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Pacer

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Pacer

  1. Pacer
    Sussex County NJ is now celiac friendly! Little Anthony's Pizza in vernon NJ is now serving Still riding Pizza. We had it last night and it is great. The owner is super nice. He was driven to provide gluten-free pizza when he saw a young customer in tears b/c he couldn't have pizza. the facts: Vernon NJ -- Route 515 in A&P shopping center 97...
  2. Pacer
    Ivy, good luck. Everyone has their opinions on the validity of 'diagnosis'. If it were me ( a 44 year old housewife and mom), havinfg a dx'd realtive, and simply improving on a gluten-free diet would be enough for me. however, as a college student...you probably have the right to request special meal details - either a fridge in your dorm, a transfer...
  3. Pacer
    Thanks for all the stories and input everyone. We are moving, so it will be a few weeks before I can really test my son and see how he's running. However next Sunday we are doing a local celiac awareness walk. it's in Queens, NY. I may be able to tell a little from that. I also called a couple of nutritionists today. I am truly drowning here - I need professional...
  4. Pacer
    It is sucha kick in the head when you go through a long list of ingredients on a product, and you're almost safe...nothing obvious on there......and then you see.......malt. augh!
  5. Pacer
    ~Well celiac and gluten sensitivity are sometimes confused. I guess you coudl say "celiac" is the end result or manifestation of gluten sensitivity (aka intolerance), I believe the clinical def of celiac refers to villous atrophy. Most of us here on this parent's forum hope to prevent the villous atrophy from happening by catching it early. ~Gluten and...
  6. Pacer
    brenda, my boys are 6 and 8 now, but YES, we had basically all the same symptoms. My older - he was the most insomniac baby I ever saw. He came roaring into the world with raging , inconsolable colic and went 2 months without a nap unless he was being physcially carried. And I dont mean being pushed in a stroller, I mean carried, ON my body, until my...
  7. Pacer
    Fiddle faddle, I got a smile out of reading how you solved your son's problem of needing to sleep on top of someone. Put 'em in with his brother! Brilliant! That's what siblings are for right? they must have been adorable together. What's your spacing? I plan on contributing to the OP, but definitely my son had to touch a person to sleep as well. I...
  8. Pacer
    We have been a gluten-free household for about a week. ~~~Flashback: my younger son (6) - obvious GI symptoms which abate with gluten-free. Older son (8), apparantly asymptomatic except very low BMI and ++ on Enterolab. End flashback.~~~ Today my 8 year old said to me: " Gluten Free sucks, but it helps me feel better. ". My first thought was, he is...
  9. Pacer
    Wow - that is a nice example of how gluten-free awareness has eveloved in the last few years. Let's keep it going everyone!! :-)
  10. Pacer
    Natalie - I hope that you are on track to making life healthy and wonderful for your sweet daughter. I cannot say I have BTDT , I am new here too and struggling. If you click on my profile and read my recent posts you will see the rantings oops I mean words of a desperate, distraught , extremely overwhelmed person. I consider myself an extremely proactive...
  11. Pacer
    Hi - I am saving this thread. I am also a veg . Not a celiac, but just as bad, I run a veg household with a husband (dx 1999) and 2 young children who have been veg up til now. I have gone gluten-free in solidarity with my kids, and we are all struggling. I am SO distraught about the whole thing. in fact there is some hope of trying to be able to get my...
  12. Pacer
    Well, hmm. Another thing you could do is, try the gluten-free diet now while she is recovering. This is kind of a "live for the moment" sort of philosophy, to get her better first, then pinpoint exactly what was making her ill later. Maybe you could do a gluten challenge in the summer once she is feeling better. That might be OK timing since she won...
  13. Pacer
    Hi - there are some other bars out there that are halfway decent that are gluten-free. I have not found any that taste as good as Luna or PowerBars. However, here is a partial list. of course YMMV and it goes without saying to always check labels yourSELF and not take anyone's word that a packaged product is gluten-free. LaraBars. Clif Nectar Bars...
  14. Pacer
    Tulsa, Welcome. I am also new. I am not super eloquent about writing out feelings either but I'll try. Since she is asymptomatic (that you can tell now), why not approach it as an 'experiment". Something must be off or else you wouldn't be testing her for mono. Rather than a life sentence, why not just present it as an experiment, to see if she feels...
  15. Pacer
    Please everyone, keep it coming! (I realize I am not the OP, but..) You have no idea how reading these repsonses can help a person stay motivated. Each time I see a person who has a similar situatino to mine, it gives me a bit more hope that we can do this. I think in general anyone who is hanging out on this pre-DX board is going to have a huge level...
  16. Pacer
    I'm sorry -- what is TTG? Is there another word for it? Thanks HEIDI
  17. Pacer
    Holiday, that sounds VERY familiar. It is so hard to tell an asymptomatic kid their favorite foods are being taken away. it's like a punishment for no reason. I am trying to come up with the right time to tell my older son. Today on the way to school he asked me if we could do something special over the weekend - go out to the bagel place and sit down...
  18. Pacer
    Amelia I *so do not want to give advice. Just want to answer so you don't feel like you're talking to a wall. We had a similar scenario with my son and while we were tryign to figure out the testing thing (we wound up using Enterolab) , we had him on and off gluten about 3x. Each time, he made it about a week before totally losing motivation. At...
  19. Pacer
    Thanks for your input. How does one go about testing for nutrients? Perhaps it would be a good idea just to do the vites anyway. They are important under any situation. I guess it's true - "normal" people really aren't that skinny. My husband is/was super skinny, but then again, he spent 38 years as an un-DX'd celiac. I am trying to figure out a...
  20. Pacer
    Hi, sorry about the glutening. yes, many celiacs present with vomiting. I didn't save the source, but I once read that it is especially common for kids to present atypically. in any case, it stood out in my mind because vomiting was my son's *only symptom. If we didn't have a confirmed celiac already in the house, we probably could have gone on for...
  21. Pacer
    Hi, I live in NYC. My younger son (6) was just dx'd by Enterolabs on April 1. He also had some prominent symptoms which subsided after going gluten-free. Husband is confirmed celiac, gluten-free, had ++ endoscopy in 1999. My older son just came back with a low positive score from Enterolabs (+ for gene and IgA of 14) - he is asymptomatic. ...
  22. Pacer
    Hello all - I am going to call Enterolab as soon as they are open on Texas time. In the meantime - comments please. My husband is a confirmed , symptomatic, celiac on a lifetime gluten-free diet. (had biopsy) Recently, after some GI symptoms we had our younger son (6) tested by EnteroLabs. His results were extremely high numbers and ++ gene: Fecal...
  23. Pacer
    Angie, Keep reading these message boards and you will start to catch the vibe, that so many people here do not wait around for an official DX. Since celiac is not treated by medication, the advantge of having a DX from an MD is somewhat limited anyway. If it makes you feel better why not, instead of saying "I'm embarking my child on a lifetime of gluten...
  24. Pacer
    Amanda - Tritto on the oats. Sorry, I bet you were really living there for a while. :-/ I looked at your signature, it doesn't seem like nuts or eggs are a problem. Would you like a quick & easy alternative to granola bars? I make a 5 minute crushed nut brittle and the kids love it. It is very portable and has some nice protein. ~Take a rolling...
  25. Pacer
    <<He's 5, almost 6 now, and that's a long time to eat pizza & donuts & cake with everybody else and then you can't. >> Exactly. Yet it's still a little young to be completely reasonable about consquences. I have never, ever lied to my kids or insulted their intelligence in any capacity. It doesn't feel right to me to try to tell...
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