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Carriefaith

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Latest Celiac Disease News & Research:

Everything posted by Carriefaith

  1. Carriefaith
    Even if you don't have celiac disease you may be gluten intolerant or wheat intolerant. You can get a blood test that checks for wheat intolerance. I think the diet is worth a try. Also have you been checked for crohn's disease?
  2. Carriefaith
    Joint pain was and still is a problem for me (however, the pain is less often now after going gluten free). Before going gluten-free, I had pain in both knees, my hip, and sometimes my ankles. Now I just experience some knee pain once in awhile. Try taking daily calcium and vitamin D supplements. These may help.....
  3. Carriefaith
    I had fatigue as a symptom before going gluten free and I wasn't anemic.
  4. Carriefaith
    Celiac is definatley a possibility for you. Not everyone gets ALL of the symptoms. Some people will only get fatigue and lack of enerey without the GI problems. And some people will have no symptoms at all and still have intestinal damage. Hope this helps.
  5. Carriefaith
    Tinkyada is the best gluten-free pasta I've had yet. It tastes the same to me as gluten pasta. Yum!
  6. Carriefaith
    OhNoes! - thanks! I am also lactose intolerant (or casein intolerant). I just know I don't tolerate dairy very well! I am also wondering though if I have any other allergies or intolerances. I'm thinking of elimanating other foods to find out. I know it will be hard but I'm desparate to get better! I'm going to wait until after my colonosopy results and...
  7. Carriefaith
    Thanks for the advice! I had some of my nutrient/vitamin levels checked two weeks ago and they were all excellent except calcium which was just ok. I take vitamins every day so I think this helped some. I am super paranoid about gluten getting in my system so I check everything (meds, vitamins, lip gloss ect). I'm like 99% sure I'm gluten free. I don...
  8. Carriefaith
    I agree, I refuse to eat at fast foods restaurants anymore. Contamination is very likely. I might order a pop but that's it.
  9. Carriefaith
    Hey everyone, I've now been 8 and a half months gluten-free and I'm still having problems. I've stopped taking the meds becuase they are not working anymore My energy levels are still very low (I haven't excerized since September becasue I just don't have the energy) and I continue to have all of the GI problems and some additional problems as well...
  10. Carriefaith
    Breakfast examples: - banana - pear - gluten-free waffles - gluten-free buns or bread Lunch examples: - gluten-free rice pasta with gluten-free tomato sauce - leftovers from dinner! - salad - carrots - rice cakes and peanut butter Dinner examples YUM!: - gluten-free curry - gluten-free shake-in-bake chicken with potatoes...
  11. Carriefaith
    You could make dinner for your date at home. I do this all the time! That way you will know for sure that you won't get sick! I know celiac symptoms are embarassing to talk about, especially for those of us that get the nasty GI symptoms. But if you find it hard all you have to say is, "if I eat that I will get sick and it will damage my intestines". Most...
  12. Carriefaith
    I went to a thankgiving dinner where the gluten stuffing was cooked inside the turkey and I didn't eat it. It's too risky. I just brought my own leftovers. It may seem insulting to some but at least you know you're safe! That's all that matters
  13. Carriefaith
    It was a year ago when I finally realized that there was something seriously wrong with me. I couldn't keep anything in my system for about 3 or 4 days. Everything instantly came out. I thought I might be getting dehydrated or something. It was on a weeked so I went to outpatients and got referred to my GI specialist. Four months later I had got diagnosed...
  14. Carriefaith
    Hi I had my first Thanksgiving last month in Canada. Everything went great! I had my own gluten-free stuffing and my own gluten-free pie. Yum! I found this gluten free stuffing recipe on the internet (It was very good, better than most gluten stuffings) I suggest doubling it so you have lots of leftovers YUM: Stuffing (Gluten-Free) 2 shallots, minced...
  15. Carriefaith
    HAHAHA That's funny! In my opinion, try not to care what others think. Just keep reminding yourself that what you are doing is right for you and your health. Keep your head high and be confident. Laugh a lot and look happy (This usually works for me!) If people have a problem with your diet then it's their problem not yours. I eat before I go out to...
  16. Carriefaith
    Hi, I know how you feel. I'm over 8 months on the gluten-free diet and still not better. (I'm currently in the process of figuring out why I'm not better). It's still a mystery One suggestion I have is to try and eliminate ALL dairy products. This may help(maybe you've already tried this). I can't tolerate even small amounts of dairy. If I...
  17. Carriefaith
    I reacted to the oat extract in my suncreen (Only the medical ingredients were listed on the bottle. I had to go on the internet to see the the non-medical ingredients). I haven't used it since......
  18. Carriefaith
    I know what you mean, the gluten free diet seems like heaven compared to the SCD. That's why I'm a little hesitant about trying it. I eat potatoes, rice, turnip, soy, and corn (ect.) and don't know if I could give them ALL up. But.... the SCD does seem to work for most people. So I don't know....
  19. Carriefaith
    I got flu shots in 2003 and 2004 and I was diagnosed with celiac disease in March 2004. This flu shot theory is interesting to me. I've had celiac disease-like symptoms for years (probably since I was 13 or 14) but most of them seemed to worsen and I developed more celiac disease symptoms after my first flu shot in 2003. The sickest I have ever been with...
  20. Carriefaith
    For coping with stress, I just keep reminding myself that this diet is what I have to live with for the rest of my life in order to stop damaging my body. I try not to let gluten foods bother me by replacing them with good gluten free foods. I am always trying new recipes to make the gluten-free diet interesting. When I cook gluten free most people...
  21. Carriefaith
    Thanks everyone for your responses! I am considering eliminating other foods from my diet in order to feel better. I am just so tired of being sick I am almost willing to try anything at this point. If so many people are feeling better by elminating more foods than it must work! -Carrie Welda, Thanks! I will definatley read up on the Carbohydrate...
  22. Carriefaith
    The specific carbohydrate diet is a gluten free, grain free, lactose free, low sugar, low carb diet. It is recommened for individuals with celiac disease that have not responded well to the gluten free diet. (It is also recommended for a number of other things such as chrons disease, ulcerative colitis, IBS). Here is a website: Open Original Shared Link...
  23. Carriefaith
    Yes, I have had headaches, muscle weakness, and difficulty concentrating. It's not very fun.
  24. Carriefaith
    I'm not sure what to think about all this...... So gluten free products can have gluten but just small amounts??????? What are we supposed to do then. I depend on a lot of mainstream products that are gluten free everyday and I trust them (At least I used to anyway). I get severe reactions to gluten so I think that I would react if gluten was in the food...
  25. Carriefaith
    It could be 3 weeks or possibly months. I know it's annoying (trust me I'm 7 months into the diet and still sick) but sometimes it just takes patience. If he's still having problems after 6 months than maybe ask for a follow up endoscopy to see if his intestines are healing (That's what I'm going to do). Hopefully he will be better before then though...
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