woolwhippet
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Latest Celiac Disease News & Research:
Everything posted by woolwhippet
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ARCHIVED Wondering If Someone Here Can Help Me
woolwhippet posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi all, I have never been officially diagnosed as having celiac disease and the genetic test I had done showed that I was DQ4/DQ7. BUT if I eat gluten I get sick, so I don't eat it. Last week I found myself in emergency with stomach pains. I wound up being kept over night and having loads of bloodwork and a ct scan. There is something going on but the... -
I think Germany does it up right!
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Where I am, in Canada, Boxing Day has become a major shopping frenzy. Amazing sales. When I was a child boxing day was a lovely day when everything was still closed and we spent the day playing board games and visiting friends. What does the USA have the day after Christmas?
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ARCHIVED Eating What Other People Cook
woolwhippet replied to woolwhippet's topic in Coping with Celiac Disease
Ha ha ha! The image of this is great! I can see your Dad eating that filling and passing the empty shell to his wife--true marital harmony. It's sad that you won't have that food haven you were hoping for. I also truly believe in the "spectrum" theory of gluten sensitivity. My Uncle is super super sensitive and of his 4 children one is slightly sensitive... -
I've been there! I don't know how to make the glutening feel better--seems to be a matter of time thing. But, my secret to not needing those foods I should avoid is to have even better alternatives in the house and to try to never let myself get so hungry that I don't care what I eat. I hope you feel better soon!
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Go gluten free for a good amount of time. I am about 8 weeks gluten free and the mystery rash on my buttocks and scalp has really cleared up--just purple marks and a few spots with the surface area of insanely itchy spots being greatly reduced. For years I thought I had an odd ingrown hair problem or psorisis or something but was too embarassed top talk to...
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I am so happy for you. You are lucky to have wonderful parents but they are alo lucky to have a child who appreciates their efforts!
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ARCHIVED My Blood Test Came Back Normal
woolwhippet replied to Sootie Patches's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Jen, you can still be reacting even with a neg blood test. People here will attest to that. Listen to your body--you are probably right! -
ARCHIVED How To Do Objective Gluten Testing Home?
woolwhippet replied to threedee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is very clever! If you try it please tell us how it worked. -
ARCHIVED New Study Reveals Second Gene For Celiac Disease
woolwhippet posted a topic in Publications & Publicity
Here is an excerpt from the University of Dublin, July 07. I was excited to read it! Anyone know more or is this brand new? "A new study which involves joint efforts of researchers in UK, Holland and Trinity College Dublin has resulted in the identification of a new genetic association of coeliac disease with the immune-related IL-2 and IL-21 genes. This... -
ARCHIVED Blood Testing Reference Ranges Vs "positve" For Celiac
woolwhippet replied to woolwhippet's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks again Nora! -
I just have to say how much I appreciate all of you here. This board has given me the courage to listen to my body and the support to stick with a diet that has made all the difference to my health. If I couldn't come here and see that there are others out there benefiting from and sticking to a gluten-free diet despite neg blood work and gene tests who...
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ARCHIVED Eating What Other People Cook
woolwhippet replied to woolwhippet's topic in Coping with Celiac Disease
Thanks all for the great suggestions. I will talk to her about it--you are right, it's better she know from me because there is a lifetime of family functions ahead. This is such karma for me because I used to be a little critical of "those people" with "food issues". Now I am one! Serves me right. -
I have a lovely mother in law who is bending over backwards to accomodate me. Last sunday she took the time to prepare 'gluten free' meal and dessert for me. I have had d all week and I know it came from that meal. She is a very strong minded woman and for her to go to all this trouble is a big deal and I don't want to insult her but I also can't continue...
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ARCHIVED Anyone Post Partum Still Struggling W/preg Weight?
woolwhippet replied to 2plustwins's topic in Related Issues & Disorders
I am feeling for you! I really like the advice the doc gave you. Sounds like a very open minded guy. I gained a big chunk during my second pregnancy and held on to it well after. Be VERY kind to yourself--keeping in mind that sleep interuptions can cause people to hold on to weight and with toddler twins I am sure you have those! Get the gluten-free diet... -
ARCHIVED Blood Testing Reference Ranges Vs "positve" For Celiac
woolwhippet posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had the ttg-iga test done and was told the results were negative. I had 4.0 and to be positive (I am assuming positive for possible celiac disease) you would need to be 10.0 or more. Then today I noticed that the lab who ran the test had redone their website and one of the improvements was to post all reference ranges for the tests they do. According to... -
ARCHIVED How To Do Objective Gluten Testing Home?
woolwhippet replied to threedee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well, the test I gave myself was hardly scientific but it did create a reaction that was measurable. I did an overload test that I read somewhere and do not reccomend. I ate 3 cinnamon buns (made without dairy)n on a wed afternoon and seemed fine until thursday at 1pm when violent 'd' struck. I had done the same test 6 months ago with toast and had the same... -
ARCHIVED Why Do People Lose Weight After Being Diagnosed With Celiac?
woolwhippet replied to arsilva's topic in Sports and Fitness
I have lost 4 pounds in the last eight weeks. I think I have lost this weight for 2 reasons. The first is that while I was so sick I think my body thought it was starving and held on to every spare calorie. Now it's not starving and the excess is coming off. The second reason is that I feel well enough to excercise and have energy for all kinds of things... -
It's so frustrating to backslide in fitness! I am on week four of regaining strength and it's going pretty well. I had a personal trainer/physiotherapist/ex national gymnast get me started with back to basics strength routine that I can do in my home every day for ten-15 minutes coupled with cardio (walking) 3x per week. I think having a trainer start you...
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ARCHIVED Help!negative Test Blood Test Results-but Have Dh?
woolwhippet replied to carlaj357's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is some info I found after my own neg blood test: "if a person stops eating foods with gluten before being tested, the results may be negative for Celiac Syndrome even if Celiac Syndrome is actually present. About 2% of people with an IgA deficiency have false-negative results. The lab that does the testing does matter. Some labs have "normal... -
I am English and Irish with a touch of French Canadian and First Nations.
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ARCHIVED Anyone Else With Keratosis Pilaris?
woolwhippet replied to shai76's topic in Related Issues & Disorders
Yes--my arms are smooth now! How bizarre. -
ARCHIVED Her Celiac Disease "went Away" ?
woolwhippet replied to tiffjake's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
YES! One of the Dads at school had celiac disease as a child and says it went away when he bacame an adult. Maybe it was an allergy instaed as those can resolve sometimes. Either that or their intestines have healed up and in a few years from now they will be sick again. -
ARCHIVED Would Someone Like To Coment On Confusing Genetics Results?
woolwhippet replied to keepinthefaith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm a DQ7. It's taken me years to discover what was making me sick. Your daughter is lucky to have a heads up! From the research I have done it seems that the DQ7 code's very similar to the DQ 8. I have this hunch (and I am not a scientist so if what I say is wrong please correct me someone!) but I hypothesize that it has something to do with the DR B1...