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confusedks

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by confusedks

  1. confusedks
    Juliebove, What brand of cheese do you use? Is it soy free? Kassandra
  2. confusedks
    I have a question too. Okay, I have a HUGE family. The stuffing is made in the turkey and because I am the ONLY gluten-free person, I wouldn't feel right asking mu Uncle Fred to make it differently since it is his famous recipe. So, do I just bring food with me? I don't think there will be anything I can eat other than fruit! Ugh...sometimes I hate this!...
  3. confusedks
    Wombat, I just wanted to jump in and say...it is a big PITA here in the US as far as labeling laws go. They only list wheat, NOT gluten...so if something is wheat free...don't eat. It is probably gluten free. If you need any names of stores, etc. or if you want to tell me where you are going, let me know. I would be more than happy to help. Also, do you...
  4. confusedks
    Can't remember who asked... but I have NOT been to a GI Dr. My GP is the one who told me to go on a gluten-free diet because my grandma was dx'd and I have the gene. I was then going to go to a GI, but I was hospitalized and time has just kind of slipped away from us. I think it is a good idea to have a end/col. to make sure nothing else is going on. Today...
  5. confusedks
    Carla, Thank you for all the info. I tend to agree that she didn't seem like she wanted to return to normalcy. I want to go to college and live a normal life! I can't and WON'T believe that I will need to completely change my life forever because of this. How long did it take you to get your Igenex lab reports back? At this point, I am not too worried...
  6. confusedks
    I forgot to update everyone, we got the Igenex test kit in the mail yesterday. We will go on Monday and have the blood drawn. My mom is the one who really wants me to go to the GI because she is worried something else is going on. I am totally willing to see what the LLMD says, but I think at this point we are going to see the GI before the LLMD. I...
  7. confusedks
    I have a question. We made an appt. with a ped. GI because my GI symptoms are so bad. I bloat so badly and it's not food related because it doesn't matter what I eat. I also am so constipated or I get diarrhea. It is never a normal bm. I also am nauseous all the time, pretty severely. Also, I get really bad stomach pains and cramps. I guess my question...
  8. confusedks
    So, I went to CHLA today to meet with the spinal surgeon. It was yet another disappointing day. He took MORE x-rays and told me that the curve is not 67 degree, it's only 25!!!!!!! This is the most ridiculous thing I have EVER heard! I have had 4 other x-rays telling me it is 67. He also told me that there is nothing he can do for me, and that over time...
  9. confusedks
    babinsky, I live in LA. If you need any help as where to go shopping, etc. let me know. I don't really know of any good restaurants that have gluten-free menus, except the chains like Outback Steakhouse, Chipotle, etc. Let me know if you need anything...PM would be the best way. Kassandra
  10. confusedks
    Awww. I am so sorry you are going through this. I am going through this, but it is also about all of the other illnesses I am trying to cope with. I get the wanting to have a convenient life. I get the sadness, it is really difficult to deal with all this. They are all very real feelings. I have also lost true friendships because people don't want to go out...
  11. confusedks
    Eek! I am so afraid of earthquakes...it is ridiculous! I hope you stay safe. Tomorrow at school, we are having a Halloween contest, I am dressing up as Pocahontas! I haven't dressed up in years, so I figured why not? YAY! I will post pics if I have time which I should since I have too much homework to go trick or treating...and I couldn't eat the...
  12. confusedks
    Thank you. I am not sure if I react to their stuff. I think it might be the sugar content in the pumpkin butter. We also live at TJ's. I don't know what we'd do without them either. They know us too! LOL! Kassandra
  13. confusedks
    Jin, It is possible. I know I am not vitamin b12 deficient. I actually never have been. This numbing is very worrisome. It is going up my entire arm. Eek! I just talked to my mom about it and she thinks I may have another disc bulge higher up in my spine. I wouldn't be surprised at all. It is kind of like a new bulge every month!!! LOL! I guess I have...
  14. confusedks
    Sarah, I am not sure about the connection. I know Rachel said there is a connection. I *think* the main reason I have 6 disc bulges is because I have a spinal disorder which causes the vertebrae to become wedges instead of squares, thus leaving not enough room for the discs to be there. This is why I have them, but Rachel even suggested that my spinal...
  15. confusedks
    I just am curious to hear who reacts to Trader Joe's products? A lot of their products are gluten free, but they are made on equipment shared with wheat. I just want to who eats these products specifically from Trader Joe's. I bought their pumpkin butter which is amazing, but I think I am reacting to it because it's made in a facility that processes.... ...
  16. confusedks
    My mom doesn't hate liver, but she doesn't love it either. I ATE IT.....YAY!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I had to plug my nose the entire time, but I got it down! I am impressed with myself! truthsearcher, I did that once. We also tried to puree it and my mom put it into gel caps and I had to take 20-40 at a time...
  17. confusedks
    Kristina, I love your letter!!! LOL!!! I have tried dark leafy veggies, but they don't turn into ferritin in my body. The issue is that I have a good amount of iron, it's just not turning into ferritin...it's not metabolizing. I have also tried pate, and I think it is digsusting! Carla, I am going to try spaghetti squash...never thought of that...
  18. confusedks
    Carla, Andrea, Rachel, LOL! You guys are so funny!!! I am literally laughing out loud about this! Sarah, Thank you for the suggestions. I appreciate them. My mom is going to mix it in with ground turkey and make it like a meat sauce to go over pasta (only, I can't have them together...I have to wait 30 min. to be able to eat the pasta!!!! ) ...
  19. confusedks
    LOL about the liver! I totally agree! It is SO GROSS! Jin, Unfortunately my body is NOT metabolizing iron at all. That is why my iron total is fine, but my ferritin is so low! They don't really know why. I am glad you're back! As far as getting shaky, etc. after not having protein and carbs, I get it! I have protein and then 30 minutes later...
  20. confusedks
    Carla, i don't know what to do about the liver either! The last time I had it I had it with rye bread (LOL!) AND cheese!!!! I was able to at least pretend I wasn't eating chopped liver, but now I ca't hide the flavor with anything! I don't know what to do. I feel like my mom is going to kill me if I don't eat it. But I totally can't even stand the smell...
  21. confusedks
    I found one that's called "Now Foods" Egg white protein powder. The ingredients are literally just egg whites. It is totally tasteless in a smoothie with berries and rice milk! YAY! Kassandra
  22. confusedks
    Rachel, Thank you for posting all the info about metals! I am starting to get convinced that I have metal toxicity as well as Lyme. I have A LOT of those symptoms n top of Lyme! Do LLMD's help with that also? I am going to call a lady who has a list of good LLMD's in CA that are on the board (can't remember what it's called). She runs the southern...
  23. confusedks
    Rachel, Do you have a problem with legumes? I know Andrea is free of them. Andrea, What happens when you have legumes? Kassandra
  24. confusedks
    Hello all, I may be going to visit my dad in NZ over Christmas time. I was wondering what the labelling laws are down there. I used to live there, but that was pre dx. I am soy, gluten, dairy and nut free. Would it be difficult to get food free of all that? He lives in Auckland, so we could go shopping around there. Kassandra
  25. confusedks
    My homeopathic doctor. The problem is that I'm not just low in Hemoglobin. I need ferritin which I have had IV's for before and they still aren't sticking. Liver apparently is the closest form of ferritin that our bodies recognize. I have also heard many bad things about liver, but I am so off the charts low, they are trying to do anything to keep me alive...
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