Jump to content

Russ H

Moderators
 View Profile  See their activity

  • Posts

    440

  • Joined

  • Last visited

  • Days Won

    8

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Russ H

  1. Russ H
    Yes, that is another couple of pieces in the jigsaw. Vitamin D deficient, autoimmune thyroid antibodies - they are associated with coeliac disease. Of course, it may not be coeliac disease. I would urge any of my family or friends with what you have described to get down to the quack and get tested. In the worse case, it would eliminate a possible cause.
  2. Russ H
    I think it could be worth your getting tested. There are medical advantages to having a formal diagnosis. It is a blood test rather than a medical intervention, and it would be beneficial to know whether you do indeed have coeliac disease. Your GP would refer you for testing if you ask for it. The half life of coeliac antibodies is 3-4 months, so if you get...
  3. Russ H
    How long have you been gluten free? Have you noticed any change in your other symptoms while excluding gluten?
  4. Russ H
    Thanks for the heads up. What did you use for the gluten-free flour out of interest?
  5. Russ H
    Can you post your test results and lab standard ranges if you have them?
  6. Russ H
    Serious stuff, glad you came through OK and credit to your husband and son. If you are in the UK, getting tested is straightforward. Ask your GP to test you for coeliac disease. Your symptoms meet the NICE guidelines for testing - see below: https://www.nice.org.uk/guidance/ng20/chapter/Recommendations#recognition-of-coeliac-disease Both persistent...
  7. Russ H
    The best way to see whether you have coeliac disease is a blood test for antibodies. In the UK, this would normally be requested by your GP (are they called family doctor in the US?) or gastrointestinal specialist. It is a simple test and quite sensitive. If positive, you would likely be referred for an endoscopy for confirmation. When you say that you...
  8. Russ H
    Hi Shem Coeliac disease can have unusual symptoms. I have read a case report of a 15 year old girl diagnosed purely from severe chilblains, a naval officer with tendon ruptures that turned out to be due to scurvy caused by coeliac disease. Coeliac disease does increase the chance of developing cardiovascular disease, and it is known to cause cardiac...
  9. Russ H
    Yes, that it the average body weight in Europe. I suspect in the UK it is significantly higher. It is a useful reference document - comprehensive and conservative. I plan to do that. I currently take a multivitamin. Apparently the one to be careful of is B6, which can cause neuropathy when given at high doses for long periods. The safe...
  10. Russ H
    According to this study, IgG anti-DGP antibodies can show up before tTG antibodies in children with coeliac disease, which is basically what the results you posted show. https://www.naspghan.org/files/documents/pdfs/cme/jpgn/Antibodies_to_Deamidated_Gliadin_Peptide_in.13.pdf IgG anti-DGP are highly specific for coeliac and unlikely to be a false...
  11. Russ H
    Following discussion of B12 supplementation in another thread, this document by the European Scientific Committe on Food has comprehensive information regarding tolerable upper limits for various vitamins and minerals. It is a cornucopia of useful information. European Food Safety Authority - TOLERABLE UPPER INTAKE LEVELS FOR VITAMINS AND MINERALS Regarding...
  12. Russ H
    Yes, they are hereditary in people who wear shoes. They are not hereditary in people who don't wear shoes because they don't get them. Bunions are not caused by coeliac disease. Open Original Shared Link
  13. Russ H
    They have a hereditary component in the sense that foot width and shape is hereditary. Bunions are rare in people who habitually go barefoot. Women get bunions more often than men because they wear narrow shoes. It is largely a mechanical cause.
  14. Russ H
    Coeliac disease can lead to foot pain but I think it is unlikely to cause bunions. Bunions mainly arise due to an interplay of a foot shape and footwear. Most shoes are not anatomically foot shaped and push the big and little toes inwards. Beyond a certain point, the tendons running beneath the feet become displaced and pull the toes out of alignment. Eventually...
  15. Russ H
    It was just a guess. They sound like they are acting diligently.
  16. Russ H
    Good luck with that! The GP will follow NICE guidelines which are for tTG-IgA and total IgA. If tTG-IgA is borderline they will request an EMA test to follow up.
  17. Russ H
    Hello M4RK, That MCHC is only just outside the standard range and could just be a spurious result. It may be that there are some values which are within the standard range but suspicious, especially for a youngster. Out of curiosity, did they test serum ferritin and iron?
  18. Russ H
    Only bacteria and archaea have the necessary biological pathways to make B12. You can find it in some fermented foods and it is also found in some seaweeds due to a symbiotic relationship between the plant and bacterial colonies growing on it. I think these are very unreliable sources. Supplementary B12 is manufactured by industrial bacterial fermentation...
  19. Russ H
    This diagram of B12 absorption was posted on the BMJ Twitter feed. https://twitter.com/bmj_latest/status/1254724484747210752 In the natural diet, B12 is only found bound to animal protein. It is cleaved from the protein by the proteolytic action of pepsin. Pepsin itself is formed from pepsinogen in the presence of stomach acid - this is why proton...
  20. Russ H
    There are several ways that coeliac disease can lead to impaired B12 absorption. 1. Autoimmune pernicious anaemia is more common in people with other autoimmune conditions. In this case, either the parietal cells in the stomach that secrete intrinsic factor (IF) are destroyed, or antibodies to IF itself are made. 2. Impaired secretion of IF due...
  21. Russ H
    Hello SarahBee, It is possible to have slightly raised tTG antibodies with Crohn's disease and type 1 diabetes. However, The deamidated gliadin antibody tests are very specific for coeliac disease. It is quite possible to have negative endomysial antibodies in the blood serum with coeliac diease. I take it the haematologist referred you for the antibody...
  22. Russ H
    You could be IgA deficient, but it needs to be tested for. It is also possible to have coeliac disease and test negative for transglutaminase antibodies without being IgA deficient. It is a complex immunological condition. Certainly, your symptoms could be caused by coeliac disease. I had neurological symptoms and unusual skin complaints prior to diagnosis...
  23. Russ H
    Oh yes. Do you have any more information - symptoms, test results (total iGA for example)?
  24. Russ H
    Ah OK. Diabetes can give some of your symptoms, but your sugar levels don't indicate that.
  25. Russ H
    Is that 107-111 when fasting? If so, have you tried random testing or 2 hours post-prandial to see what it is like normally? Also, were you eating gluten in the 6 weeks prior to your coeliac testing?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.