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confusedks

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by confusedks

  1. confusedks
    Are you sure you're reacting to the soy in peanut butter, not the peanuts? Try organic peanut butter, the ingredients in mine are peanuts and salt...that's all that is in them. Also, if you find out what is bloating you...LET ME KNOW!!! Kassandra
  2. confusedks
    Dairy, I guess more specifically lactose is difficult to break down because the villi are kind of in layers. One of the enzymes produced by the villi is lactase which breaks down lactose. If you are missing villi (which you are because you have just begun the healing process) it is almost impossible for your villi to heal. It is usually a temporary thing...
  3. confusedks
    If you're looking for other milks, there is almond milk and hemp milk. They are enriched, etc. and most brands are dairy free, soy free AND gluten free. I use Hemp Milk from Whole Foods. Good luck! If you ever need support, etc. feel free to PM me. It does get easier! I promise! Kassandra
  4. confusedks
    I think you should still be able to wrokout, etc. but you need to stop taking anything that the company says isn't gluten free. If they tell you it's not gluten free, there are tons of other protein powders, etc. that are. You can but them from WHole Foods and other health food stores and they may even say gluten free on them. A lot of them will. Kassandra...
  5. confusedks
    1. Namaste Sugar Free Muffins.....EWWWWW!!!! We added pumpkin and a ton of sugar and they were still the most disgusting things I have ever tasted! 2. Ener-G White Bread...I don't know why it hasn't been discontinued! Lol! 3. Some sort of white subway loaf thing...a family member was trying to be nice, but OMG THEY WERE GROSS!!!!!!!!!! Even toasted...
  6. confusedks
    I can't do ricemilk because the brand Rice Dream is the only one available and it's not gluten free. They recently changed their package to say gluten free, but didn't change their formula which they used to clearly state had barley malt in it. It was a small amount, but they felt that they no longer needed to list it as an ingredient!!! So, essentially it...
  7. confusedks
    Tom, Wouldn't the soup have hurt my stomach because of the noodles if it was candida? I don't know...should read up more on candida. The only thing is it's not bloating, etc. It's extreme pain and if anything my stomach is flatter than it has ever been! Kassandra
  8. confusedks
    I read about all of the pink-ness and improvement so I went shopping today to buy something pink, but I didn't like anything I tried on!! Maybe that is symbolic of where my health is...lol! I have still had a lot of stomach issues. Not bloating, mainly D and EXCRUCIATING stomach pain right in between my ribs and above my belly button (don't know how...
  9. confusedks
    Are you just cutting out lactose or casein? You need to be casein free (the protein found in milk, etc. whereas lactose is just the sugar in milk products). This might make the difference for you. I don't know where a list is of names, but the good thing is that it is one of the top allergens which is mandated by the FDA to be listed on foods. So in that...
  10. confusedks
    I just wanted to say that I understand the cravings! The problem is I get so sick from gluten I don't think I could ever do it. But, having said that there are things I couldn't even had, even if I was able to eat gluten because of dairy or soy, etc. But, someone on this board said that they ate gluten and it didn't even taste as good as they remembered...
  11. confusedks
    Charlie, Thank you for your advice. Were you all formally diagnosed by your doctors? It is really hard for me, because I need to eat ALL THE TIME, but at the same time I seem to gain weight easily when I eat as often as I should. Also, I can't have anything such as nuts except peanuts, but in really limited qualities. I am going to try to make a granola...
  12. confusedks
    Hello, I am 17 and was dx'd in May after a long list of health problems finally led to the diagnosis. It will be difficult for them to adjust, but they have you and your support. I am also starting a teen support group in the Los Angeles area, so if you want to give either or both of them my email address, feel free. It is knshore@hotmail.com I would be...
  13. confusedks
    I'm really upset today (mainly because I only got 6 hours of sleep! I had an event at school last night too!) because I started to have something bother my stomach! I feel like I have a freakin' stomach ulcer. I'm worried because of all the NSAID's I have been taking for my back...eek! That's that. As far as the hypoglycemia, I told my doctor I shake...
  14. confusedks
    Today at school I had what felt like a MAJOR hypoglycemia attack! I woke up at about 5 am and around 5.45 I had an omellete (with avocado and tomatoes and nothing else). Then I had decaf coffee ( ) with hemp milk and cocoa powder. On my way to school I had starbursts (this is the problem with having a car...lol! I can stop anywhere and buy ANYTHING!!! )...
  15. confusedks
    I had it at Celiac Camp over the summer and it was yucky!!!!!!!!!! Another girl was there though, and she was dairy free and they made me and her some, she really liked it. I thought it was GROSS, but it's all personal opinion. Sorry that wasn't very helpful! Kassandra
  16. confusedks
    So, I can totally relate to the chocolate thing!!!!! It's craziness, but I really do try to just NOT buy it at all. Tom and Carla, How on earth did you get to the point of not craving sweets??? It is killing me!! Everyday I eat something sweet it's terrible! I just feel like there is so little to eat in this world for me anyway, that id I take out...
  17. confusedks
    Hello all, I did not have a stool test because I think it was the blueberries I had been eating. But I do need to go back to my Doctor to talk about this bloating! I think something else is going on. I am not joking I can gain up to 5 lbs in ONE NIGHT !!!!!! (All in my stomach mind you!) Keep in mind I only weigh about 115 lbs and am 5' 4". I am...
  18. confusedks
    Carla, Does one HAVE to use abx to help with Lyme?? I just realized, I am allergic to all abx and I wouldn't be able to take any if I did have Lyme. Is that what alternative LLMD's do? I'm confused. Kassandra
  19. confusedks
    Donna, How and where did you have your neurotransmitter test done? I think that would be really interesting for me to have done. I have brain fog all the time now. I am unmotivated, etc. Has anyone seen Jin? Kassandra
  20. confusedks
    I have not had any chocolate or any dark food at all in at least 2 weeks or so. I think I need to see my doctor, but he is usually so dismissive its annoying! And I know I need to find a new one, but HOW?? It's so hard to get good referrals. I did tell my mom and she actually said I really don't look well, so maybe she'll go with going to the doctor since...
  21. confusedks
    Carla, I'm NOT taking iron. I haven't been because my stomach has NEVER tolerated it well. I stopped maybe 8-9 months ago. Even my hematologist told me to stop because it wasn't helping (pre-celiac dx.) I will wait a couple more days to see if it's still happening. Kassandra
  22. confusedks
    One other thing, does anyone know why I would have really dark brown, almost black stools? I have been really bloated (even while I was on my crazy, strict diet) and I noticed my stools have been REALLY dark brown. What is going on NOW?? Kassandra
  23. confusedks
    Carla, Thanks for the free advice! That's exactly what I was thinking of doing. I also think a lot of the fatigue is worsened by my back. It has gotten way worse since school started and I think it's because of all the walking and backpack carrying, etc. It is really limiting at times, but whatever! I actually am getting copies of x-rays and I was going...
  24. confusedks
    Carla, That's so funny about med school! I want to go into medicine and be a GOOD doctor. Not like any of the ones most undx'd Celiacs see. I would be more integrative than just pills, etc. I think we need more doctors like this in the world! I am trying hard to keep my attitude up. It is really difficult. Ironically I was up really late last night studying...
  25. confusedks
    Hello, I have been staying up really late studying which my body doesn't like at all!!! I went to put my jeans on this morning and thank goodness I was standing next to my bed because I got this shooting pain down my back and then down my leg. I had to fall onto my bed! It was oh so painful at 5.30 this morning! My appointment at the end of the...
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