Results came back

[Shrek]

Anyone could give me  some insight?? Thank you 😎👉

https://www.dropbox.com/s/c9umo7yxg0el72g/2022-05-31 22.14.50.webp?dl=0 

[Wheatwacked]

[Wheatwacked]

No denial for you. How are you feeling? Did your doc give any directions?

[Shrek]

I had endoscopy and colonoscopy done before the blood test. DR wanted the blood test for confirmation, although i see him Thursday.

I'm currently at walgreens getting some over the counter for stomach pain (inflammation)  esophagus region with some sort or constipation. I stopped all gluten intake last week and was doing well the first 3 days up until yesterday with pain.

[trents]

Developing a truly gluten-free lifestyle is not as easy as many people think because of cross contamination issues (CC) and the multitude of ways gluten is hidden in the process food supply. This might help: 

 

You also would do well to get some good gluten-free vitamins and supplements. Celiac disease generally results in nutrient deficiencies because of the damage done to the small bowel villi. Get a good senior multi vitamin, a good high potency B-complex, 5000IU of D3 daily and magnesium glycinate or citrate. Make sure they are gluten free. Costco's Nature Made brand is a good choice.

[Shrek]

I appreciate the information, I'll be making some big changes to my diet. 

[Wheatwacked]

Start with the foods on this list to make the transition to GFD and your symptoms improve. Add on foods as you tolerate. The doctor sends you home saying eat gluten free but really has no idea what that means and the trouble starts. Gluten Free Oreos are gluten free and are yummy; are they good for me?

Celiac Disease can lead to malnutrition. Too much vitamins and minerals (hypervitaminosis) is rare in Celiac Disease while deficiencies are common, so don't be afraid to supplement as long as you stay below the NIH Safe Upper Limit, which are low balled anyway. 

You might try Dr Haas's diet for recovery. Even after 7 years GFD I still have gut issues though my life is so much better now, but I've been having increased anorexia so decided to try this old school meal plan. In the past week it has exceeded my expectation. Of course we know now that there is no cure

THE VALUE OF THE BANANA IN THE TREATMENT OF CELIAC DISEASE SIDNEY V. HAAS, M.D. It was used from 1920 to 1950 to treat celiac before gluten was identified as the cause. It fell out of favor because once healed the patient was returned to a "normal diet" with gluten so the gains would often be lost. As they say " the baby with the bath water"

>Heretofore it has been impossible in the severe cases to give any carbohydrate without damage, whereas banana is not only well tolerated, but rapidly changes the entire picture of the disease to one of well being. <

Table 1.—The Typical Diet:

1. Plain milk should not be given
2. Albumin milk. (whey)
3. Pot cheese (milk 16 oz.) Farmers or Cottage Cheese (curds)
4. Banana.
5. Orange.
6. Vegetables.
7. Gelatin.
8. Meat.

[CatrionaB]

Going gluten free is difficult, but it is best if you start with naturally gluten free foods e.g. vegetables, meat and potatoes.

Rice has sometimes a may contain gluten warning. All naturally gluten free grains may be contaminated with gluten. 

Lentils are almost always contaminated with gluten.

Only buy certified gluten free oat products!

Always check ingredients and may contain warnings or buy certified gluten free products!

[trents]

There is a difference between the label "Gluten Free" and the label "Certified Gluten Free". You can be sure the latter has been tested and it has been tested to confirm that it complies with the Certified Gluten Free standard of 10ppm or less of gluten which is stricter than the FDA standard of 20ppm. 20ppm is not good enough for some of the more sensitive celiacs. And if you don't improve much begin to look at oats (even gluten free oats) and dairy as possible culprits whose proteins are close enough to gluten in structure that the cause a celiac-like reaction.

Edited June 1, 2022 by trents

[C4Celiac]

I don't find eating gluten free difficult at all.. plenty of certified gluten free products out there.. 

[C4Celiac]

6 hours ago, CatrionaB said:

 

Lentils are almost always contaminated with gluten.

 

what if they're certified gluten free

[trents]

Then the

5 minutes ago, C4Celiac said:

what if they're certified gluten free

Then they should be okay. I think the concern is that people would assume that because lentils are a "naturally gluten free" food there could not be an issue with gluten.

[Russ H]

On 6/1/2022 at 7:55 AM, Wheatwacked said:

Table 1.—The Typical Diet:

1. Plain milk should not be given
2. Albumin milk. (whey)
3. Pot cheese (milk 16 oz.) Farmers or Cottage Cheese (curds)
4. Banana.
5. Orange.
6. Vegetables.
7. Gelatin.
8. Meat.

I think it might be worth avoiding dairy products while the gut heals. I could not tolerate dairy while I was eating gluten but can now. Some people with coeliac develop lactose intolerance. Also, coeliac disease disrupts the intestinal barrier, allowing intestinal contents to permeate the gut wall. In this case, some people experience an immune reaction to milk casein similar to that of gluten with villi blunting.

[Wheatwacked]

Is it the cottage cheese or the extra modifiers?

Cabot Cottage Cheese ingredients: ingredients:  Cultured Pasteurized Skim Milk, Milk, Cream, Cultured Grade A Nonfat Dry Milk, Grade A Whey, Salt, Carrageenan, Locust Bean Gum, Guar Gum, Citric Acid, Lactic Acid, Phosphoric Acid, Natural Flavoring, Modified Cellulose, Potassium Sorbate (to maintain freshness), Vitamin D3, Enzymes.

 Daisy Cottage Cheese: Cultured Skim Milk, Cream, Salt.

Should You Remove Carrageenan from Your Diet?  

"Products with carrageenan may be labeled as “natural,” but limited studies show that carrageenan may promote or cause:

inflammation

bloating

irritable bowel syndrome

glucose intolerance

colon cancer

food allergies

Increased inflammation can lead to a greater likelihood of other diseases, such as:

inflammatory bowel disease

arthritis

tendonitis

chronic cholecystitis, or gallbladder inflammation

One review also suggests that there may be no substantial difference between “food-grade” (undegraded) and degraded carrageenan. Degraded carrageenan is a carcinogenic (cancer-causing) version that isn’t approved. It’s even used to induce inflammation in animal studies. According to Cornucopia, test results of food-grade carrageenan carried at least 5 percent degraded carrageenan. One sample had about 25 percent."

[trents]

I would also be suspicious of the modified cellulose since there is no source specified.