woolwhippet
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Latest Celiac Disease News & Research:
Everything posted by woolwhippet
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ARCHIVED Anybody Using The Carbohydrate Specific Diet?
woolwhippet replied to Offthegrid's topic in Coping with Celiac Disease
Me! I've done it. I started it only after much frustration with chronic 'd' and a bunch of other symptoms. I was really skeptical but 4/5 days after starting the diet I had a solid bm and then reliably solid ones for the duration of the diet. The food is good and actually not that restrictive once you get used to it. I honestly didn't beleive I'd be able... -
ARCHIVED Genetic Test Results Interpetation
woolwhippet replied to LELELUNA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am DQ 3,7 and DQ4 and my blood work was neg but had 'd' , fatigue, mild depression, anxiety, and an odd rash on my bum. The only thing that has stopped all these symptoms is the gluten-free diet. I am now 5 weeks gluten-free and feel like the energetic positive person I was ten years ago. A truly amazing turn around for someone without the official celiac... -
ARCHIVED Does Anyone Actually Feel 100% Better?!?!?!
woolwhippet replied to LilyCeliac's topic in Coping with Celiac Disease
Dairy is a great place to start! I'd put money on it that it's the culprit... -
ARCHIVED Microscopic Colitis--what Do You Know About It?
woolwhippet posted a topic in Related Issues & Disorders
I am curious to know more about microscopic colitis. The good, the bad, and whatever else. This is such a smart group of well read people! -
ARCHIVED Got Enterolab Gene Test Results Back Today
woolwhippet replied to woolwhippet's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I went with the gene test because I know I react to gluten through many months of elimination diets, so I decided just to have the gene test out of curiosity because I felt that the antibody test would tell me what I already know. I also wanted to exclude celiac disease and differentiate between celiac and sensitivity. I am so glad I did the gene test because... -
ARCHIVED Got Enterolab Gene Test Results Back Today
woolwhippet posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Okay, I have the results. I have neither of the main celiac genes but I do have one gluten sensitivity gene. HLA-DQB1, ALLELE 1, 0301 HLA-DQB1, ALLELE 2, 0402 Serological equiv: HLA-DQ 3,4 (subtype 7, 4) So, I am not celiac but it does support why I am reacting to gluten. I am off to find out more info... -
ARCHIVED I Am 2 Weeks In To Diet, Am I Doing Something Wrong?
woolwhippet replied to aeshlea's topic in Coping with Celiac Disease
well, I am into week four of gluten-free and my issues are now starting to resolve. I have had on and off symptoms just like you and it seems complicated but I have figured out that the symptoms were from accidental glutenings, gluten-free packaged products, too many other grains and starchy foods, and dairy. When I eat very simple foods (meat, veg, nuts... -
ARCHIVED Top Three Worst Gf Products
woolwhippet replied to anerissara's topic in Gluten-Free Foods, Products, Shopping & Medications
Maybe the save on foods manager could contact the manager at Planet Oranic (my second home here in victoria) and share supplier info? Here is a link to their website: Open Original Shared Link -
ARCHIVED What Happens To You When You Are Glutened?
woolwhippet replied to tbradley93's topic in Coping with Celiac Disease
Extreme fatigue, followed by stomach cramps, followed by the big "d", followed later by an itchy butt rash. It's lovely. Really. -
ARCHIVED I Need To Take Cross Contamination 101
woolwhippet posted a topic in Coping with Celiac Disease
I am having trouble with cc. I have bought myself cookie sheets, muffin tins, spatulas etc that are gluten free. I use separate butter and mayo etc. I have my own toaster. But somehow I am getting cc'd. So, say I make my child a sandwich and forget to wash my hands afterwards, is that enough to cc? Just wondering what you have experienced. -
Chloe--I am so glad you brought this up in this safe place with these wonderful, supportive people. What you are talking about is called distorted body image--and you are NOT alone. It effects thousands of people. Usually people have these thoughts or feelings when something else is not quite right for them. It's complicated! If you ever used food to soothe...
