
rsm
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by rsm
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I told a doctor about the left side pain many years ago and he said. "there's nothing there". Needless to say, I have had that same pain. Mine was just under the ribs.
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ARCHIVED Alternating Diarrhea & Constipation Since Gluten Free
rsm replied to Walter S's topic in Coping with Celiac Disease
This is good news, I'm just over 6 months and still bouncing from one extreme to another. At this point I feel so much better I don't really care but it would be nice to regulate. I will try the almond butter, peanut butter with cottonseed oil, that's most of them, is a problem for me. The paleo diet is very good. -
It's been six months for me, it took a good 5 months to start to feel a little better. Give yourself time. It does get better.
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ARCHIVED How Long Did It Take You To Stop Hating Celiac?
rsm replied to a topic in Coping with Celiac Disease
No anger, just relief. Finally I can do something positive to make my health better. -
I have noticed that nuts and chips and can both have cottonseed oil included. I do very well with both of these products as long as they do not contain cottonseed oil. You may have problems with another type of oil. Check the labels, I bet they both have the same type of oil in them. There are several common types used.
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I have purchased some guaranteed gluten free oats but have been too afraid to try them. I love oatmeal, but raw oats have always been a problem for me. When I get the courage up I'll try them. They are very expensive! The brand I have is also Gifts of nature.
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ARCHIVED Need To Solve A Mystery
rsm replied to Emily Elizabeth's topic in Coping with Celiac Disease
I have had problems with planters almonds because they have cottonseed oil in them. It gives me the same reaction as gluten. Might try to leave them out or get blue diamond almonds. Just a thought, cottonseed oil may not bother you at all. -
ARCHIVED How Long Until You Noticed A Difference?
rsm replied to moozicteacher's topic in Coping with Celiac Disease
I'm noticing a big difference at almost 6 months gluten free, dairy free. It was up and down before that. I also found that cotton seed oil which is used in chips and peanut butter is hard to get along with too. Give yourself a few months at least. -
We have a lot in common. I worked in a bakery during high school and have been addicted to good bread my entire life. I'll be 50 in a couple of weeks and have lived "sick" for many decades. I was told as a teenager that I had an ulcer, later IBS, then pernicious anemia. Literally decades of the big "D" after every other meal. My oldest daughter made the celiac...
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Yes they are gluten free, it's Effexor XR. It is getting better as I get used to it. The "D" is one of it's side effects. I have only been on it for 5 weeks, not fully acclimated yet.
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ARCHIVED How To Ease Accidental Gluten Consumption
rsm replied to technikolor's topic in Coping with Celiac Disease
Yes, my wife has been very supportive. I would have a difficult time otherwise. She does see me getting better, that helps motivate her. After 25 years of me running to the bathroom every time we went out to eat somewhere she knows how important it is. We also have 2 daughters who both have the same problem, one lives gluten free, one lives with being sick... -
ARCHIVED How To Ease Accidental Gluten Consumption
rsm replied to technikolor's topic in Coping with Celiac Disease
White rice with sugar, raisins and soy milk or a baked potato help. The activated charcoal is terrific it will bind to everything and help neutralize it. -
Hey Walter, almost 6 months gluten free here. I am going through depression as a by product. The doc put me on meds that give me the big "D" as well but it does get better. The anti-depressants really mess with your digestion, like we need that!
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ARCHIVED Suggestions For Sleep Troubles
rsm replied to blueeyedmanda's topic in Coping with Celiac Disease
I don't know if it's habit forming but I love Ambien. I sleep like a baby. I have had insomnia problems since childhood, about 40 years. It works great. -
ARCHIVED Anyone Live Next To A Wheat Field?
rsm replied to loco-ladi's topic in Coping with Celiac Disease
I live in Kansas,wheat capital of the nation. Not only that, there are 2 flour mills in my town, one a block away. There is always dust in the air, we run air cleaners like mad fiends. I am looking for another job away from here but who knows when. You just do the best you can. -
I like to ask "How much poison ivy would you eat?"
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ARCHIVED In Light Of Alexis Stewart's Comments
rsm replied to Canadian Karen's topic in Coping with Celiac Disease
Self diagnosis here, both of my children have the same thing, they figured it out. 25 years for me diagnosed with IBS. Permanent nerve damage, pernicious anemia, acne into my 50's. Strange rashes, cramps, bloating, it's been a long journey. My mothers side of the family all have this. I have been gluten free by my own choice for 5 months and am feeling way... -
I too had this for a long time, about 25 years before we figured out it was gluten. I had the D for about the first half and then had C the rest. I used enemas also to get moving and stop the hours of cramping and pain. I now use miralax for a few days and it does the trick. I have only been gluten free for 5 months so I know I haven't completely healed....
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Baked potatoes help me.
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ARCHIVED Cow Milk And Soy
rsm replied to breadless in wonderland's topic in Coping with Celiac Disease
Within a week of going gluten free, almost 5 months ago, I could not tolerate dairy. Even a small amount was very painful. You will learn quickly what you can and cannot tolerate. I have no problem with soy. Each of us is different. -
ARCHIVED How Long Was It Until You Noticed A Difference On A Gluten-free Diet?
rsm replied to Luke987's topic in Coping with Celiac Disease
I'm the same way, it's been 4 months now, I have several weeks of feeling fine and then blam, punched in the gut. I don't see any rhyme or reason for the bad days but they last 3 or 4 days and then I'm ok again. I must stay away from dairy and some oils like cottonseed oil. You will learn as you go. Eat carefully and make notes, then you will know what bothers... -
ARCHIVED Neurological Symptoms
rsm replied to Nan 70's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Have you tried injections of B12? That really does the trick for me. You may not be absorbing much. Your diet and mine are very similar. I keep a big bowl of rice in the fridge and heat some up when needed. Baked potatoes helped sooth my tummy problems too. -
ARCHIVED Neurological Symptoms
rsm replied to Nan 70's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am a self diagnosed celiac, 25 years misdiagnosed as ibs. Started having nerve problems 10 years ago, numbness in legs and tingling hands. I found out I had no B12 in my system and was also tested for MS. I had and still have balance problems, slight tremor at times and slurred speech at times. I've been gluten free for 4 months and have noticed a big improvement... -
ARCHIVED Best And Worst Drs Opinions/advice
rsm replied to Meemsy's topic in Coping with Celiac Disease
I have had this condition for 26 years, I'm now 49, no doctor figured it out. My grown daughter diagnosed our problem and we are both doing much better gluten free. I have been told many, many times it's stress, been put on tranquilizers, told to eat wheat bran, drink wine, take a hot bath and try to relax. I've had my gall bladder removed, been on b-12 for... -
ARCHIVED Can You Trace Celiac Through Your Family Tree?
rsm replied to ItchyMeredith's topic in Coping with Celiac Disease
None of us are diagnosed but the family "stomach" trouble runs through my mothers side of the family. A mixture of English, Irish and Scotch. My grandfather had severe digestive problem with the big "D" his whole life, he joked about it but he did die of cancer. My mother and her siblings have it to varying degrees, some are lactose intolerant as well. I...