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confusedks

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by confusedks

  1. Carla, That's good. It sounds like they (brain stuff) are doing better. Ami, I'm so sorry you're having to go through this. I hope you're not in too much pain. Kassandra
  2. Carla, I have been meaning to ask you...how are your "brain" symptoms doing? I know you are feeling quite a bit better, but just wondering how your brain fog, etc. are doing. Rachel, Thanks for adding that. I can't remember anything about WHY I am dairy free....lol. Brain fog is horrible these days. Kassandra
  3. One more thing...I would test for Lyme around my cycle...but I NEVER GET IT!!! LOL!!! If we waited for that, I wouldn't get tested for at least another 6 months! LOL! I guess my body is protecting itself from getting even more anemic. It knows. Kassandra
  4. Jin, I think you should try casein free for more than 10 days. My mom has always been mis anti dairy ever since I was little and I thought it was ridiculous...BUT then I did Enterolab and it came back higher for casein than gluten!!! It could have been because I was eating dairy closer to the test than gluten, but still. I never felt better when I got rid...
  5. Sherry, I have no idea. I hope it gets better soon for you though. Everyone/anyone, How on earth do you find anything on Mercola's website? I typed in Lyme and I couldn't figure out how to get from the topic to the actual info. Any ideas? Kassandra
  6. Everyone, So I officially signed out of my school...aww. It was so sad. My mom started to cry... Ugh. I guess I am doing the best thing for me. I also had the blood drawn and I think I am getting phlebitis because my arm is really swollen!! UGH! I am going to go put heat on it so i can hopefully prevent a terrible case of phlebitis. I want...
  7. Carla, That is so strange! The bottle of probiotics says to take them with food!!! I will adjust that now. Ugh. LOL! Kassandra
  8. Well, my neck is only getting worse. Now I can't move it at all!! I took another bath, but I couldn't stay in long because it was really uncomfortable with my neck so stiff!!!! Jin, I am sorry about your reaction. Have you tried going casein free? I know that helps a lot of people...it's way different than JUST lactose free. Carla, I know...
  9. My symptoms are exactly what they were before I started the gluten free diet. I never was formally diagnosed with Celiac...but my doctors agreed I had it, but now all my symptoms have returned. My symtpoms are fatigue, bloating, D, C, stomach pain and nausea. I was tested for it and am positive. I am on day 5 of the abx (antibiotics) and am taking probiotics...
  10. Carla, YAY!!! It looks amazing!!! Congrats! I am making my second batch of your fudge...mmmmm! I had my mom try it last night and she thought it was really weird...good!! MORE FOR ME!!! Kassandra
  11. I was wondering if anyone has been diagnosed with SBBO or SIBO? Did you take antibiotics, if so which ones? Did you feel better? I was diagnosed with it and I am on the antibiotics and I feel terrible. I just want to know if there is a light at the end of the tunnel?! Did your symptoms go away? I am not too sure what I think about this whole diagnosis...
  12. Also, someone asked me what the abx are treating...E. Coli!! I found out today....yikes!!! I thought that was interesting. Kassandra
  13. Sherry, I think my mom would let me do the ecoffee, but it's a question of whether I want to do it!!! LOL! The only concern I would have is my mom said that she did them once and she said she got realllllly shaky afterwards. She said it was the caffeine, how could I prevent that? I don't have caffeine anymore...so I would be worried. The last time I had...
  14. Sherry, I am actually feeling crappy again...sigh. I had a feeling it was too good to be true! I went to Staples and the pharmacy to get the rest of the abx, and now I am going to go lay down. I guess I should be glad that I was able to even shower today! LOL! Kassandra
  15. Are you diagnosed as a Celiac? If you are, you need to stay 100% gluten free. Even if you didn't feel bad, it is still doing damage if you have Celiac. If you are positive you only have a gluten intolerance, and NOT celiac...then I guess maybe gluten doesn't bother you as much as you think it does? Be careful though because it takes some people a few...
  16. We are going to decorate our tree, but we do it in all white and blue (for Hannukah). I knew there was something else we were going to do this weekend!! Carla, It's so great that you are doing so much better. I look forward to that someday... I will definitely take another bath today. I also think taking Charcoal at 1.30 am helped. I...
  17. Everyone who has Lyme...read this...it's REALLY FUNNY!!! You may have already read it, but I just came across it! You might be a Lymie if... 1. You know what LLMD means, and you have one. 2. At an appointment with your LLMD the nurse has asked why you are "all dressed up" when you wore sweat pants without holes in them instead of PJs to your appointment...
  18. Welcome to everyone who is new. Everyone, So I finally mustered up the energy last night to rinse the bath tub to take an epsom salt bath. It was nice...but then I started to feel weird. It was almost like I had a fever. I actually woke up feeling a LOT better!!! YAY!! I wonder if the mean GI dr. may be partially right about the SBBO?! That...
  19. Hello Virgie, It's great to "see" you online again. I know that Thanksgiving has already passed, but for the upcoming holidays, you could maker her her own plate of food. I was going to bring a stuffed cornish game hen with a mini pumpkin pie for Thanksgiving (I ended up sick..so I didn't, but was a good idea). That way you wouldn't have to worry about...
  20. Birdy, I am going to finish the abx before we start the iron IV's. I will be done with the abx by Friday, so we'll start the iron IV's on Monday, if everything goes as planned. Kassandra
  21. Carla, That is so weird! I have been getting a rash on my forehead too!! I noticed it a couple weeks ago and thought it was just because the col weather...maybe it's not!? I will get some water for upstairs...I was totally not anticipating getting worse. I am at maybe 10%. This is awful. I think also part of me doesn't want to drink water because...
  22. Sherry, I have been really bad about the charcoal. Taking it 2 hours away from food and meds is really hard. I am also so tired and weak, walking downstairs to get water, etc. is too hard. I will try to get better about that. I had to take benadryl last night because I was starting to break out in hives...ugh! This really worries me as far as long...
  23. Birdy, We are the same age! I'm 17 too!!! It does sound like you need an LLMD to work with you maybe along side your naturopath? I have yet to see one, but all the naturopaths I have been to don't even really want to think about Lyme...or don't know enough about it and I don't want them to learn on me. Carla, That's what I was thinking of telling...
  24. So I had an interesting Thanksgiving. I went to the family gathering with 20 people and of course I couldn't have anything other than the cranberry sauce and steamed broccoli with NOTHING on it!!! LOL!! Everyone felt really badly though and requested that I tell them what I avoid so they can accommodate my needs. My concern is that I get sick really easily...
  25. I can't have any read meat because it makes me really nauseous. It's not a big deal for me because I don't really like it anyway. Kassandra
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