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ARCHIVED A Grain-free Diet
woolwhippet replied to Mango04's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've done it. It's actually pretty good! I am eating grains in small amounts now but still use almond meal by choice as my flour because it is much moister than rice flour. I suggest you read up on the specific carbohydrate diet and then modify it to suit your needs (this is what I have done and feel great). I did not feel deprived and loved learning to cook... -
ARCHIVED Burning Skin
woolwhippet posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have been off gluten for a few weeks. Over the past few days my legs and arms have been burning they are so itchy. I don't see a rash--just intense itching. Is this part of gluten withdrawal or something entirely different? -
ARCHIVED Watch Out For Imitation Crab...
woolwhippet replied to woolwhippet's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for the well wishes. I am learning fast! -
ARCHIVED Watch Out For Imitation Crab...
woolwhippet posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I was trying to figure out exactly what about the sushi I ate made me sick and discovered that imitation crab has gluten. Thought I'd pass that on for those who don't know yet. -
ARCHIVED Is This Normal? Tummy Problems After Going Gluten Free.
woolwhippet replied to Peej's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am in the healing process right now too. I have been on and off gluten for six months now and my dr tested for chrones and colitis because I still had d off gluten. For me, I had soft stools for a while a few times per day and then the d went from 3 times per day to 7 and the 14. While searching the bookstore for answers I found a book called "Breaking... -
ARCHIVED Gluten Free Candy Bars
woolwhippet replied to Kathy'sUnicorns's topic in Coping with Celiac Disease
What's the scoop with mars bars? -
ARCHIVED Self Disgnosis
woolwhippet replied to woolwhippet's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You know, I am now wishing I had ordered the full panel but I was trying to be cost effective! I had justified in my mind that if I have the genes then I will never again eat gluten so as not to trigger a response. I also thought it would be a good way to rule it out--you know, no genes, no celiac. Wishful thinking! -
ARCHIVED Self Disgnosis
woolwhippet replied to woolwhippet's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks--I may try your method if I have the courage! Yes, I am Irish. And it is my Irish side that all are confirmed celiacs. I guess the whole Irish conncetion is true then! -
ARCHIVED Self Disgnosis
woolwhippet posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
i had the anti tTG done in may and my result was 4. It needed to be 10 to be positive. So I continued to eat gluten, got terribly sick, stopped eating gluten and got well. My doctor (and I live in a place where you can't up and switch doctors because there simply are not enough doctors to go around) was adament that I must be ill for another reason so ordered... -
Over the last 18 months I realize that I have withdrawn from most of my friends. I have been sick and feeling gross and worried about being near a bathroom, and feeling a little crazy. So I am sitting here realizing that is has been a very long time since I had a friend over for a cup of coffee or initiated any one on one social stuff. I am telling myself...
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ARCHIVED It Took One Week To Be Calm Enough To Write This
woolwhippet replied to mamabear's topic in Doctors
If they had to sh**t 14 times a day those doctors wouldn't be so dissmissive. Sorry, I am bitter. Been told a few too many times that it's all in my head. -
ARCHIVED How Long Until The Body Is Healed?
woolwhippet posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
How long after being gluten free will it take for nutrient stores to be back to normal? I am sure it's different for everyone but does anyone know a timeline? -
ARCHIVED Diet Related Question
woolwhippet replied to woolwhippet's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you thank you! I think what you say makes perfect sense. I will add rice 1st and go from there. I don't think I will go back to those proccessed foods in any great quantity. Thanks again. -
ARCHIVED Diet Related Question
woolwhippet posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello! I havebeen on and off gluten for the past year or so after gradually getting sicker and sicker. The reason for the off and on was a negative blood test. I took the neg as permission to go ahead and eat as always. Of course, I wound up sicker than I have ever been. So last week I gave up gluten entirely. The 4 days ago I started the specific carbohydrate...