprof
    Sounds good. The problem with celiac is that no one knows how each individual is reacting and how much is being absorbed, even during gluten-free recovery. What we tried to do is to supplement so that at least the minimum would be absorbed, because the premise is that during the gluten-ingesting period, not enough was absorbed. And the other premise is...
  3. cyberprof
    The study that I posted the link to earlier said that they administered 6000 IU of Vit A per week and 12 mg of Iron per day. So your Carlson's looks pretty strong. Toxicity of Vitamin A for a child at your son's weight would occur at 67,500IU per day, according to Wikipedia, so you're still pretty low. But perhaps he should only take one softgel per day...
  4. cyberprof
    Yes, they are very similar. We'll never know if going gluten-free caused all these changes in my son, but we believe it did. Couple things: Studies say that adults take 2-5 years to heal their intestines to allow adequate absorption of vitamins/minerals, but children may heal in 6 months. So the fact that you haven't seen changes yet isn't bad. The...
  5. cyberprof
    Anthony, our story is similar. It took me a while after I was diagnosed with celiac to suspect that that was my son's problem too. The only problem was that his blood test was negative. My son was 15, not in puberty (zero testosterone via blood test) and had a bone age of 12.1 when I refused to take "no" from the doctors. I'm only 5'2" but my husband...
  6. cyberprof
    Interesting. Something that I've been obsessing about lately, too. I just yesterday volunteered at Angeline's, a homeless women's shelter in Seattle and when we toured the kitchen I was just about to ask "What do you do for people with food sensitivities, like wheat?" when I spied three packs of rice-based wheat-free hamburger buns, and they were gone...
  7. cyberprof
    Scarlett's mommy, I read your post here and the first one and we all can relate in various ways to your anger. For practical strategies, I suggest that you get a slow-cooker and look at the recipies on this site: The writer has a celiac daughter so all the recepies are gluten-free and they are really recepies that are good for people who don't cook or...
  8. cyberprof

    ARCHIVED Negative Blood Test?

    cyberprof replied to 123glutenfree's topic in Doctors

    I don't know if anyone can answer your questions with any certainty, but I know that blood tests often show a "false negative." And - I am an example of this - you can have negative blood tests and intestinal damage. If you have an intestinal biopsy one week after going gluten-free, it is illogical to expect that total healing would have occured in that...
  9. cyberprof

    ARCHIVED PCOS And Celiac

    cyberprof replied to Eliza13's topic in Doctors

    My new internist (who is herself gluten-free but not celiac) says that NOBODY should eat gluten (except perhaps Asians with double DQ4).
  10. cyberprof
    I too think that the symptoms will go away. I have to say to hang in there...the Mirena was he best thing to ever happen to me, BC wise. I wish I had had it put in years earlier. It is worth it.
  11. cyberprof
    So far, you and I are the only ones. I haven't found any link in medical journals but like other diseases related to celiac, there isn't much research because celiac is relatively rare and fuchs is more rare. Have you had any cornea transplants?
  12. cyberprof
    Good thing I didn't get the deafness gene, as I might end up deaf AND blind!
  13. cyberprof
    Korwyn, a very wise post. P.S. I love your signature, Korwyn. My dad has given me two genetic diseases (celiac and Fuchs Distrophy, a degenerative corneal/eye disease) so I just LOL'd at your signature!
  14. cyberprof
    Many of the folks I know with colitis have celiac too. I think (and hope) that you'll be able to get it under control. Try a whole-foods diet: Eat white rice (plain maybe some salt or olive oil if you can't stand it), chicken or turkey (get plain, raw chicken and cook it plain), green beans, cooked pears. Eat just these things for a few days - breakfast...
  15. cyberprof
    eborzecki, just chiming in to say that he married you (and you, him) for in sickness and in health. Just think if it was reversed, you wouldn't love him or care for him less. And ravenwood (as always) is right that this way you may save yourself from cancer, diabetes and other EXPENSIVE and scary diseases that undiagnosed celiacs are more at risk for...
  16. cyberprof
    I think I used a 15 or 16 oz ricotta. I think it wouldn't matter very much either way. Maybe I'll try it with marinara only instead of bechamel, as I'm losing weight and watching calories so I've been craving it, but haven't given into temptation!
  17. cyberprof
    Awww...this made my day! Glad you liked it.
  18. cyberprof
    Espresso, I feel for you and I've been there. I haven't had time to read the whole thread, so I apologize if I'm saying the same thing that others have said. I have tried eating from the stated "safe" buffet salad and entrees that the servers said was gluten free. Never again. What I have done is to call the organizer and get the name of the catering...
  19. cyberprof

    ARCHIVED I'm Back!

    cyberprof replied to K8ling's topic in Coping with Celiac Disease

    I'm such a sap. It brought tears to my eyes. I hope dad gets to see Jacob soon and wishing you all the best.
  20. cyberprof
  21. cyberprof
    I agree with this. I had a co-worker who claimed to be allergic to many foods including wheat. But she'd eat it anyway, and thus lowered my credibility. This was the place with the big birthday cake every month to celebrate peoples' birthdays...and they never got me a gluten-free cake after being there several years. So I stopped going to the party and...
  22. cyberprof
    My local Whole Foods/paycheck has all the gluten-free products grouped together in the front of the store when you walk in. They are almost never out of what I need, although I don't go there as a first choice. (My first choice is Puget Consumer Co-op, which is much cheaper...sometimes PCC is even cheaper than the mainline grocery stores except for meat...
  23. cyberprof
    I've been making marinara myself but I forgot to thaw it so I used store-bought. Homemade ricotta sounds good...I've been too busy to learn but I should try.
  24. cyberprof
    You're welcome!
  25. cyberprof
    I think that if you use too much cornstarch it does make the result like jello. But I use cornstarch (reduced amount) in all my sauces that call for a flour roux. But this is what I do: The directions for cornstarch say to use half the amount of cornstarch as the recipe indicates for flour. For example, if a recipe calls for 1/4 cup (which is...
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