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Russ H

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Everything posted by Russ H

  1. Russ H
    Interesting. I found a publication on this for Scotland. 8% of ware potatoes received treatment for sprout suppression. The most common treatments were ethylene gas 4% (harmless) and spearmint oil fog 3% (harmless). 1% was with 1,4-dimethylnaphthalene, a plant growth regulator that occurs naturally in potato tubers. Also approved is orange oil. The fungicide...
  2. Russ H
    Barrett's oesophagus is caused by chronic damage to the lining of the oesophagus from acid reflux. Acid reflux is common in people with coeliac disease (studies showing up to 30% suffer from it at diagnosis). Is there a link between GERD and celiac disease?
  3. Russ H
    Joint and tendon disorders are common with active coeliac disease, even if subclinical. Arthralgia and arthritis can occur directly due to coeliac disease without the involvement of rheumatoid arthritis. This can manifest at a single location or multiple locations around the body. The aetiology of coeliac disease involves the production of antibodies...
  4. Russ H
    People with coeliac disease have an altered gut biome compared with those who do not, which may be associated with gut inflammation. Although the gut biome recovers on a gluten-free diet, there are still significant differences at 2 years. In a mouse model of coeliac disease, supplementation with the soluble dietary fibre, inulin, increased the number...
  5. Russ H
    Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
  6. Russ H
    This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the...
  7. Russ H
    I used to react very badly to milk - much worse than to gluten and I was always worried about exposure. Any diary product would make me extremely ill and put me out of action for 5 days or so. I would have watery and bloody diarrhoea, bloating, malaise and be unable to eat. If I recall correctly, it was about a year after being diagnosed with coeliac disease...
  8. Russ H
    What you describe is seronegative villous atrophy (negative antibody tests but positive biopsy). It is uncommon in coeliac disease, and there are other causes, but the most common cause is coeliac disease. I would pursue this with your healthcare provider if possible. Based on clinical history, test results and possible genetic testing for susceptibility...
  9. Russ H
    Hello Surinder, and welcome to the forum. Thank you for sharing your experience. Have you been diagnosed with coeliac disease? Although less common, there are reports of coeliac disease being associated with pulmonary conditions causing symptoms such as a chronic cough. Case Report: A case of cough, lymphocytic bronchoalveolitis...
  10. Russ H
    Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting...
  11. Russ H
    I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled...
  12. Russ H
    The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much...
  13. Russ H
    I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles...
  14. Russ H
    BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
  15. Russ H
    For people who can tolerate oats, Marks and Spencers sell a nice loaf: https://www.marksandspencer.com/food/made-without-wheat-gluten-free-oaty-loaf/p/fdp60140058
  16. Russ H
    This is the test KelleyJo is referring to: Blood-Based T-Cell Diagnosis of Celiac Disease
  17. Russ H
    There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease. https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
  18. Russ H
    There are several blogs where people test different beers using commercially available gluten testing kits. Guinness definitely tests positive for gluten. Something to be mindful of is that in some regions, foodstuffs containing less than 20 ppm gluten can be sold as 'gluten free'. However, due to the volume involved, a UK pint of beer at 19 ppm would contain...
  19. Russ H
    I don't live in the US, but based on this thread, I wouldn't risk it: https://www.reddit.com/r/glutenfree/comments/1n2ehw8/cracker_barrel/ This app is helpful: https://www.findmeglutenfree.com/
  20. Russ H
    I missed that. Good summary.
  21. Russ H
    This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval. Anokion Announces Positive Symptom...
  22. Russ H
    I hadn't heard of patatin before. Apparently, it is similar in structure to and cross-reactive with latex. People who react to latex may also react to chitinase, which is found in many vegetables as a defence mechanism against invertebrate pests. Maybe this is what you are reacting to. Chitinase is found in many plants including wheat and maize. https...
  23. Russ H
    The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific...
  24. Russ H
    Data from NHS England shows that most people are diagnosed between the ages of 40 and 60, with the mean age of diagnosis 45. For those diagnosed later in life, I wonder at what age the condition actually begins? Blood screening suggests that most people with the condition are not diagnosed, and that is likely because they have no symptoms or because...
  25. Russ H
    Yes, that seems to be the gist. Quantifying residues in fermented foods and drinks seems to be difficult. There are no tests for total gluten, just immunoassays, which generally detect a single epitope. There are estimated to be approximately 50 sequences that evoke a T-cell response of which nearly half are unknown and have no test. Gluten fragments...
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